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5 Things You Shouldn’t Say to Someone on the Autism Spectrum

Jenna August 29th, 2023
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Although the general public has become more aware of autism, there’s still a long way to go. The autistic community has commonly been told some phrases that we frankly don’t want to hear. These comments can be ignorant and hurtful, even with good intentions. Here are five things you shouldn’t say to someone on the autism spectrum.

1) “You can’t possibly be autistic”

Why would you flat-out deny something I know I am? It’s not up to you to decide who is autistic! We often get this comment when others hear that we have a relationship, a job, a child, or an educational qualification. They become skeptical and say, “But you’re doing so well. You can’t possibly be autistic!” Unusually, we also get this from those who are very familiar with autism. A parent might say, “You’re not autistic! You’re nothing like my autistic child who can’t do anything independently.” The truth is that everyone with autism is different and a diagnosis is not destiny. We consider it prejudiced to assume that autistic people are all lost causes who can’t possibly succeed in life. We can be capable of so much if we have an open mind.

2) “You must be good at math”

Not this misconception again! We get it, you’ve heard too many negative things about autism and you want to compliment us instead. But again, we’re all different. People on the autism spectrum have just as much variety as those outside it. This includes our abilities, which don’t always match the media stereotype. Some of us are great at math and some of us are terrible. Some of us are natural with computers and some of us are technologically illiterate. Some of us are savants and some of us struggle intellectually. Just like you, there’s no single profile of our mental abilities. Putting some abilities on a pedestal can exclude autistic people who lack those abilities and make them feel inferior.

3) “You don’t look autistic. You seem so normal”

What does this even mean? How does someone look autistic? How does someone look normal? We’re physically no different from the rest of you. There’s no way for someone to look autistic at all. This comment is even worse if this is supposed to be a compliment. It suggests that seeming “autistic” is inferior and seeming “normal” is an ideal standard. We’re just different from you and we don’t want to be forced to be someone we’re not.

4) “What’s it like to be autistic?”

What a strange and generic question. I might as well ask you, “What’s it like to be not autistic?” We don’t even know where to begin to answer this. Being autistic is everything we know. It’s in every single experience we have from day to day. Also, there’s no unified autistic life experience. Every autistic person has their own unique life, with experiences different from the others. Are there any experiences that are universally shared between all of us? Sure. We all get asked these silly questions.

5) “Everyone’s on the autism spectrum”

No, they’re not. Trust me. Those who make this comment are suggesting that everyone understands and shares our struggles to some degree. Is this supposed to make us feel better? Well, it doesn’t work, because it’s a totally false suggestion. Others don’t know what it’s like to be autistic and never will. As funny as it is to say, only autistic people are autistic. This comment isn’t reassuring, it’s totally dismissive of our unique struggles and experiences.

Have you heard any of the comments mentioned in the article?

References

Brown, L. (2012, February 27). 15 Things You Should Never Say To An Autistic. AWN. https://awnnetwork.org/15-things-you-should-never-say-to-an-autistic/

Hirschberg, E. (2017, December 13). What To Say & What Not To Say To Someone With Autism. Research Autism. https://researchautism.org/what-to-say-what-not-to-say-to-someone-with-autism/

Stout, A. (2016, July 6). 11 Things Not to Say to Someone with Autism. The Autism Site. https://blog.theautismsite.greatergood.com/dont-say-autism/

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beck1 August 29th, 2023
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@Jenna thank you for making this much needed thread! I know its going to be very helpful to many and hopefully start a discussion here about what is not acceptable to say!

Peoples words can be so hurtful and mean, even if that person didn't intend on being hurtful. Thats why I really do believe educating the general public more about Autism is super important!

The first point you make is a very sad one and it seems to happen a lot... Not just with the Autistic community but with in disability or mental health community. People have their own perception of what they believe Autism is and if you don't fit that mold, then you must be making it up...

The second one makes me roll my eyes because I am so bad at math... I struggled so much in school with math and still struggle with just the basics.

I think it's very insulting when people say that we don't "look" a certain way. I have personally had people say things like this to me not really about Autism but more so trauma. I think some people mean it to come out like its a compliment when it really couldn't be further from a compliment honestly.

With the 4th point, I think people sometimes have a hard time knowing how to approach something that they don't know a lot about and may say things that they don't necessarily mean. I think it would definitely be good to educate people on the questions that are okay to ask and the questions that can be hurtful.

The 5th point is one that I worry about hearing honestly because I worry that people will say "well most people struggle with socializing sometimes" etc etc. Again, its a good opportunity to educate, if you feel comfortable doing so.

Thank you again for making this thread, Jenna! It was much needed

AnnaSilverberg August 29th, 2023
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🚀 @Jenna 🚀

💖 Thank you! 💖
💕 Thank you so, so much for writing this post! 💕
💎 I appreciate you so much! 💎
📌 This should be posted everywhere! 📌
💔 It hurts to get those questions and hear those statements 💔
🌋 I agree with every word that you have written there, 👑
👑 again, thank you so, so, so much! 🌋
✨💙



theboymoana August 30th, 2023
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@Jenna


no one say to me this only get diagnosis say know already can tell autistic how act

Haleyloved August 31st, 2023
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@Jenna

I have austim and just because I look normal doesn't mean I don't have it?!

NOT all DISABILITIES are VISIBLE

What I hate most and the most frequently thing people say to me is "you don't have austim " "you don't deserve a service dog "

It's so frustrating!

teenytinyturtle August 31st, 2023
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@Jenna

Thank you for sharing and raising awareness 💜

GoldenRuleJG August 31st, 2023
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You tell e’m, Jenna - thank you for sharing with us ☺️


stereotypes , myths are never helpful - get to know the person not the condition ❤️

calmMango9611 May 2nd
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@GoldenRuleJG I love your answer, my friend. 

HatsEatYou September 2nd, 2023
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The first one on this list really frustrates me. I always get that. "You don't act autistic" line it frustrates me because yeah i don't act autistic because peoples perception of autism is usually flawed and i try really freaking hard to fit in with everyone. Its frustrating because i try so hard and that just makes people think i no longer need support. When its the support that makes me able adapt to there definition of normal. Also the line "everyone struggles with that. It doesn’t mean your autistic" is super invalidating. It's kinda the same as the everyone is a little autistic thing. Sure the things I experience other people do. But it's a disorder because of the severity and frequency i struggle with these things. It's not that hard to understand.

StressedGirl March 19th
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@HatsEatYou I love this, well, I hate the content of what you're having to say, but in terms of actually being bang-on point couldn't be more bang on point! :) Amazing! :) Spoke my words exactly.  Lnnge prcssng.

PurpleFlower40 March 18th
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@Jenna Thank you for this, I have people who are on the spectrum and I unfortunately cannot understand them due to their lack of social cues. I miss up and think they understand what I do. I am trying to empathetic to people on the spectrum, but it is very tiring to be honest.

LionsFan April 10th
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@Jenna

Your autism isn't real because you are not diagnosed by a psychiatrist or psychologist.

Jenna OP April 10th
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@LionsFan

Are you saying that is what people say to you because your autism hasn't been diagnosed by a professional?

LionsFan April 11th
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@Jenna

It is diagnosed now but before, they said I was trying to get attention.

StressedGirl May 14th
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@LionsFan That is so horrible, people saying you were doing it for attention :/ I'm so sorry you went through that :/ Love to you xxx <3

LionsFan April 22nd
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@Jenna

1.  Do you have many friends  2.  Are you shy  3.  Do you have a job  4.  Are able to live by yourself  5.  Are you lonely

Jenna OP April 22nd
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@LionsFan

1. I have a few friends.  

2. I am very shy. 

3. I do work. 

4. Before my illness I could. 

5. I don’t feel lonely. 

What about you? What’s your answers to these questions?

Rubymaria2753 May 1st
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The you couldn't be autistic one kills me because yes Karen you're definitely right and the ASD specialist who diagnosed me, the doctor with the degrees that referred me and the several autism therapist I've been to were all wrong!!

People often say things like but you're nothing like my 4yr old autistic nephew.

Yes I'm not. I'm not 4 and I'm not a boy, so that would make sense! Not to mention children are never identical in personalities, regardless of if they have autism or not.

People forget autism is a spectrum and that it is a brain developmental difference - there are probably HUNDREDS of ways your brain could develop differently that are all a part of the neurodivergency scale. We do not have to be like the 4yr old, mathematical genius, train loving, stereotypical autistic boy in the TV shows to be autistic.


My response to the what's it like being autistic is I say give me a food you don't know a recipe how to cook, now imagine I lock you in a kitchen and force you to cook it without any instructions, the kitchen is full of other people also cooking that dish, they know the ingredients and steps but can't/ won't tell you, it's noisy/busy/crowded/ warm in the kitchen, you don't even know how to turn the oven on- you don't even know if you need to use the oven, everyone else around you is having a good time and eating their meal, they're all finished, you haven't even started, not to mention you're starving. Now imagine that but it's not just cooking, it's every aspect of your life from waking up and doing self care to socialising, to learning in school to basically existing. You feel like everyone else has read the book on what to do, say and act like except you.


The everyone's autistic makes me so mad because it's like a slap of so what. You wouldn't say to someone with terminal cancer Yeah well anyone could di€ tomorrow, it completely invalidates their feelings!

calmMango9611 May 2nd
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@Jenna Thanks for educating others about Autism. You cannot be Autistic? That is so unsupportive to say. If a listener would say something like that, they would be given some behavioral points and maybe a community break for asking  a question like that. There are people in this world of ours, who need to just stop and think before they speak. Words have meaning. Let us all keep this in mind.  As a former listener and leader, I would have said something more supportive. For example, I understand your struggling with your autism, and I understand how mean people can be, I truly do. I am sorry people have asked that question. How can I support you? Is there anything I can do to help you? Please let me know, and I will do my best to support you, or put you in touch, with another listener here at 7cups, who can best help you. Not to ask, You cannot be Autistic? That is the wrong choice of words. It is so very hurtful to ask a question like that. Sorry, but I take this kind of thing very personal, because as you know I am disabled to. I have a learning disability. So it hits close to home for me. I try not to, but when you're talking about the disabled, it is a different story for me.

GoldenRuleJG May 2nd
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Appreciate you sharing your experience too - thank you calm 🙏🙏

calmMango9611 May 2nd
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@GoldenRuleJG Your very welcomed, my friend.