Newly dxd with MS
I hate that I can no longer do the things I use to do. I was asked to run the sound system for a play my church is doing. I went for a few hours last night. I sat most of time but now I can't get out of bed today. I had to tell them I can't help them even though this is something I would have enjoyed doing.
@777Bre777 Hi, I can relate to what you are saying here. It sounds a lot like what I go thru. I hope that we can support you here.
@adventurousBranch3786
Thank you. I feel like I've finally got to a point where I'm able to do things for myself (e.g., I'm on disability so I don't have to work, my son is grown, etc) and now this... I REFUSE to let it stop me. I'd love to chat with you.
@777Bre777 Sound good to me. I can chat here or even sometimes in the disability room.
@adventurousBranch3786
I don't have access to the disability room yet, unfortunately. With school and home life I just haven't had time to do everything here lol
@777Bre777 No problem. That can take some time. (5 chats with 5 listeners, I believe). I remember that It took me a while to get the requirements.
Glad you understand. I wish that users could PM/DM each other on here. How are you feeling today?
@777Bre777 I was feeling wiped out but doing much better now. Ty.
@777Bre777
Hi i can relate to what you say, i have md. Hope we can connect soon
@777Bre777
Hey im here if you want to talk
Hey, I have MS too, how are things going for you now? It is difficult when you can't do what you used to, I'm struggling as I can no longer write or do art and finding that very depressing 😪
@IndigoOcean2024 Hi there, sorry for your diagnosis, I love my art and cannot imagine not being able to paint as I can now.
Have you read our interview with an MS sufferer here https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewDiariesGrabaCuppaandLearnaboutMultipleSclerosis_325500/Â
Thanks, I'll look into that soon. Yeah it is depressing, I feel like everything is being taken away from me