Abelism
So I have Postural Orthostatic Tachycardia Syndrome (POTS) and Hypermobile Ehlers-Danlos Syndrome (hEDS). But my mother still denies the fact that medical professionals and genetic testing have confirmed this. She even backs up my grandfather when he tells me to just do something, I end up passing out, and then he says it's my fault. My father does the exact same thing. And both my parents also think that my mental health disorders are fake despite being diagnosed by multiple medical professionals.
Even people who don't know me seem to do stuff like this! I don't use mobility aids as my mother will not allow them, and I'm pretty able to do stuff, but when I'm not people are super rude about it. I am going to need to use a wheelchair during our school trip to Disney World over spring break as I am unable to walk the distance that is needed or stand for the amount of time required.
I'm just getting so sick of the constant ableism, whether people realize they're doing it or not. I'm in pain and dizzy all of the time, so adding more layers on top of that is just getting to be too much. I have to quit my sport after this season because my body can't take it. Our body only 14! But yet our body is falling apart and everyone around me keeps denying it despite what all the medical professionals say.
Is there anyway I can get it to affect me less? Or a way to get it to stop?
Thanks in advance,
Charli*
*see profile - we are a system
@panickedgymnast
No one believes a person to be blind unless he hits a pole or carries a stick , so basically have you tried to do emotional bla.ckmail to your parents to get that wheelchair ?
@Skansly No, I could never emotionally blackmail anyone. I'm guessing though that once I quit gymnastics my health will deteriorate faster and the doctors will recommend one, at which point my parents will be forced to get one.
@panickedgymnast , i hope if you are ok with that , then good
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@panickedgymnast. I can relate to what you are saying here. It’s very difficult to have conditions that people have trouble accepting and understanding. I’m trying talking about it with other people who will understand to see if it will affect me less.
@adventurousBranch3786
The problem is that my medical conditions are so rare that people don't understand them. So far I've found one person total that understands, and I barely have contact with her.
@panickedgymnast. F book has groups. I’m in a couple for my illnesses. Maybe they would have some groups with people with POTS and hEDS. Also the trauma forum here has some nice people with DID who post there.
@SystemOfWolves Sometimes it is hard for parents or grandparents to accept certain things especially if it is something to do with genetics. Parents can be scared and I am condoning what they say is right I am just looking at it in a different way. Something you could do to lessen it is journaling or having conversations at a minimum. You are amazing and so strong for opening up about this. You got this