So time-blindness can also be known as dyschronometria.
My garbage day is Friday morning. I know I need to prepare trash thursday night and move things to my designated pick up spot. And even though I know all this it is really common for me to realize it is friday morning - when I hear the truck go by :( or at 2 AM on friday morning when I wake up and realize I forgot. Or think I need to prep on thursday and get the days scrambled, or realize in the morning then go out and only recognize that today was thursday night when I arrive home exhausted.
Appointments are awful as well - I have an appointment on the 24th and I had to seperately memorize both that it is Wednesday and that it is this week and keep being aware of it approaching and its still horribly stressful.
And while concentrating on that I have to not mess up paying my bills on time and other stuff.
Time blindness makes being on time a huge effort, it makes keeping track of dates times, how long a task lasts, people's birthdays, days of the week and more very hard.
My brain is task oriented it is just not meant to function via time and dates and it takes a lot of energy to manage anything based on time.
its a disability, plain and simple. Yes you can mitigate it - to some degree- through trying harder and using tools and strategies but it IS a huge effort and saying this isn't a disability is not fair.
I will make a comparison - there are people who can walk but for whom it is a lot of effort - they might have visible things such as cruches, walkers, braces, perhaps even a wheelchair. Maybe they can walk 50 feet but they are exhausted at 100. Not acknowledging that this is a real disability is like telling that person that they are not allowed to have any help walking just because they can walk a bit with nothing - if they try really really hard and exhaust themselves
On a given day I might be ontime for one appointment - but fail to get dishes clean for third day in a row, have something fall and break and have to just leave because they won't believe why I'm late since I'm always struggling with time - so my rug gets ruined rather then it being okay for me to clean it - but better then losing a job again, fail to eat anything because no time, have to skip brushing my teeth and a shower, forget to pay a bill, miss a doctor appointment - but I made it to work on time that day.
Getting to a job or appointment isn't as simple as setting an alarm, people always say that- its about listening to *multiple* alarms for at least an hour and a half prior to departure which actually causes anxiety - to make sure I do all things I need to before leaving - or otherwise time just vanishes on me - each alarm has me seeing how much time is left and evaluating what I still need to do.
Then there is another alarm to tell me I am entering the "triage zone" - or if I actually get done early to make sure turning off the constant alarm still means there is a back up alarm for time to go.
The triage alarm is whem I have to leave in just a few minutes. Generally I set it about 20 minutes before departure and then when it goes off again 10 minutes later I am hopefully real close to leaving. And the second time it goes off - hopefully I am *in* my car.
So lets say I got dishes going, put up a load of laundry, cleaned a litter box, put all the stuff I needed in the car - but somehow didn't get dressed, didn't feed my animals, or need to find my purse.
The list is then shortened to nothing except fed animals, clothing and shoes on my body, purse/phone and anything else I must have with me, and things like is my stove turned off - thats it. Obviously it would be nice to have combed hair and brushed teeth but I keep a brush and mints in the car for a reason.
Does that make sense @sketch84 ?