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cosmicsummer9323
3 1,902 M Hopeful Heart 1
PathStep 10 Compassion hearts332 Forum posts5 Forum upvotes12 Current upvotes12 Age GroupAdult Last activeNovember, 2024 Member sinceNovember 4, 2024
Bio

Suffer from chronic illness rhupus(rheumatoid arthritis with lupus) leading to disability. Please tell me I can't be the only one!!!To add up got tinnitus as well.

Got PTSD, from childhood trauma. Which now is a chronic trauma...with anxiety added up.

But lol a crazy cat lady who prefers to read stuff in trying to run away from my reality.

Recent forum posts
Living with chronic illness
Disability Support / by cosmicsummer9323
Last post
 1 day ago
...See more It's weird I'm not finding anything about such an important issue which sadly is impacting so many of us. I bet I can't be the only one here whose whole life has been simply turned upside down merely because I've a chronic illness which sadly is progressing towards being more painful, and making everything far more hard or simply something I just can't do.
Rhupus!!!! Why me????
Disability Support / by cosmicsummer9323
Last post
 November 15th
...See more I recently got diagnosed with rhupus, previously I was a juvenile rhuematoid arthritis case otherwise. It's pretty rare, in the whole rheumatology department, I found no one. I'm rather the first case in the hospital I go to, so from knowing how I have rheumatoid arthritis to now knowing I also have lupus is pretty devastating for me. It is still so hard to digest. What sucks most is no one in my family is able to digest it. Instead they are now gaslighting me that I am totally normal. I'm sadly becoming disabled thus can't do much, but sadly no one supports me, fearing they would be need to do stuff for me. Unless I pass out to be woken up in the emergency ward, no one really is with me. How to accept my decorating health when no one around me is supporting me and mostly calling me out as a big failure as if I wanted to have any of this suffering to even begin with.
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