What's your disability?
I have a learning disability.
What is the most difficult part of your disability?
For me its being slow when my brain sometimes either moves toooo fast or not fast enough and I have to take longer on stuff.
I have Menieres Disease in both ears. Menieres causes fullness feeling in the ears, ringinig in th ears, vertigo attacks (severe dizziness and balance problems) and hearing loss (starts out temporary but eventually becomes permanent). Attacks are completely random and can last anywhere from 20 minutes to about 24 hours. They can occur as often as once a day or as little as once a year. When I first started having symptoms, I was getting 12 hour attacks 3-4 times a week. My balance was so bad I needed a cane. I started having symptoms at 21. I was diagnosed at 23. I'm 26 now and, with treatment. I get maybe a 2 hour attack every 3 months or so. And I can walk and navigate stairs fine. I do need hearing aids still, but I don't need ear molds like I used to. So, I still have it, but I'm doing much better with treatment.
@ObsessedStitch That is excellent to hear that you're doing better. I'll keep you in my prayers. Those attacks must've been extremely scary. I have Benign Positional Vertigo and it has given me severe vertigo a few times. It's nasty. But I have never gone through anything like what you have gone through. Keep hanging in there. :)
@MindsaMess Thank you. Have you had the Epley Maneuver done? It's supposed to work wonders for BPPV. Most ENT's know how to do it. You basically lay back quickly while the doctor quickly turns your head. I heard it helps within seconds. Unfortunately, it makes Meniere's worse (lol).
autism
ptsd
anixety
i have issues sleeping
@dhabib... what are your sleep issues?
My sleep issues are excessive sweating nightmares and physical pain and constantly urinating going to the bathroom 3-5 times thanks for writing me I need to talk to you my sleep gets a mess I have my nightmares I have had complicated realtonships I have been abused @MindsaMess
@dhabib I have a lot of those issues, too. I
never be mean to someone who has it and make fun of them i had that happen to me i was also verbally abused as well
that hurts
I don't have a disability technically.
I have sensory processing disorder, scoliosis, somehow strong pain in left foot (duck angled feet) and hearing loss.
I have a learning disability that makes it hard for me to read and understand what I'm reading.
@Acatlover i am born with cleft lip and cleft palate. That means my lip and the inside of my mouth are not fully closed. And it makes it difficult to read and speak.
I have ADHD-PI (with a heavy dose of the emotional dysregulation that comes with it), fibromyalgia and chronic headaches.
I am not disabled. I a, specially abled. Just have few minor problems. Like cerebral palsy,cerebral ataxia, dysarthria and spastic bladder but that doesn't make disabled. Does it.? NO, it's just that I am living a life with few hindrances. I AM PROUD OF MYSELF
I have Ehlers-Danlos Syndrome, PCOS, Mast Cell Activation Disorder, Fibromyalgia, CPTSD, Panic Disorder, Seasonal Depression and Generalized Anxiety Disorder with the suspicion of POTS, Dysotonomia and Endometriosis.
I have been disabled by these disorders for over 5 years now and I wouldn't change a thing. It has given me such a different perspective on life. I would love to educate anyone who doesn't know about any one of my disabilities and start a discussion with them.
@KileyReagan I have Ehlers Danlos Syndrome too! I also have POTS, (thinking medical PTSD) and many oothers. Nice to see a fellow Zebra
I have an autoimmunity disease, blind in my left eye. Got floaters in my right eye. Have severe headaches almost constantly.
@Sombra... that's awful. Is there any medical help out there for you? Have you been to a number of different doctors? How are you coping?
@MindsaMess Yeah, I've got a number of medicines I take and etc. Thing is, they actually can't identify precisely what's the cause of my illness, so It's difficult. I'm currently taking injections that should be helping me, I've got some really good specialists. I'm coping, not too great. I'm feeling very lonely. I don't see anyone, I'm not allowed to leave my house because if I catch a cold, it's 100x worse than a regular person since my immune system is weak currently. I don't see anyone my age too. I'm homeschooled. Not in a relationship.
It's difficult, keep on going though. Thanks for the interest.
@Sombra... the thing is that you keep on going. Though you don't leave your house as you mentioned, and you don't have a mate, have you considered that your life purpose may be right there on that couch you are sitting on? That the thing you're supposed to be doing may be done from right where you're sitting? I wonder... have you ever considered mentoring others who have a similar disability, or forming a support group perhaps, for others who also suffer as you do? How about a blog? Just curious. At my deepest depression, that is what I did. The support group that I started grew to over 600 people and I still visit it weekly. It's for people who have been victims of cults.
Perhaps you could consider creating a brand new goal that can be done successfully from right where you're sitting? Just keep hanging in there. Your purpose is there. It just takes time to clear the cobwebs and it is going to come to the front of your mind clear as day. You wait and see.
@MindsaMess Thanks for your experience and support, if in fact I don't lose my vision. I might do that. Got an operation soon, I'll keep you posted on how that goes.
Thanks.
@LuciIIe... Hang in there. Have faith. You'll be in my prayers.
I have something called Delayed Sleep Phase Syndrome/Disorder. Also known as DSPS or DSPD. It means I go to bed anywhere between 5am-8am and sleep normally the way you do, except, my hours are different than yours. Most people with DSPS have been humiliated their entire lives by people not "believing" us when we can't get to bed early. It's a Circadian Rhythm Disorder where our minds become active at night, and our body temperature even changes at a different time than yours. My entire adult life, my family didn't "accept" that it was something I couldn't help, because I didn't know it had a name. When they'd want to have a holiday at 2pm, I'd show up sleep deprived, depressed, and sickly. Sleep deprivation made me feel physically nauseated, lightheaded, dizzy, weak, and unbalanced when I walked. I'd tell people how I felt and they began to talk about me as if I was crazy, and I had no support. I became the sad case. I knew they all looked down on me and I stopped wanting to go to functions out of humiliation. I became a hermit and worked strictly from home, lied to people and told them I had appointments when they requested I meet them somewhere early, because I was too embarrassed to admit I'd be sleeping. I have accepted it finally now that I know it is genetic, and not psychological, but still suffer severe anxiety, health anxiety, phobias, control-issues, etc. I'll be starting a support group to help others.
@MindsaMess. I am sorry that you have people who aren't understanding, it is very hard, I have a family of "perfect " people so, I can get that, glad you are strong! That is a great idea to have a support group, so others can get support too!
@jr50... thanks so much for the kind words. It's definitely a learning process to get through any disability, large or small. Finding like-minded folks definitely is beneficial in building strength through it. Thank you again.
