Skip to main content Skip to bottom nav

List one thing you know about Chronic Pain

AffyAvo June 28th, 2018

Come in and share something you know about chronic pain, whether it's from personal experience or you've learned about it through others.

18
Pleiades20 June 29th, 2018

Even if your condition is not curable, the right doctor can be really helpful. I have chronic migraines and getting the right neurologist was a lifesaver for me. I used to be completely crushed by the pain and now I am able to work and go out and I have "rescue" medications if the pain gets too bad.

1 reply
AffyAvo OP July 5th, 2018

@Pleiades20 I'm glad you found a helpful doctor!

1 reply
load more
Ayla31 October 6th, 2018

@Pleiades20 hello! I have chronic migraines for more than 10 year. Ive been to many neurologists and did many exams but we cannot find the reason. I dont have any food reaction . The only thing I could relate is strees and something upsetting that happens. Oh, and also spending too much time in the sun. Having chronic migraine limits you in many ways. People also think that u are antisocial and dont like them

1 reply
Pleiades20 October 29th, 2018

@Ayla31

Sorry for the late reply, I haven't had my computer with me so it's harder to post online. Yeah, stress is a big trigger, for me it's one of the biggest ones. Caffeine can also mess me up if I drink took much coffee. It is hard when you have to cancel plans and I'm sorry you are dealing with this as well.

Have you talked to your neurologist about preventative medications? They have made some progress with those even in the last year.

load more
load more
July 2nd, 2018

@AffyAvo

I know that it isn't always visible and people don't airways believe you.

And i know that spevialists are do hard to find and get an appointment with, and sometimes they cancel on you even though you had to schedule tyne appointment 6 months in advance

And sometimes the solution they provide to you worsens other conditions or gives you an Another condition you didn't have before

1 reply
AffyAvo OP July 5th, 2018

@purpleHeart16 Yes, unfortunately others can make it more difficult.

load more
Booklover95 July 5th, 2018

@AffyAvo

That no "natural" thing will treat it. Is chronic for a reason. I hate people who think they think I and many other suffer out of choise.

And my condition isn't even the worst. I have IBS and chronic depression and anxiety. So chronic problems mentally and physically. But I know many people with much more painful conditions that hear this everyday...

1 reply
AffyAvo OP July 5th, 2018

@Booklover95 Some people seem to like to think they know way more than one with the condition and the doctors who specialize in them!

load more
vivelespatates July 6th, 2018

chronic pain can really limit a person's normal activities, and reduce their hability to adopt a healthy lifestyle, which may result in more problems. I would say that it has a negative impact on our global health, both, physical and mental :(

1 reply
AffyAvo OP July 6th, 2018

@vivelespatates Yes vives, the effects go beyond the pain itself.

load more
Jing2010 July 6th, 2018

I realize that being in constant pain can take your attention away from those that are important to you.

1 reply
AffyAvo OP July 14th, 2018

@Jing2010 Yes, unfortunately it can do that.

load more
Lilibuth12 September 20th, 2018

Chronic pain is often not understood and often people want to measure the level of your pain on a scale, however often with chronic it's also about the length of time that makes the pain unbearable. I have chronic migraines and the pain varies from barely any at all to the worst pain I have ever felt, however sometimes is the mid level ongoing pain that gets me more than the excruciating stuff. Idk. I feel people misunderstand it.

convivialPlum6966 October 3rd, 2018

They're times when I hide behind it. It's always there a little like an unwelcome comfort blanket. I'm always going to be in this pain, and it shouldn't stop me doing so much, in reality it does, and sometimes I just let it.

Texgal0869 October 8th, 2018

@AffyAvo...howdy from Texas!!!

One thing I know about chronic pain is that its far too easy to become depressed...I've lived with the pain from nerve damage for going on 5 months now...really difficult to find the cheerful me is used to be before it settled in after I had to have a chest tube...she's still there but so buried 'difficult to find' feels like hopelessness some days...

spooniepixie October 17th, 2018

It is possible to experience something called fibro fog. It's when your brain goes all fuzzy and you can't remember something words or keep your line of thought. But don't panic, you can work through it and people will still understand what you want to say or do. It is hard, i know, but don't give up.