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I have to sit because i am sick

CheerySandi May 31st

I sit in my electric wheelchair. But i am not sick because i always sit, but i alwaysy sit and move around sitting, in my electric wheelchair, because i am sick. I have to sit and rest. Doctor prescribed me resting and electric wheelchair when i was still a child. For me it is better to sit and rest than to injure myself. I have to let my caregiver do the needed chores where physical strength is needed. I am very thankful for doctors, electric wheelchair, caregiver and everything else. I don't have strength and elasticity in muscles. I can type on computer, but i can't for example, transfer myself from bed to wheelchair as i can fall and get severe injuries. It is why i need caregiver to do help me with transferring from bed to wheelchair.

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Tinywhisper11 June 2nd

@CheerySandi 😞 sorry sweetie. I'm in the same sort of situation, I can't move from wheelchair to bed I need to be carriedđŸ˜„ it's not easy

2 replies
CheerySandi OP June 3rd

@Tinywhisper11

sorry to hear it. I understand you very well. Thank you for your response.

CheerySandi OP June 3rd

@Tinywhisper11

i try to see my need for help through positive lens. I see myself as a person with special body which needs special care and i feel proud and positive of it. It also seem that others see me in positive lens too because of it. Positivity is contagious.


When my caregiver lifts me into a sitting position in my nursing bed, assists with dressing and attending to my needs, and then transfers me from the bed to my comfortable electric wheelchair, I feel like a king. I also feel great when my caregiver cooks and prepares meals according to my instructions, and when she cleans around the apartment while I watch, I'm happy to have her.

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@CheerySandi. I have been prescribed to sit. My legs work but my body does not make enough energy to use them very much(chronic fatigue syndrome and dysautomia).I can walk for 2 or 3 minutes but after that I crash and get so weak that I can’t do anything at all,get pains all over my body ,dizziness and vertigo(the house seems to spin).  

1 reply
Tinywhisper11 June 3rd

@adventurousBranch3786 😞 poor branch. Gives you a giant tiny hug ❀

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@CheerySandi.  @Tinywhisper11. I admire you both for talking about your disability. I have been shamed a lot for mine and don’t talk about it often. I’m trying to be brave today but it’s hard.

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@adventurousBranch3786

It is unsettling for me to think about the kind of people who amuse themselves by shaming and belittling others and goodness, no, we don't need that kind of negativity in our lives. Hurts really, to think you've been made to feel so hesitant about sharing your experiences, disabilities and health conditions, in general. :( 

It's hard enough to keep at it ourselves, we don't need no-body else making it harder for us. If only people could be a little more considerate. (': 


You too deserve to speak about and recieve support in a non-judgemental space, Branch.

I know it's incredibly hard but you did so well by being brave here today, and I'm so so proud of you. 

Here's hoping you feel more comfortable in sharing more, of course at your pace and around safer-spaces. 

All the love and strength your way.🧡

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@Sunisshiningandsoareyou. Thanks for your support. I think a lot of times people say these type of things without any bad intentions but it can still be hurtful.

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Tinywhisper11 June 3rd

@adventurousBranch3786 oh really 😞 that's terribleđŸ˜„ silent illnesses often get looked over, and people just don't think before they say sometimes. I'm so sorry sweetie. I know a couple of people who have silent illnesses, and who haven't even been taken seriously by a doctor, it's very sad. But sweetie you can talk about it here on cups, you can be yourself, you have many people who love you here. I'm one of those, I love you ❀gives you a giant tiny hug ❀squeezes you softly. 

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MistyMagic June 3rd

@CheerySandi I can sympathise with you, the feeling of being solely dependent can be quite emotional. Caregivers do such a marvelous job, mostly with kindness and compassion too.  

 

Listening - One Step At A Time!

1 reply
CheerySandi OP June 3rd

@MistyMagic

yes, it is very true. And being dependent on others can be draining sometimes. The most draining moment is when something happens and caregiver can't come in time. For example, if caregiver is sick and there is no one to substitute them.

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LabeledBPD June 29th

@CheerySandi

a things that gets me is , are you sick or is that just you are not matching up to the the stereotypical expectations? Regardless of reason why social expectations not met does that always conclusively define you as not well?


it bugs me that some exceptions to the norm are forced as normal, whilst a exception to the normal who’s coping, relative to disabilities is not normal you are unwell!

NO!

screw all that use the unavoidable, imaginable problems faced as a get out, compounding a MH problem that would otherwise not exist!


if someone broke their arm, you’d not be labelled as having a MH diagnosis of severity because  of temporarily struggling? 

Subjective, and even objective diagnosis,,, does it help at all?