Disability support chat room discussion idea

I have PoTS and hEDS. What makes me me is that I love helping others and gymnastics.

@DonaldK,

I have POTS, hEDS, ASD, SFN(neuropathy), and HNPP(neuropathy)

I'm glad everybody is responding but I would rather do this in there disability support chat room. Is there a time that would fit with any of the mods. I would like to have a chat about this I mean it's good to have it in the form to but I would like to have a chat room discussion.❤️ I love everybody interacting though.😊

@DonaldK

I have spinal stenosis of the cervical spine, a tibio-calcaneal fusion of the right ankle, compression fractures from T-11 to L-1, MTHFR, and osteoarthritis. The fact I can run circles around newbies 40 years younger than me is proof enough that I try my best not to let my disability interfere in my daily activities.

There will be a pop-up chat room discussion tomorrow. This is not scheduled but if you need to know the time I'm planning on 6 PM I will let you know if it changes. @AffyAvo so I can get to know everybody do you have the ability to label the room if need be? Topic will be lighthearted discussion. Over the next six weeks I will be in the Academy under group support development wish me luck. I will have to run pop-up discussions I believe two times a week I have to re-look at the information but I don't believe it can be my community I think I have to do it for listeners but I wanna practice tomorrow. Treat this like a pop quiz for me if you would it will help me to brush up on my discussion skills as I haven't done it in so long. @wonderfulRainbow817 said I can do one tomorrow.

@777Bre777 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Colorfulcatsofhope @considerateBunny7436 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @InfiniteThoughts2k19 @Jamesjones10123 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @OneErased @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @sabeyesofblue3535 @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @SystemOfWolves @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @WeedyGarden @wonderfulRainbow817 @xandia @Xisle @Zed786

my disability is quadriplegia🦽

but it took just that much to slow me down-I was speeding down the road to an early death

now I get to see my children grow up and develop into awesome individuals…

plus my shoes and pedicures last longer

and

I’ve gained more understanding of what being human truly means…

it just takes me a little longer

I’m disabled, not handicapped-

to me, disability describes my body

handicapped speaks of my mind, intentions, and aspirations…

@DonaldK

Dunno if I'll make it to the discussion, time zones and the third day of a migraine going and all. So I'll drop my disabilities here.

Muteness, anterograde amnesia, other major cognitive issues, some chronic problems like chronic pain and chronic migraines, combined with BPD and PTSD.

Contrary to popular belief, out of all that, muteness is the least of a problem for me.

I can't really say what makes me me. Knowing that has been one of my biggest struggles for a good while now.

For advertising the sessions, what do you want done? If the times are known in advance, those on the group chat team should have the current information for adding them to the calendar.

We could set up 1 adult tag list that people opt into just for discussions (tagging in the forums for the notifications). We could also have 2 such taglists (ie. disability and support plus) and use both for 1 thread if a relevant topic for both areas. Or we could just use the current lists and tag them when making a post. If any of our members on the current disability taglist have a preference feel free to chime in!

Any other ideas? Open to suggestions from all!

@Donaldk @beck1

@DonaldK

I deal with HEDS, POTS, Asthma, Psoriasis, Fibromyalgia, Eczema and being investigated for IBD. I do sometimes suffer with my mental health on occasion, experiencing depressive episodes and anxiety.

What makes me me is my love for cross stitching, enjoying good movies, Netflix series, video games and lie ins, and loving a good cup of tea at the end of a long day!