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November Check In with Us!
by AffyAvo
Last post
1 day ago
...See more [A sheep pulls a carrot from a garden] With the end of October and the beginning of November, harvest season comes to mind. Canadian Thanksgiving has passed, American Thanksgiving is to come, Diwali celebrations are occuring and pumpkins are still floating around! I know other cultures have celebrations related to harvest too. What types of harvest celebrations do you celebrate? Do you face any challenges at this time of year? How are you doing today? You are welcome to pop in to this thread multiple times throughout the month and share the tough things and the good things this month.
Meditation and Self-Care
by MistyMagic
Last post
October 18th
...See more September is Self-Care Awareness month! Read more Here! [https://www.7cups.com/forum/projectsandevents/General_2421/SeptemberisSelfCareAwarenessMonthEventsHelpWanted_336603/]          Meditation and Self-care Meditation is a word that can scare many people but it is not all about sitting cross-legged and saying ‘Ohmmm’ (although that works a treat!), it can take many forms and you can also design your own. You probably use a type of meditation when you stir your coffee and think, or whilst waiting for the water to boil to make your tea. Meditation covers a vast array of ways to focus your mind and body into one! Using simple meditation as a form of self-care can be incredibly beneficial for reducing stress, enhancing focus, and promoting overall well-being. Below are ways to incorporate meditation into your self-care routine, followed by some useful resources and ten frequently asked questions with answers about meditation.  So, all-in-all a complete guide to simple mediation! Ways to Use Simple Meditation as Self-Care: * Breath Awareness Meditation: Focus on your breath. Notice how it flows in and out without changing it. Do this for a certain number of breaths, seconds, or minutes.This can calm your mind and reduce stress.You can decide whether it feels more comfortable breathing in through your nose and out through your mouth, the opposite or even in and out through your nose or mouth. This way you are in control and do what suits your body the most. Try them all then decide. * Body Scan Meditation: Mentally scan your body from head to toe, noticing any tension or discomfort. This helps to relax your muscles and increase body awareness.This is more complicated and needs more time and can mean that any areas need more attention. * Mindfulness Meditation: Sit quietly and bring your attention to the present moment without judgment. Observe your thoughts as they come and go, helping to reduce anxiety and stress. There is also the Mindfulness Community [https://www.7cups.com/forum/mindfulness/] here on 7 Cups.  * Guided Meditation: Use a recorded guide that leads you through visualizations or relaxation techniques. This is a good option for beginners who need direction. You can also record meditations yourself so they are directly identifiable to you current condition. * Mantra Meditation: Repeat a calming word or phrase (mantra) silently to focus the mind. Common mantras include "Om" or "peace." * Walking Meditation: Practice mindfulness while walking slowly, paying attention to your steps and the sensations in your body. It’s ideal for those who find sitting meditation challenging. * Gratitude Meditation: Spend a few minutes reflecting on things you're grateful for. This can shift your mindset towards positivity and contentment. * Five Senses Meditation: Tune into each of your five senses—what you see, hear, smell, taste, and feel. This can ground you and bring your awareness back to the present. * Short “Micro” Meditation: Take 1-3 minutes to focus on your breath, a mantra, or a calming visualization. This is perfect for quick mental resets throughout the day. * Counting Meditation: Count slowly from 1 to 100, or 1 to 50 or pick a number, this focuses the mind and the thought together so that energy is synchronised. * Cleansing Meditation: Whilst standing or sitting at the sink concentrate on each task and each circular motion of the items. Or whilst showering focus on the sensation of the water and allow yourself to concentrate on each movement and finally allow the water to run over you washing away all negative energy down the plug hole away to the Earth. * Favourite Place Meditation: Visualise how to get from where you are to your favourite or safe place. Think about each movement, moment and the route shedding any negativity on the way. You can get there even when you are actually somewhere else. You can calm yourself and soak in the good energy, replenishing and refreshing yourself from that place before you return. You can return in a heartbeat if you are ready, if not then retrace your  steps gradually building up strength to face the world again. Each of these meditations can take moments, you can practice them almost anywhere, and, when you have tried them a few times you can even use them in busy meetings or stressful times. ------------------------- Frequently Asked Questions (FAQs) About Meditation: * Q: How do I start meditating if I’ve never done it before?  A: Start by setting aside 5-10 minutes in a quiet place. Sit comfortably, close your eyes, and focus on your breathing. Don't worry about "doing it right"—just pay attention to your breath. * Q: How long should I meditate for as a beginner?  A: Start with 5-10 minutes a day and gradually increase as you become more comfortable. Even short sessions can be beneficial. * Q: What should I do if my mind keeps wandering?  A: It’s normal for your mind to wander. When you notice it happening, gently bring your attention back to your breath or focus point. Over time, this will become easier. * Q: Do I need to sit in a specific posture to meditate?  A: No. Sit in any position that is comfortable for you. The most important thing is to maintain a relaxed and alert posture. You can even meditate lying down if you wish, but you might be more likely to fall asleep. * Q: Can I meditate if I don’t believe in spirituality?  A: Absolutely. Meditation doesn’t require any specific spiritual belief. It can be practiced simply for relaxation, focus, and mental clarity. * Q: Is it better to meditate in the morning or evening?  A: There’s no “better” time. Morning meditation can set a peaceful tone for the day, while evening meditation helps to unwind and relax. Choose a time that fits your schedule.The more you do short meditations the more you will find new ways and times. * Q: What are the benefits of meditation?  A: Meditation can reduce stress, improve focus, increase self-awareness, promote emotional health, and enhance sleep quality. Long-term practice has been shown to positively affect overall mental well-being. * Q: How do I stop falling asleep during meditation  A: Try meditating sitting up rather than lying down. You can also open your eyes slightly or try meditating earlier in the day when you’re more awake. But, hey, what's so bad about falling asleep as long as you are safe, some people use it as a sleep aid. * Q: How long does it take to see the benefits of meditation?  A: Some benefits, such as feeling more relaxed, can be experienced immediately. However, for long-term effects like reduced anxiety or improved focus, consistent practice over weeks or months is typically required. * Q: What if I don’t have a lot of time to meditate?  A: You can still benefit from just a few minutes of meditation each day. Micro-meditations, where you focus on your breath or surroundings for 1-3 minutes, can be very effective. ------------------------- By integrating meditation into your self-care routine, you can develop a practice that not only calms the mind but also strengthens your overall mental and emotional well-being. There are many accessible resources to help you get started, and with time, even brief moments of mindfulness can offer profound benefits. ☺️Share your ways to meditate here! ☺️Do you meditate? Or are you going to try? ☺️Do you have any meditation questions? ☺️Would you be interested in a group meditation here?
Interview Series - Master List!
by AffyAvo
Last post
September 9th
...See more Our series 'Interview Diaries' allows the community to share their direct living experience with conditions and disabilities and for us to learn from each other. To learn more about Interview Diaries, share as an interviewer or interviewee, and to be notified of new interviews via the taglist please see Call of Applications [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/CallForApplicationsToBeInterviewed_276642/] List of Interview Diaries:- Non-Epileptic Seizures With Audienta! [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/NonEpilepticSeizuresWithAudienta_275839/] Turner Syndrome With @Animeweebu123 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TurnerSyndromeWithAnimeweebu123_276707/] Spending Time With A Surfer @theboymoana [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/SpendingTimeWithASurfertheboymoana_276777/] Learning About FND With @EmpatheticListener0309💜 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningAboutFNDWithEmpatheticListener0309_277278/] Interview about being Deaf with FrenchMarbles [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/InterviewaboutbeingDeafwithFrenchMarbles_277578/] The magical @MistyMagic Tells Her Experiences With Celiac Disease [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TheWholesomeMistyMagicTellsHerExperiencesWithCeliacDisease_277824/] Dissociative Identity Disorder with @DichotomousDetia [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/DissociativeIdentityDisorderwithDichotomousDetia_277991/] An Interview With @AffyAvo on Hereditary Angioedema♥ [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/AnInterviewWithAffyAvoonHereditaryAngioedema_278243/] Endometriosis and Me: an interview with @Lilyfae00 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/EndometriosisandMeaninterviewwithLilyfae00_278539/] PoTS and Me: An Interview with @wonderfulRainbow817 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PoTSandMeAnInterviewwithwonderfulRainbow817_278731/] Tendonitis and Misdiagnosis: Rachel's Experience With Chronic Pain [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TendonitisandMisdiagnosisRachelsExperienceWithChronicPain_278839/] Pervasive Developmental Disorder: Interview with @Goalsforlife [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PervasiveDevelopmentalDisorderInterviewwithGoalsforlife_280227/] WarmLightXO Sheds Some Light On PCOS [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/WarmLightXOShedsSomeLightOnPCOS_280813/] Learning With Lucy: Her Experience With Epilepsy [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningWithLucyHerExperienceWithEpilepsy_284621/] Grab a Cuppa and Learn about Multiple Sclerosis [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewDiariesGrabaCuppaandLearnaboutMultipleSclerosis_325500/] Living with Cerebral Palsy [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] Living with Meniere's Disease [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/] Living with CFS/ME [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewLivingwithCFS_328938/] Living with RA (Rheumatoid Arthritis) [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesLivingwithRA_333251/?post=3610799] Being a wheelchair user [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesBeingaWheelchairuser_336321/?post=3653342] Living with hED and POTS [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewLivingwithhEDSandPOTS_336838/?post=3659993] T [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/]his list is updated as we post more Interviews. Sept 2024
Waiting For Surgery? Tips and information
by MistyMagic
Last post
6 hours ago
...See more Waiting for surgery can be a stressful and anxiety-inducing time, especially when faced with uncertainty about outcomes, potential complications, and recovery. Please bear in mind that this is written from my experience, always check information with your health team. I know that I found it extremely stressful, and then my surgery was cancelled at the very last moment. So whilst I was waiting for the next date I tried to figure out how I could ‘wait’ better.  It is proved that some coping strategies during this period can improve mental and emotional well-being, which may even have a positive effect on physical health and post-surgical outcomes.  Here are some of my tips and also some other evidence-based tips and strategies that I found whilst managing the stress of the wait for surgery. 1. Acknowledge and Manage Anxiety * Recognize and Validate Feelings: Anxiety about surgery is natural. Acknowledging this emotion rather than suppressing it can help reduce its intensity. - Remember why you are having the surgery. - Concentrate on positive outcomes. It helped me to think that in one week I would be post-surgery, then in three days it would be post-surgery, then one day, one hour etc. * Mindfulness and Relaxation Techniques: Practicing mindfulness, deep breathing, and progressive muscle relaxation can help lower stress. Research shows that these techniques can reduce pre-surgical anxiety and potentially improve post-surgical recovery outcomes (Ashton et al., 2017). 2. Education and Information * Gather Accurate Information: Knowing what to expect can reduce uncertainty, which is a common trigger for anxiety. Understanding the procedure, potential risks, benefits, and recovery timeline can help set realistic expectations. * Consult with Medical Professionals: Patients should feel comfortable discussing concerns with their healthcare team. One study found that better communication with doctors can significantly decrease pre-surgery anxiety (Auerbach et al., 2020) . * Ask Questions - make a list of questions and information that you need then ask the nurses and health care staff- what do you need to take with you, what can’t you bring.  * If you can take a phone or tablet then try to download apps that you will find useful, relaxation apps,  films, games, or audio books are very useful. Remember to take in headphones and charger too! 3. Find a Support Network * Engage Family and Friends: Explain to them what your surgery is and when and about your after-care. Having a support network can provide emotional comfort, whether it's through talking, companionship, or help with daily activities during the waiting period. Strong social support has been linked to improved surgical outcomes and emotional resilience (Schmid et al., 2019) . * Joining a Support Group with others facing similar procedures can be helpful. Sharing experiences and coping strategies may provide reassurance and reduce feelings of isolation. Ask your doctor’s practice and see if there are any local or online groups, if not then maybe consider starting one. 4. Engage in Healthy Lifestyle Choices * Maintain Physical Activity: Gentle exercise, like walking or stretching, can improve mood, boost physical health, and prepare the body for surgery (Louw et al., 2017) . Have a dental check-up. Good oral hygiene can help, check there are no loose teeth or crowns, try and have your teeth cleaned so you are sparkling before the anesthetic. * Eat a Balanced Diet. Try and choose healthy foods, especially those with vitamins C, D, and protein, support immune function and tissue repair, which can be beneficial pre- and post-surgery. Think about the food you will need after your surgery when you are back home. Would it help to batch-cook and freeze meals so that you do not need to cook so much? Or buy canned goods, and freeze bread and milk so that shopping trips aren’t so frequent. * Sleep Hygiene: Prioritize good sleep, which can enhance mental resilience and immune function, aiding in recovery. Limit screen time before bed, find relaxation apps. 5. Use Positive Visualization and Goal Setting * Visualize a Positive Outcome: Studies suggest that visualizing a successful surgery and recovery can be a powerful tool for reducing stress. It helps patients feel in control, enhancing their overall resilience (Trent & Wilson, 2018) . * Set Small Goals: Focusing on achievable goals can provide a sense of accomplishment and keep the mind occupied. This can include tasks like preparing your hospital bag,  planning enjoyable activities, or organizing medical paperwork. 6. Practice Patience and Acceptance * Acceptance-Based Coping: Accepting the situation rather than fixating on changing what cannot be controlled has been shown to reduce stress. Acceptance-based approaches, such as Acceptance and Commitment Therapy (ACT), may be beneficial for patients awaiting surgery, as they encourage people to engage with life fully, even in the face of uncertainty (Hayes et al., 2016) . Take 7 Cups course on ACT https://www.7cups.com/act-therapy-techniques/ [https://www.7cups.com/act-therapy-techniques/]  7. Explore Distraction and Fun * Engage in Hobbies: Filling the waiting period with activities you enjoy can reduce pre-surgery stress. Watching movies, reading, gardening, or any other enjoyable activities can redirect focus from worry. * Limit Overexposure to Health Information: While researching can help with preparation, overloading oneself with information can sometimes increase anxiety. Limiting time spent on health websites or forums can prevent information overload. 8. Prepare Logistically and Mentally for the Recovery Period * Organize Recovery Essentials: Preparing a comfortable recovery space at home, arranging for help, and having necessary supplies can offer peace of mind. (see above also) * Prepare Mentally for Setbacks: Knowing that setbacks are possible during recovery can help adjust expectations. Studies show that setting realistic expectations for recovery contributes to a better outlook and mental well-being (Anderson et al., 2015) . Summary Coping with the wait for surgery involves emotional management, practical planning, and support-seeking. Evidence suggests that those who actively use these strategies not only feel better emotionally but may experience better physical outcomes. Implementing these coping skills can transform a potentially distressing waiting period into one that is manageable and constructive. Good luck to all waiting or recovering! Now let's hear from all of you!1) What are your best tips for waiting for surgery, please share with us.2) Have you had surgery or are you awaiting surgery? Tell us more!3) For the fun side, tell us about your best fun distractions, what do you like to do? What helps distract you when you are facing something?
Inclusive Trick or Treating
by AffyAvo
Last post
10 hours ago
...See more More people are becoming aware about how to be inclusive to all Trick or Treaters this Halloween! [A gif where the lighting makes a pumpkin teal] Teal Pumpkin Project  When people put out Teal Pumpkins it means they have non-edible treats available. This started off as being a way to be allergy friendly, and this is also good for trick or treaters who have other dietary restrictions. For some good ideas and some more fanciful ones, check our the on-going A-Z game here  [https://www.7cups.com/forum/disabilities/CommunitySpace_227/AZtreathandoutsfortheTealPumpkinProject_262266/] Treat Accessibility Treat Accessibility offers tips to remove barriers to trick or treaters. Some cities have locations where you can pick up a sign [https://www.treataccessibly.com/free-lawn-sign-2024-version], plus you can print your own [https://www.treataccessibly.com/free-lawn-sign-2024-version] and set it outside before Halloween so people know ahead of time your house will be accessible/ Treat Accessibility also hosts  Halloween Villages - inclusive events for Trick or Treaters where all participating households are accessible. Blue Pumpkins Some families choose to use a blue pumpkin to indicate that their trick or treater is autistic. This may help create some extra patience for children who may have trouble communicating, aren't comfortable wearing a costume or may have additional sensory needs. Some households also put out blue pumpkins to indicate they are friendly households for these children. Questions If you're handing out treats or trick or treating, are you participating in any of these? Is there a Halloween Village near you? Share an accessibility tip for any household or trick or treater (hint check out treat accessibility [https://www.treataccessibly.com/how-to] if you're stuck) Bonus question - share a recipe we can use after carving those pumpkins!
CRPS - What is Complex Regional Pain Syndrome
by MistyMagic
Last post
11 hours ago
...See more Today is World CRPS Day!What is Complex Regional Pain Syndrome (CRPS)? Complex Regional Pain Syndrome (CRPS) is a chronic pain condition usually affecting one limb, often after an injury. It is thought to be caused by damage to, or malfunction of, the peripheral and central nervous systems. The pain associated with CRPS is disproportionate to the initial injury and can result in long-term disability. CRPS is classified into two types: * CRPS Type I (formerly Reflex Sympathetic Dystrophy - RSD): Occurs without confirmed nerve damage. * CRPS Type II (formerly Causalgia): Occurs with confirmed nerve damage. Symptoms of CRPS CRPS symptoms can vary in intensity and duration, but commonly include: * Severe, constant, burning pain: Often out of proportion to the injury. * Swelling and changes in skin color: Skin may appear blotchy, purple, or pale. * Temperature changes in the skin: The affected area may feel unusually warm or cold. * Sensitivity to touch: Light touch or even wind can cause significant pain (allodynia). * Changes in skin texture: Skin may become thin or shiny. * Changes in hair and nail growth: Increased or decreased growth in the affected limb. * Stiffness and decreased mobility: Especially in the affected joints. * Muscle weakness or atrophy: Due to disuse or decreased movement. * Tremors, spasms, or dystonia: Uncontrollable muscle movements can occur. Symptoms often spread from the site of the initial injury to other areas and can worsen over time if not treated. Commonly Asked Questions about CRPS1. What causes CRPS? CRPS often follows an injury (like a fracture, surgery, or even a minor trauma), but the exact cause isn’t fully understood. It may result from an abnormal immune response, nerve damage, or improper healing of an injury, leading to abnormal pain signaling. 2. How is CRPS diagnosed? CRPS is typically diagnosed based on a combination of a detailed medical history and physical examination. There's no definitive test, but tools like X-rays, MRI scans, or bone scans may be used to rule out other conditions and observe characteristic changes like bone loss or abnormal inflammation. 3. Can CRPS spread to other parts of the body? Yes, in some cases, CRPS can spread from the originally affected limb to other parts of the body. The spread can be gradual, and it may involve the opposite limb or nearby regions. 4. Is CRPS curable? There is no cure for CRPS, but early treatment can help manage symptoms. Treatments include physical therapy, medications (like pain relievers, nerve blocks, or corticosteroids), and psychological support to help cope with the chronic pain. 5. What are the treatment options for CRPS? Treatment typically involves a multidisciplinary approach including: * Pain management: Medications such as NSAIDs, anticonvulsants (e.g., gabapentin), and opioids for severe cases. * Physical therapy: To maintain movement and reduce stiffness. * Nerve blocks or spinal cord stimulation: For severe cases, nerve blocks or electrical stimulation may be used to reduce pain. * Psychological support: Cognitive-behavioral therapy (CBT) to help manage the emotional and mental toll of living with chronic pain. * Alternative therapies: Acupuncture, mirror therapy, or graded motor imagery have been used in some cases. * Coping strategies https://rsds.org/living-with-crps/coping-strategies/ [https://rsds.org/living-with-crps/coping-strategies/]  6. What is the prognosis for someone with CRPS? The outlook for people with CRPS varies. Early diagnosis and intervention are key to preventing the condition from becoming more severe. Some individuals recover fully, while others may continue to experience symptoms for years, potentially leading to long-term disability. 7. Are there any complications associated with CRPS? CRPS can lead to several complications including: * Chronic pain and disability: Severe pain can lead to loss of function and disability in the affected limb. * Depression and anxiety: Coping with chronic pain may lead to mental health issues. * Muscle atrophy: From reduced movement and use of the affected limb. 8. Is there a genetic component to CRPS? While CRPS is generally not considered hereditary, some research suggests that genetic factors may play a role in how people process pain, making certain individuals more susceptible to CRPS. 9. Can children or adolescents develop CRPS? Yes, although it is more common in adults, CRPS can also occur in children and adolescents. In young people, the condition tends to resolve more quickly with treatment compared to adults. 10. What research is being done on CRPS? Ongoing research aims to better understand the underlying mechanisms of CRPS, improve diagnostic tools, and develop more effective treatments, including targeted therapies to modulate pain pathways. References * National Institute of Neurological Disorders and Stroke (NINDS). Complex Regional Pain Syndrome Fact Sheet [https://www.ninds.nih.gov/Disorders/All-Disorders/Complex-Regional-Pain-Syndrome-Information-Page] * Mayo Clinic. Complex Regional Pain Syndrome (CRPS) [https://www.mayoclinic.org/diseases-conditions/crps-complex-regional-pain-syndrome/symptoms-causes/syc-20371151] * American RSDHope Organization. CRPS Information and FAQs [https://rsdhope.org/]
November Check In with Us!
by AffyAvo
Last post
1 day ago
...See more [A sheep pulls a carrot from a garden] With the end of October and the beginning of November, harvest season comes to mind. Canadian Thanksgiving has passed, American Thanksgiving is to come, Diwali celebrations are occuring and pumpkins are still floating around! I know other cultures have celebrations related to harvest too. What types of harvest celebrations do you celebrate? Do you face any challenges at this time of year? How are you doing today? You are welcome to pop in to this thread multiple times throughout the month and share the tough things and the good things this month.
Finding Joy in Simple Moments
by rskill472
Last post
Friday
...See more Sometimes, the best moments in life are the simplest: the warmth of sunlight through a window, the sound of laughter, or the calm of a quiet evening. These little pieces of peace may seem small, but they’re gifts that can lift our spirits and remind us of the beauty in every day. Take time to notice these moments, to feel grateful for them, and let them bring you a sense of calm. Life can be full of rush and noise, but the simple moments are where real happiness often hides, waiting to be discovered.
A-Z treat handouts for the Teal Pumpkin Project
by AffyAvo
Last post
Thursday
...See more It's back for 2022! The Teal Pumpkin Project is a way for those who have allergies or other food restrictions to be able to enjoy trick or treating too! People who have non-food treats put out a Teal Pumpkin to show they have non-food goodies! So let's get some virtual non-food treats going! We'll go through possibilities alphabetically, try to not skip letters but if you're really stuck move on to the next letter. Hopefully we can get from A-Z more than once! Check the end of the thread to see what letter we left off at and click post to thread to add your treat for the next letter! The great thing about this online is these treats can get quite extravagant! [A teal jack 'o lantern sits on the grass] @777Bre777 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @Arsalanahmed @Ashleylovescats @AttentiveEar @Averayne93 @Azalea98 @azuladragon34 @BeyondTheInvisible @BlindGrapefruit @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Colorfulcatsofhope @considerateParadise6717 @Disneywoman @DoISayIt @DylanMark @Edobre399 @Emiliako @enthusiasticTortoise6681 @Fireskye13 @friendlyEars8792 @goldenSpruce1512 @InfiniteThoughts2k19 @Jamesjones10123 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @killaj0ule @lightTriangle7748 @LikeABirdWithoutWings @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MikuoniandBlueCheese @MistyMagic @mnhtx3 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @OneErased @pinkbunnywabbit @Pixiechu @PotFullOfSky2020 @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @sabeyesofblue3535 @SmolBurrahobbit12 @specialPurple1582 @StarsOrchidsOwls @sunshinegiraffe123 @TimidBear @turquoiseHemlock900 @u2canwin @wahmbrenda @WeedyGarden @wonderfulRainbow817 @xandia
October - Check-in with us!
by MistyMagic
Last post
Thursday
...See more Welcome October - the month that Autumn comes to many people which can cause extra challenges as the temperature and humidity change. I love this month, I love the spooky season, and I adore pumpkins, in soup, pies or casseroles they all have an added sweetness that is so appetizing. So come and share with us what you like or dislike about October! How are you doing? How are your pain levels?  What do you think about October? Have you started Christmas shopping yet!
Someone to talk to (maybe a listener?
by Astraeuss
Last post
Wednesday
...See more (Sorry if this comes across snippy this is my third time writing this to site keeps re setting) im 16 and have been dealing with likely POTS and EDS. I say likely because it’s impossible to get a proper diagnose when my parents refuse to take any of my doctors referrals or recommendations. Although I’m pretty sure my doctors diagnosed me with some sort of postural blood pressure thing and  hypermoblity but I digress. Things have gotten so hard. The pain keeps getting worse my hr keeps getting bigger and I’m able to walk and do less and less just making the pain worse. I struggle in school and my grades have dropped. I can’t get through a day. A 504 was meant to be sent in but it’s been 3 months and I don’t even know what’s on it. My dad has told me a few things but won’t show me. One thing being he took off putting my feet up because he “didn’t want me to cause issues for my teachers and be a problem”. So I don’t even know if it will help me at this point. I do have an amazing group of people surrounding me outside of parental figures but on one hand I don’t want to burden my friends more then I already do, and on the other just what someone to relate to. I’m worried about my future about jobs and aspirations. And I guess I just want someone who gets it I suppose.  Thanks for reading my rant if you’ve gotten this far it means the world 💜
CHRONIC PAIN and Life Lessons
by RedLibra7
Last post
Wednesday
...See more Hello to All Reading This! You are Amazing! 😁🙌💯 I am making the best out of the way my life has become after a lower back incident that has left me with leg weakness and numbness. Along with cronic lower back pain. Learning to live this way has been a difficult but rewarding journey. Due to gaining self love and inner strength. The Life Lessons I now carry with me have shaped me to who I have become. And I wouldn't trade that for anything❤️ Everyone struggling out there. Stay Strong. May your Life Lessons carry you to and happier lives. You DESERVE it😁
stuck
by dapperSouth8372
Last post
Wednesday
...See more Waited 2 and a half years for a disability insurance company to correct the amount on my benefits. Hired a lawyer back then finally. They paid my backpay for my benefits a week ago, BUT, now they have lost all my medical records. Doctors won't take my money or make an appointment to have my leg appliance replaced because I can't give them my medical records. Called some ( total of about 19 Doctors since the injury ) of my past Doctors to try and get my medical records myself but they say they have purged them because in Texas there is a 5 year time limit that they have to keep them, OR, they say I have to have the procedures done again if I can't come up with medical records when they were done the first time. The disability insurance company says they are looking for my records but it's going to take another 2 years ( my best guess ) to get these jokers to do anything about this, gauging from the fact it took them 2 and 1/2 years and a lawyer getting involved to correct my disability benefit. Timing of when they lost my records is very suspicious too. Can anybody give me advice on what to do next? I feel like I am just sitting here with no idea of what my rights are or what to do about this.  Was able to contact 3 of the 19 Doctors who have said they do still have some of my injury records, but I will need to pay them a fee to send them to me.  Other 16 basically say, they either purged the records because of age limit, or they sent the records to the aforementioned insurance company when the injury happened.  
Totally blind
by colorfulOasis1483
Last post
October 29th
...See more Hi everyone :) I'm Jess, 40, living in Aus, and totally blind. Just reaching out to see if anyone else here is blind or visually impaired?
POTS - World Day! Postural Orthostatic Tachycardia Syndrome
by MistyMagic
Last post
October 28th
...See more October 25th is World Postural Orthostatic Tachycardia Syndrome Day! Find out more! What is POTS? Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia, a disorder affecting the autonomic nervous system, which controls bodily functions like heart rate, blood pressure, digestion, and temperature regulation. In POTS, the key issue is an abnormal increase in heart rate when transitioning from lying down to standing up, without a significant drop in blood pressure. This condition can lead to a variety of symptoms that affect daily life and vary in severity. POTS is often diagnosed based on a heart rate increase of at least 30 beats per minute (bpm) in adults (or 40 bpm in adolescents) within 10 minutes of standing, without a corresponding drop in blood pressure. ------------------------- Common Symptoms of POTS POTS can produce a range of symptoms, including: * Rapid heart rate (tachycardia) upon standing. * Dizziness or feeling lightheaded, especially when standing up. * Fainting (syncope) or feeling close to fainting. * Fatigue, often severe and persistent. * Brain fog, including difficulty concentrating or thinking clearly. * Chest pain or palpitations. * Shortness of breath, especially when standing. * Headaches and migraines. * Nausea or gastrointestinal problems, including bloating and diarrhea. * Cold hands and feet, or changes in skin color (e.g., a purplish discoloration of the legs when standing). * Exercise intolerance—feeling unwell after even mild physical exertion. ------------------------- Key Questions and Answers1. How is POTS diagnosed? POTS is diagnosed using a tilt table test or by measuring heart rate and blood pressure changes during a simple standing test. In the tilt table test, a person is strapped to a table that tilts them from a lying to standing position while monitoring heart rate and blood pressure. A heart rate increase of 30 bpm (or 40 bpm in adolescents) within 10 minutes of standing without a significant drop in blood pressure indicates POTS. 2. What causes POTS? POTS has multiple potential causes, including: * Genetics: Some people have a genetic predisposition to POTS. * Viral infections: Many cases begin after a viral illness (e.g., mononucleosis, COVID-19). * Autoimmune disorders: POTS can co-occur with autoimmune diseases like lupus or Sjögren’s syndrome. * Deconditioning: A long period of bed rest or inactivity may trigger POTS symptoms. * Ehlers-Danlos Syndrome (EDS): Many people with POTS have hypermobility syndromes like EDS. 3. How is POTS treated? While there is no cure for POTS, treatment focuses on managing symptoms. Common approaches include: * Increased fluid and salt intake: to help raise blood volume. * Compression stockings: to improve circulation in the legs. * Exercise regimen: gradual reconditioning with exercises like recumbent biking. * Medications: Beta-blockers, fludrocortisone, midodrine, and others may help control heart rate and blood pressure. 4. Is POTS related to long COVID? Yes, some people develop POTS after recovering from COVID-19, and it is a recognized manifestation of long COVID. The virus is believed to affect the autonomic nervous system, leading to the development of POTS symptoms in previously healthy individuals. 5. Can POTS improve or resolve over time? Some people experience significant improvement or even remission of symptoms over time, especially with appropriate treatment and lifestyle changes. However, POTS can also be a chronic condition, and for some, it may require long-term management. ------------------------- Citations & Further Reading 7 Cups Interview - Living with hEDs and POTS 7 Cups Post - Drop with Pots [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/SpooniesandDropitlikeitsPOTSshirts_20186/] 7 Cups Interview - POTS and Me [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PoTSandMeAnInterviewwithwonderfulRainbow817_278731/] POTS World Day Information [https://www.potsuk.org/about-us/pots-awareness-day-25th-october/] * National Institute of Neurological Disorders and Stroke (NINDS) - POTS Overview * NINDS POTS Fact Sheet [https://www.ninds.nih.gov/health-information/disorders/postural-orthostatic-tachycardia-syndrome] Johns Hopkins Medicine - POTS Diagnosis and Management * Johns Hopkins on POTS [https://www.eds.clinic/articles/johns-hopkins-pots-clinic#:~:text=Postural%20Orthostatic%20Tachycardia%20Syndrome%20(POTS)%20affects%20the%20autonomic%20nervous%20system,strategies%20and%20treatments%20for%20patients.] Mayo Clinic - Overview of POTS * Mayo Clinic POTS Overview [https://www.mayoclinic.org/diseases-conditions/postural-tachycardia-syndrome-pots/symptoms-causes/syc-20451722]

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

There are a number of ways to get involved and be supported. We have a pop up teen chatroom and a 24/7 adult chatroom.

There are guides for Chronic Pain and T2 Diabetes
There are Q&A sections for Disabilities and Chronic Pain

Members may connect with a listener who has disabilities, chronic pain, cancer, diabetes, adhd or autism listed as a topic and there are listeners with disabilities supporting people with disabilities

We encourage people to post new threads and respond to others in the forums! Some good ways to get started are to introduce yourself and to join our tag list to be notified of weekly check ins and events. We also have an Interview Series: if you would be open to sharing more about yourself and want to be interviewed.

Looking to be even more activity in the Disability Community? Join as a leader!

*Note we are inclusive of all disabilities but ADHD and Autism each of their own communities which may be of interest to some of you.

Community Guidelines

🌟 Please be respectful of everybody's thoughts and opinions.

🌟 Don't think you are alone, so please share

🌟 Please be patient if you feel like your concern hasn't been addressed yet; we are working hard to add more leaders and supporters.

🌟 If you have any concerns, reach out to a leader or make a post.

🌟 For Listeners only - please remember that you are here to give support, if you are seeking support then please switch to your Member account.

🌟 Most of all - don't forget to be awesome! You are loved and accepted here, no matter what!

Guidelines For Using AI 


We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







Community Leaders
Community Mentor Leader
Community Mentor / Teen Community Star
Group Support Mentor / Teen Star
On Self-Care Break