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Caregiving ups and downs

User Profile: CDanielle
CDanielle December 11th

Hi there! I take care of my blind father with dementia and my wheelchair bound mother, all by myself. They can do a lot for themselves still, amazingly, yet needless to say Im stressed. I need my own job too, but no time. They take care of my needs for now. I have pretty severe anxiety so its not like Im one of those lucky people who are energizer bunnies with a gusto for life, though I do love my life. I am trying and it is my kitties, my fur babies, that keep me going when it gets hard. I so much wish to find others who are in or have been in, similar situations. Thank you for listening. :-)

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User Profile: Tinywhisper11
Tinywhisper11 December 12th

@CDanielle I'd just like to personally thankyou from the bottom of my heart ❤ what you do, all the hardships you face, you are just amazing to keep going ❤ trigger warning, disabilities.... My spine is broken and not completely fixable, I lost my legs and some fingers, I live in a care home now, and I know how much hard work you out into everyday. So thank you the world needs more people like you ❤ it's important to take a break sometimes though, even if it's just scheduling some alone time, self care is important. ❤ hugs you tightly ❤

1 reply
User Profile: CDanielle
CDanielle OP December 13th

@Tinywhisper11 Thank you!!! This means a lot. Many hugs back to you. I hope you are able to find joys in your day even though I know its not easy. <3 

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User Profile: idlemusings
idlemusings December 12th

@CDanielle

I can only imagine what you must be going through. Caregiving is such an intense, demanding act that takes a heavy physical, mental, and emotional toll. It requires us to give, even when we may be struggling to take care of ourselves. I hope you find someone in a similar situation soon, so that you can get the supportive encouragement you absolutely deserve. Sending a hug and nourishing vibes!

1 reply
User Profile: CDanielle
CDanielle OP December 13th

@idlemusings Thank you so much!! <3 

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User Profile: Rocoforhelp16
Rocoforhelp16 December 13th

I’m proud of you

User Profile: LabeledBPD
LabeledBPD December 14th

@CDanielle

 people say we are strong, courageous and admirable but what choice was you given in such a situation?

you didn’t choose this.

what you did chose is your selfless response and outstanding care and kindness, sacrificing your own basic want and putting your dreams on hold. That is not always people’s reaction to such adversity and shows how caring, compassionate and loving you are.

its very hard and you don’t lose sight, putting needs of who you love above yours. You are appreciated and the type of human the world would be utopia if everyone had the same qualities.

the disability space and carers space is growing strong and I am glad you are her and a part of it. 

As already mentioned please do at every opportunity take time to look after yourself. The age old saying, put on your own life jacket before helping others. I know it’s not always that simple but please try . 

Welcome to the community and hope to hear how you are doing soon. Merry Christmas to you and your family 

1 reply
User Profile: CDanielle
CDanielle OP Sunday

@LabeledBPD Thank you very much for that! I will drown if I dont put on my life jacket. I am beyond exhausted. Everyone has their limits. Ive been doing this for years now, no weekends off, no sleeping in. Much Love!!

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