@DragonsRKool
Hi Dragons,
I hope your September improves and I want to offer some supportive words as we manage our disabilities together, OK? 😊
Your sadness makes sense. Your exhaustion makes sense. Especially because of how difficult coordinating care between different doctors is. I'd love to find some way to help you with that! That's also something I'm learning.
Example, just today I emailed my old physical therapist for a referral to a location closer to home. She told me that I'd need my new primary care to give that referral... And that was after the location closer to home said I didn't, just to talk to the old PT!! It's seriously crazymaking how healthcare runs us around like this. I don't know if you're in the US too but extra support if so. 💕
What's something that you can do before and/or after of your weekly appointments to save the day? Make it your own? Some act of self-care or a hobby that would return your sense of control.
Also, I want to tell you that you deserve this care. You are worth it. Yes, it's annoying. It's hard. You want to do anything else sometimes. But even still, you are a human being deserving of being cared for. If, for you and I, that means more doctors or more appointments --Â regardless of standards and expectations others and culture puts on us -- that is OKAY. We don't have to earn healthcare, no matter "how much" we use. Your life is worth protecting.