Rhupus!!!! Why me????

I recently got diagnosed with rhupus, previously I was a juvenile rhuematoid arthritis case otherwise. It's pretty rare, in the whole rheumatology department, I found no one. I'm rather the first case in the hospital I go to, so from knowing how I have rheumatoid arthritis to now knowing I also have lupus is pretty devastating for me. It is still so hard to digest.

What sucks most is no one in my family is able to digest it. Instead they are now gaslighting me that I am totally normal. I'm sadly becoming disabled thus can't do much, but sadly no one supports me, fearing they would be need to do stuff for me. Unless I pass out to be woken up in the emergency ward, no one really is with me. How to accept my decorating health when no one around me is supporting me and mostly calling me out as a big failure as if I wanted to have any of this suffering to even begin with.