One word to describe how I feel today is....
One word to describe how I feel today is....
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dissapointed
@blissedNblessed, I'm so sorry that you were disappointed.
Tired
jittery...perhaps anxious
Hahahaha, it's me again posting i guess.
" Pain " ( physical)
@blissedNblessed I'm sorry you're hurting. Its really hard when we hurt physically. Does anything help?
@mytwistedsoul
It is nerve pain - really bad. I have meds for it, but they just dulls some of it, but not the intense pain. I do try to use cold packs , not bc it takes painaway - but i can focus on the sensation of the cold instead. I also try to meditate through the real bad pain. Its really hard to be able to sleep bc of it. here i am again, almost 3 am and i cant sleep.
@blissedNblessed Oh man :( it sounds really hard to deal with. And that it affects your sleep - that makes it a hundred times worse. Plus the pain makes you hold yourself tense which just adds to it more. I'm glad the ice packs help - I wish it helped better though. Does soaking in a tub help any? Or Idk - do distractions help? Probably not :(
@mytwistedsoul
yes, ice cold baths help!
it took me a while to be able to sit in a cold water bath and not freeze and jump out, lol!
but now i have it down and literally sit in a cold bath for hours.
Hey, thats a really great point you made about how pain makes our body tense, which makes it worse!
I am going to try to conciously relax my mind and bosy when the pain is really bad to see if that helps!
thank you so much for that idea! <3
luckily today is a much better day for my pain...so far ( gets worse at night). so i am trying to be super productive and get a lot of thigs done while i can!
How are you btw?
You are so kind to reply to me and be so supportive.
Whats going o nwith you?
I would love to be able to support you too!
Hahahha, sorry the pic was too big for the post!
it was a pic of flowers and it said: " thank you for being kind".
@blissedNblessed- mytwistedsoul is a very caring member. Hope your day is going better- had to chuckle about taking ice cold baths as a distraction from the pain. What a creative way to focus on sensations other than neuropathic pain. My husband goes into the 55 degree water once a month to remind himself how good it is to be alive. I gave it up years ago- perhaps should take it up again. Cold water really does something to our bodies. Take care.
@blissedNblessed You're welcome :) Thank You too! Your picture made me laugh!
Pain allways seems to get worse at night. I have no idea why. I have trouble with it too - in my bones and joints. This morning it was really bad - anxiety adds to it and I know I hold myself tense. I had a listener here suggest progressive muscle relaxation and I had to do it a few times before I noticed any difference but it did help!
Whew! I got a shiver just imagining sinking into ice cold water! Sometimes I use a visualization thing and blow up balloons to release the pain. Sometimes it even helps me fall asleep while doing it - which is an added bonus :) Maybe you could rest during the day alittle when the pain isn't as bad. Like a power nap?
Tbh - I'm not sure how I am right now. I feel kind of ok but yet - not. I tend to isolate alot and I'm resisting that urge. You helped with that :)
I hope tonight the pain stays at a minimum for you and you're able to get some rest :)
Idiotic
@Laura
Mentally disturbed and depressed.
afraid
tired (again)
productive
Autistic
