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Epilepsy Awareness Day Masterpost (26th March, 2022)

MyNameIsNicole March 26th, 2022

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Welcome everyone! Today we celebrate and bring awareness for Epilepsy Awareness Day! Many of us have heard the word epilepsy, but who knows what it actually means?

Epilepsy is a neurological disorder in which brain activity becomes abnormal (imbalanced) causing seizures or periods of unusual behavior, sensations and sometimes loss of awareness. In order to be diagnosed with epilepsy one must have at least two seizures without a known trigger that happens at least 24 hours apart.

Diagnosis can be done through a neurological exam, blood tests, MRIs, CT scans, lumbar puncture, and electroencephalogram (measure’s brain’s electrical activity).


There are three main categories of seizures: generalized onset, focal onset, and unknown onset. Let's take a look at what each means:

  • Generalized Onset seizures: These are seizures that affect both sides of the brain or group of cells are affected at the same time. An example of this is a tonic-clonic, also known as grand mal seizure. This is the one most people know as the person usually has violent muscle contractions and loss of consciousness. Absence and atonic seizures are also forms of generalized onset seizures.
  • Focal Onset seizures: These are broken into two subcategories - aware and impaired seizures. Focal onset aware seizures occur when a person is awake and aware that they are having a seizure (used to be called simple partial seizure). Focal onset impaired awareness is when a person is confused or their awareness state is affected during a focal seizure (used to be called complex partial seizure).
  • Unknown Onset seizures are diagnosed when the beginning of a seizure is unknown. It can be unknown if the trigger cannot be identified or if it’s not witnessed by anyone (i.e. seizures happen at night or in a person who lives alone). It is only later on as more information is learned is it possible to be diagnosed as a focal or generalized seizure.

  • Epilepsy can be caused by many different things such as genetics, head trauma, brain damage, stroke, and tumors. People have a higher risk of having epilepsy if they are a child or an older adult, family history of epilepsy, head injuries, drug/alcohol use, vascular diseases, dementia, and brain infections.

Some common signs of a seizure are staring, jerking movements, stiffening of body, loss of consciousness, breathing difficulties, loss of bowel/bladder control, appearing confused or unaware, rapid eye blinking, and falling.

To learn more about Epilepsy as we spread awareness today, visit https://www.epilepsy.com/ or click Here.

References

https://www.mayoclinic.org/diseases-conditions/epilepsy/symptoms-causes/syc-20350093

https://www.epilepsy.com/learn/types-seizures

https://www.hopkinsmedicine.org/health/conditions-and-diseases/epilepsy/evaluation-of-a-firsttime-seizure

This is the masterpost for the event, and the links to the posts will be added once made!

Posts



Icebreaker: Do you have or know someone who has epilepsy?


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Many thanks to @wonderfulrainbow817 for drafting this, you're such a blessing to our community❤️







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rommebai000 March 27th, 2022

Thank you for this post as being someone with epilepsy it means allot to me. Seizures are not fun and it is great to know that someone cares. :)

1 reply
MyNameIsNicole OP March 27th, 2022

@rommebai000

we care, we see you and we know it's not easy. We're here for you💜

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audienta March 27th, 2022

@MyNameIsNicole

Hey Nicole

Thank you for this very interesting post!

I actually do know someone with epilepsy and have seizures myself.

One questions: Are non-epileptic seizures (NES/PNES/FS/FND - there are a lot of names) part of this week as well?

4 replies
MyNameIsNicole OP March 28th, 2022

@audienta

First of all, thank you for bringing up the knowledge that there are other seizures not related to epilepsy. I appreciate that.

This week is for epilepsy Awareness though, so we're talking all things epilepsy. There might be a post on seizures and non-epileptic sezires though, but the main focus is on Epilepsy ❤️

3 replies
audienta March 28th, 2022

@MyNameIsNicole

Actually, there is more and more evidence that it is very related. I found a really interesting publication here: https://www.researchgate.net/publication/347841257_Psyche_Soma_and_Seizures The text is pretty long, but the main essence is that there isn't much difference found between epileptic seizures that are not caused by a somatic change, like a tumor, and non-epileptic seizures. Both come from a charge that builds up over time and then releases in a seizure.

But of course, it's not the same diagnosis, I totally understand that. ❤️

2 replies
MyNameIsNicole OP March 29th, 2022

@audienta

this is very interesting, it would be so nice to spread awareness about this in a post.

thank you for letting me know!

1 reply
audienta March 29th, 2022

@MyNameIsNicole

I'd be open to write one, feel free to pm me 😉

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pandaprincess9 March 28th, 2022

@MyNameIsNicole

happy late epilepsy awareness day! i'm epileptic, thank you for posting this!!

1 reply
MyNameIsNicole OP March 28th, 2022

@pandaprincess9

Of course, thanks for interacting!

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