What is POTS Like?
What Is Postural Orthostatic Tachycardia Syndrome?
Postural orthostatic tachycardia syndrome (POTS) is a disorder in which most of your blood stays in your lower body when you stand up, and in response, your heart rate jumps.
Your blood usually flows at a steady rate whether you're sitting, standing, lying down, or hanging upside-down from a tree branch in the backyard. But if that rate changes when you change positions, that's a condition called orthostatic intolerance. It's the most common symptom of POTS. It can make you feel dizzy, lightheaded, or faint.
For those of you that have it, or know people who do, what is it like? Not just the clinical description, but what does your day-to-day life look like? How does it feel? How does it affect you? Thank you in advance <3
@jesusredeemedme2425 Did you see this interview? https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewLivingwithhEDSandPOTS_336838/
I did not! Thank you <3
@jesusredeemedme2425 I have also linked your post there and added it to our library.
and there is another post here https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/PoTSandMeAnInterviewwithwonderfulRainbow817_278731/
@MistyMagic
Thank you so much <3
@jesusredeemedme2425 You are most welcome, you are not alone, we are all here together!
I have POTS and has a service dog for it. I can help
@Failuretheo13
Out of curiosity do you have any good explanation of what it takes to qualify for a service dog and how to get one, as well as thing like average monthly cost you'd say to take care of one. I doubt I'd be able to get one but a service dog is something that's been on my mind to try and help me in my day to day life.
@jesusredeemedme2425
I have pots but was only recently diagnosed, however over the past month or so I've thought back and realized just how much its affected me in ways I didn't even realize.
For years I've had trouble standing for long periods of time without pain or lightheadedness, I'd passed out multiple times and never looked into it, and even just the simple day to day things I never thought were anything like chronic fatigue and pain.
I'm still having a hard time navigating life with this and finding ways to cope
A lot of my symptoms have led me to feel incapable of doing certain things I enjoy which has been really hard on me, however through reaching out to friends, family, and staff for the activities I do I'm slowly finding better ways to make things work so I can find a better balance between my mental and physical health.