What's your disability?
I have a learning disability.
What is the most difficult part of your disability?
For me its being slow when my brain sometimes either moves toooo fast or not fast enough and I have to take longer on stuff.
ADHD
Dyscalculia- its a learning disorder with math. Some cal it the dyslexia of math
I have high functioning autism. I find it hard to understand jokes and irony, I get tired very easily, I don't show much body language or facial expressions. I feel awkward in social situations but I'm slowly making progress. I'm trying to understand myself better. It will take time, but I'm trying
I also have ADD, chronic pain and Restless Legs syndrome
@willingScarf9994
Hi, I have Autism too and feel a lot of what you feel too. Autism can be a very lonely condition, just wanted you to know your not alone.
@Gamer87
Thank you for your comment! Yes, having autism can make us feel very lonely sometimes, but remember that you aren't alone, there is people that cares about you :)
@willingScarf9994 Hey. If you need listener feel free to text me.
@willingScarf9994 I have autisim, too, and most people think its not a big deal because I am verbal. When I first told some people at school they didnt believe me because they thought that all autistic people were non verbal and mentally challenged. And the school staff went about it all wrong. They wouldnt let me be in honours classes (even though i get all As and Bs) because I have an IEP (basically a resource room because Im autistic). They wouldnt even alow me to take the testing for it. I agree that social situations are very difficult, and I often say things that I later regret because it was off topic or weird. I hate being in public because theres a lot of noise and my family thinks that my sensory issues are all in my head. I think as long as we stick together, well be okay.
I have had a back injury for over 6 years waiting for sugary now .
this journey for sugary now has been so long and still waiting but i honestly cant wait to get my life back in 28 and have missed out on so much because of it .
@Peter1447 6 years? D: is it because of money issues that you can't afford it? or is the waitlist just really long?
@ReclusiveReptile work cover and needing to try other things before surgery
@Peter1447 ah. I see..
Well, I wish you the best on your recovery journey.
I have pcos endomitiriosis autism authorities arrythmia and dyslexia I have to use a walking stick I have coper rings so my fingers don't spazm and we'll yeh
I just really appreciate all of you sharing <3333
Hi my name is Charlie and I have undiagnosed tourettes. Tourettes definition 👉 ( tourettes is a nervous system disorder involving repetitive Movements or unwanted sounds)👈 its really embarrassing when people stare while I tic and I wish they'd go away. Most people think I'm trying to gain attention but I promise you I'm not. When I tic and I know others are staring my anxiety is through the roof. My therapist Is working on getting me diagnosed but I'm still really embarrassed by my tics. Can someone give me advice
I have autism and due to the fun problems it comes with I also have have Major depressive disorder, anxiety disorder and PTSD.
@Aishaaa22
i hear you on that one. I have Autism too and get many of the same coexisting conditions like you do. Here if you need me.
@Aishaaa22 I have autism, too, and I also have depression, OCD, PTSD, and anxiety.
I have Ehlers Danlos Syndrome, Gastroparesis, Postural Orthostatic Tachycardia Syndrome, Craniocervical Instability, Gastro-esophagal Reflux Disorder, Raynauds, Chairi Malformation, General Anxiety Disorders and possibly PTSD... Yeah, and I'm pretty sure I have forgotten a few.
I have a congenital (I was born that way) cyst (empty hollow full of fluid) at my brain stem. This is where the optic nerves connect, so my vision is not what it might be. It is also where temperature regulation takes place, so when it gets hot my brain stops working right and if I get chilled suddenly I stop breathing, also inconvenient, as stepping under a cool shower on a hot day can trigger diaghphram paralysis. It is right on the pituitary gland, so my hormones of all types are weird and unstable, and that's not just the usual sex hormones, but also stuff like vassopressin which regulates your need to pee. But mainly it causes me migraines, lots and lots of migraines. In summer I do a daily migraine, which makes holding down a job and keeping a home going a trifle challenging.
On the good side I have a family that is not demanding, and am currently making ends meet working part time, and I have developed killer coping skills.
@Dondy154 Dang, that's a heck of a lot of pain and trouble to deal with. You must be really strong to be keeping good attitudes with all that going on. Do you have to take many medications to help handle the hormone and cyst stuff?
@ReclusiveReptile I don't think I am strong - I think I am lucky to be resilient so that when I am not having a migraine I tend to just feel cheerful and grateful - I spend a lot of my life elated because the pain went away - Yaye! And I have no idea why I can shake it off, but I am so grateful that I am that way. It's not like it takes mental discipline except during the bad times when the migraines are daily in the summer. There isn't too much in the line of medicine I can take for it. I'm not allowed taking hormones as being a migraineur puts you at risk for stroke and taking hormones increases that. I just have a triptan, and that helps ENORMOUSLY. Otherwise I spend my time doing things like zig-zagging from one patch of shade to the next when I am outside, or sticking my head under a tap to soak it. There are things I can't do - like work or attend school in rooms that have windows that let the sun in. So I have to check out the conditions when i start new things and if I can't do it, I can't and just drop the course, or explain the job is a bad fit.
@Dondy154 wow, that seems really tricky to navegate through. I've never had to think about what it'd be like to constantly avoid the sun or other migraine triggers like that. I can definitely see how that'd make daytime classes difficult, and only some schools offer night classes... Or do night hours work either? I know i get headaches sometimes when there's bright lights at night that seem brighter by comparison to the darkness, like when driving at night with the headlights that can feel excruciating, and i don't have chronic migraines so i can't even imagine what that'd be like
But I can say that i totally understand that feeling of appreciation when pain leaves. When my adenomeiosis (it causes really severe period pain) was really bad it'd feel like i couldn't focus on anything at all and I'd be on the verge of tears every month, and then it goes away until the next month and i realize that, wow, this is what not being pain feels like! It always left me feeling somewhat glad that i could have those times without pain because i know some people never get a break from their pain.
@ReclusiveReptile That sounds so hard for you. Every twenty-eight days and then wham, down you go again. I'm sorry that happens. I hope you have been finding some ways to make it less bad.
@Spanster My oh my that's a lot! I had to look up some of those terms just to know what they are. It must all make life pretty difficultat times. *hugs*
How are you feeling? If you want to talk about any of them more on here you can.
Let's see: PTSD, Major Recurring Depression, severe anxiety, glaucoma, copd, asthma, and around 32 years of chronic migraines, which became chronic DAILY migraines something like 20 years ago. It was the migraines that caused the suicide attempt resulting in two cardiac arrests. On the bright side, the PTSD has finally been properly diagnosed, and is being treated as such, and I have finally stopped taking the truly enormous quantities of opioids I have been on my entire adult life.
I have ptsd anixety insomnia depression fibromyalgia stomach acid reflux and loss excessive sweating rapid heart beat trouble sleeping @IOnlyLookMean415
Stomach issues going on 5 years now with know doctor being about to figure out what's going on been to 5 doctors and even the Cleveland clinic with no answers
@Link182 I hate it when there's mysterious causes for things. I still can't get answers for what's the cause of my bed wetting, even now at 20 after asking every doctor I've ever spoken to.
I also never did find out why my body sometimes just rejects food and i feel like vomiting after 2 bites of food for days on end. I've lost several pounds in a week like that and doctors had no clue why.
It can be really frustrating not knowing, but try to hang in there :(
@ReclusiveReptile It's awkard when you can't explain to people what's wrong. They don't know how to respond and be supportive. There isn't a script for it. Even doctors can end up not knowing what to say to you, and that can really feel like people don't want to help. Bedwetting is hard - and you never hear about teenagers or adults with that kind of problem so I think it would be really isolating. I did once read that some decades ago new eighteen-year-old recruits in the German army had astonishingly high rates of bedwetting - something like ten percent. So I know there must be other adults like you but finding people who take it in stride and know how to be helpful can't be simple. Do they give you any drugs for this? - they don't give me vassopressin because I can just wake up and go pee, but I get up about once every two hours. The digestive issues sound even harder to cope with. Weight loss like that is scary!
