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Let's be honest *no replies please* *TW*

mytwistedsoul July 1st, 2020

I created this space for me to be able to write - whatever is on my mind that I may not want replies too. It isn't that I don't appreciate the replies - it's that alot of times I am really uncomfortable with the support. Sometimes it's the well meaning words get twisted around in my head - sometimes it the well meaning suggestions that are turned around and taking the wrong way. Sometimes - it's fear - rejection - judgement - fear of offending someone with what I say. Even now - the creation of this is - causing some anxiety - and I feel the edge of a panic attack - so let's take a pause and a few deep breaths

I often don't feel as though I deserve support. I waste peoples time and feel like an inconvenience. With that in mind - I've been slowly going quiet

The TW is because - well - lets be honest - if I'm going to put some of whats in my head and and I don't want replies - you dear gentle reader should be warned at least. Because there are times my head is a scary place -

I'll say I'm sorry in advance because sometimes I do swear - I try not to and I try to remember replace some letters - but well sometimes I dont care and sometimes I forget. Idk - I suppose I should say sorry for my sense of humor in advance too - because sometimes it's alittle dark or alittle inappropriate

So - let's post and panic over this now shall we?

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mytwistedsoul OP August 27th, 2023

Has it really been this long?

He's in the hospital again. He had a fever. They think he has an infection somewhere but they can't seem to pinpoint where and his hemoglobin was unbelievably low. He had two transfusions. The week before he had a reaction to the transfusion he had to have

He called a few weeks ago. Didn't say much - just that the doctor doesn't give him long. Told me to keep it to myself. Said she gets too emotional. Guess it's easier with me because I tuck those things away. What I don't understand is that the pet scan showed that the tumors weren't actively growing. Unless that's just what he's saying. I think he went to the appointment by himself. On good days I know he does drive himself. So it's possible he's not telling everything. Or - and I hate to say this but maybe he's exaggerating? That sounds so bad. Pretty sad to say I don't trust a dying man

I'm struggling with time. Falling behind on things. It's been weeks since the field was mowed apparently because it's so tall

Depression seems to be a reliable friend. God it's getting heavy each day

mytwistedsoul OP August 28th, 2023

Oh look two days in a row! Unless I delete this

I'm having trouble with intrusive thoughts. I often feel impatient and angry. There's times that it feels like it wouldn't take much for it to all snap

I start to reply to check-ins or discussions and I don't like the tone I'm bringing so I delete it. Mainly cause I just don't have it in me to get some basic reply. There used to be actual conversations here between people. I'm not pointing fingers in anyway - just an observation

Maybe it's just me. I haven't felt like myself in a long long time. Somewhere along the way these past couple - years? I censor myself. Overly cautious about what's shared

There's a lot of positivity pushing. Which - don't get me wrong positivity is ok in small doses but Idk I can't force it

I've had a headache for a couple of days. I'm alittle tired of my head hurting. I eat ibuprofen like tic tacs thinking it'll help but it just messes up my stomach. You'd think I'd learn


mytwistedsoul OP August 31st, 2023

some thoughts are heavy. I think they get heavier as the night grows darker. Like any pain that gains strength at night. What starts as an persistent ache in the afternoon becomes a steady throb that beats along side your heart. Nothing stops it. You can't exercise them. You can bury them but they just keep resurfacing.

mytwistedsoul OP September 12th, 2023

A while back we went to the beach. It was a spontaneous trip that happened after visiting my father. Over labor day weekend we went again. Totally planned and booked in advance this time. Stayed at a resort and tbh didn't really enjoy it lol

The beach is nice - all the people not so much and it was a holiday so there was a lot of people. I like the ocean. It's amazing - the power behind those waves. Scary. The sounds of them and seagulls. They weren't allowing people to go far in the water because of rip currents - not that there was any interest in that anyway aside from getting feet wet. The sand is a lot of fun and seems to go forever if you dig a hole. Mainly it's the water. There was something - I don't even know how to describe the feeling - to sit on the sand and just watch the water. To see the big ships and smaller boats. The airplanes over head with banners advertising things. Sat there for hours at a time. It was an amazing experience and it took me far far out of my comfort zone. The exact opposite of how things are here on the mountain with it's shade and earthy smells. I think that was the first thing Kade commented about lol. It stinks here

Went to a Tiki bar where we stayed. They had live music at night and fire pits. Totally over stimulating and overwhelmed but survived lol

My father *sigh* seems to think I should come visit every other weekend. I feel bad that it annoys me at times. But he says to come because of a b and c so we make the long drive only to have him say nevermind we'll do it next time. We don't really talk about anything and nothing gets resolved and the more he's visited the more things are noticed. The way he talks to his wife at times. The hostility in his voice. Maybe it's being over thought and the cancer is bringing out the worst of him. I know his wife has said he's depressed but I wonder if she's using that as an excuse

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mytwistedsoul OP September 14th, 2023

Got obsessed with finding things today. Spent hours looking through a thread. Sixty some pages. Made me anxious and gave me a headache. Found pieces here and there but idk how to. how do I get back to the me I was before? There's so much - anguish? So much loss. I don't like this new me. There's nothing to feel. With everything going on that's probably a good thing

There hasn't been any crying since well it's been a few years I think. Might get ready eyed but that's as far as it goes. Suck it up. Crying never helped anything anyway

Am I ever going to be that me again? Probably not. There's things that happened that changed alot of things. And done is done yeah? Break something too many times and it doesn't matter how good you are with glue. Eventually there will be little pieces missing no matter how hard you try to put it back together

crimsonLime6525 September 17th, 2023

Just going to stop by and sit with you for a little while. You’ve been in my thoughts recently ❤️

mytwistedsoul OP September 20th, 2023

Three years ago on this day Kodie was diagnosed with cancer. Thanksgiving Day she was gone. Now it's getting close to Taz's time. And my father has cancer. It seems to be a demented race to see who dies first

Times like this make me think that God is exceptionally cruel. I understand that there's nothing to really help Taz. She's old. Her body and her mind are just slowly winding down. She gets more agitated some nights and seems more lost on those nights. It's heartbreaking. It's something you would think that people would have some foresight on this. I suppose we do but choose to deny or ignore all the signs. We try to prepare and resign ourselves the the grim reality that's on the horizon

Father is almost skeletal. He's been giving things away. Minimizing his space. Maybe it helps him make peace. Maybe he thinks his family will move forward easier if there's less there to remind them of him? I used to feel jealous because they got the better version of him but now I don't. Their version is just different

I don't want to do this. I don't want to deal with any of this. It feels like we're surrounded by death. Waiting in limbo for the next step. It's heavy and depressing

mytwistedsoul OP September 28th, 2023

It's official. There's nothing more they can do. He had another scan last Monday. The scan before showed they weren't growing. That was a month ago? Now it's moved farther into his bones and in his liver. I'm not sure if I ever mentioned that it's a mix of small cell and non small cell cancer. The small cell stuff is the nastier sh*t because it's aggressive. Since his last scan it's just exploded. I have a copy of - idk what it's called tbh. The results I guess. A lot of big medical words but you don't need to be a rocket scientist to understand when it says it wasn't some place before and now it is. Or that it was this size and now it's bigger. At the rate everything is going and growing - he doesn't have long at all

Intrusive thoughts alot. Irritability and anger. I try hard to be patient but it takes so much energy to keep everything in check

At times I feel both frozen in place and time but restless. A constant whirlwind of - nothing

After this - there's no one. No one else in the family that might give two ***. God that sounds so pathetic and

I'm not sure why we as people bother with harming and doing stupid things. life bleeds us out slowly and methodically until we're nothing but husks.


mytwistedsoul OP September 30th, 2023

Dread. That acidic feeling that sits in the pit of your stomach. It kicks up the scared little rabbit that resides in your chest. You can almost hear your heart break. That first rip that slowly tears it in twos and three's and finally shatters into more pieces than you can count

The stupid thoughts you get thinking you'd rather do this or that. Anything except what you truly have to do. It doesn't matter if you see it coming. It doesn't matter if you try to prepare for the inevitable. You can brace yourself all you want it's still going to knock you on your a*s

The time has come to say goodbye to our sweet girl. It's the right thing to do. She's not suffering but her quality of life sucks and it's not as if she's going to magically get younger. So we struggle with the reality of reality. And the reality is she's getting worse. It's getting harder to get her to eat and drink. She loses her balance so easy the past couple of days. She bumps into things more even though we're so careful that nothing changes in her space. I hate this. We all do


mytwistedsoul OP October 11th, 2023

We postpone. We stall. We get through things one moment at a time. Taz is still in the world of the living. She's not worse but not better. I know - I know - I suck. A lot of disagreements. Fear. She's the end of a chapter. My father is another chapter's end. What then? 

The days pass in a blur. They all look the same at this point. Summer has passed and it's getting colder here. Not much got done this year. The garden was started but harder to maintain - it didn't do so good this year

Between the dog and the travel times to visit my father. There's not much time for anything except maintaining things the best we can. No wood stocked up. The shop looks like a junk yard. The field needs mowed. I'm a wonderful example of tried but failed. The schedule is so far out of whack it's not even funny. I'm trying to just roll with it - knowing it won't last forever but it feels like it will. It's hard. Life is hard. The seasonal depression adds to the rest of it. Nothing seems to help

My father is doing a small bucket list. And took a trip last weekend. Idk - I'm not - idk. It's all just so hard to grasp and there's still some denial. Acceptance is a b*tch