Share what life is like for you

@DonaldK

I follow strict, set routines to have some form of a daily life. Mostly go to work, hang around with my partner. Sit around in Disability Support way too much. Maybe play a little. And by the end of the day, I've no idea what's happened that day. That's pretty much it.

@DonaldK

What is daily life like for you?

Never ending. I need to get more out of life than I get right now. But, once again, I am a believer in delayed gratification. I don't have much longer left at keeping this pace up. Work consumes me right now. I do my best carve out some time for myself, but it's hard. When I can, I try to de-stress by using the techniques I've learned here. I've discovered if I can do this on a daily basis; my disability is a little easier to work with. Its all about balance and I try very hard to find that balance. I'm fortunate to be able to come into cups and answer as many questions as I can with what little time I have. Soon working shall pass and I'll be able to finally take a deep breath metaphorically and slow down. ❤️

Like is wonderful for me!

I’m seeing my children mature into pretty amazing people!!!

I thank God each day that they’re developing into wonderful people!

*Life❗️

_

@DonaldK, is your caretaker your spouse? 😕

A lot of unknowns in terms of what I can manage that day until that point.

A fair bit of resting and pacing. Sleeping can be irregular. I need a lot of sleep, sometimes that happens all in one go, sometimes it happens with naps. Sometimes with symptoms I need to pay attention and not sleep.

In a month, I usually have a fair number of medical appointments. so not daily, but still time consuming and fairly often.

I am still reducing indoor contacts as my household has not have covid and I have multiple risks.

I am not outside a lot right now, I'm out more with gardening although still need to watch things like air quality in the summer plus not get too much sun.

Daily living is adventurous for me-I do what I can, safely-I evaluate the risks, most times I get to celebrate small accomplishments

I’m learning how to appreciate small increments of of improvement, rather than risking injury from unthinkingly attempting to do things the way I did them Pre disability

I’m also learning when to ask for help

I’m developing patience too, also empathy for others…

I attend an adult day and health care program twice a week

I heard a fellow participant tell the two staff who were assisting her with toileting that she damns them to ***!!!

I’m grateful that I’m more humble and appreciative than that-I thought-

hmmm…

Would she hit the floor in the public restroom if her damnation occurred?

I’m also further developing empathy for those who need assistance-they may just be overly frustrated with the needs they have

they may have never been taught how to interact with others

they may be as abusive to themselves as they are to others

they may have learned how to be abusive by the abuse they’ve had….

I’m learning how to look at things differently because of the challenges I have now

I’m learning how to look for ways to sincerely let people who assist me that I appreciate the help

I’m also learning how to ask for help and not to panic when I feel like I may not get helped in time to avoid ________

and

to trust that God will help me through what I tried to avoid….

Daily Living has become a routine of trusting God and valuable people to help me do things…

I view myself as disabled, not handicapped

I’m disabled because I’m not able to bear any weight on my legs-I lack the abilities to stand and/or walk

but

I view handicapped as getting bogged down by what I’m not able to do

disability is seeking what I’m able to do instead of lamenting what I’m not able to-which is handicapping…

I’m not angry or bitter

I view my wheelchair as a way for me to maneuver through my life

I still get to see my children mature

I get to advance too!

@DonaldK, well I am in transition of moving areas right now so my life isn't consistent but on a normal day I get up and immediately have to drink 20 oz of water. Then I shower and get ready for the day. I walk my neighbors dog around lunch time to give myself something to do when I am not working and get some fresh air. Then I usually go to work and come back in the evening to come on here. Throughout the day it is hard though because I have to drink 2 gallons of water at minimum a day and take a zillion medications. It's exhausting sometimes.

@DonaldK. I do a lot of resting and pacing. I sometimes “crash” after doing activities even with pacing.

I have to drink several liters of water each day for one of my conditions.

@DonaldK daily living for me is lot of stuff but if is Monday I go to dd center ! Wake up early because always up early do not sleep good and foster people help me get changed brush teeth get medicine and get me breakfast then I go later to dd center is developmental disability center and person there helps me whole time there is different things doing there for own goals have and they help me with bathroom and eating and everything like that

then go home and just play and do anything fun want rest of time until have go bed and like to be outside swing and skateboard and go beach and surf have fun things inside to Thomas mini trains and sensory toys and squishmallows and play games on iPad

just need lot of help with every thing and sometimes make me really upset because wish can do my own and soon will have person come to house help me in day and night time so when I get go back home to my family will have helper there when every one busy but this is mostly days is just sometimes go appointments or just stay home not go to dd center