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September Check In
by AffyAvo
Last post
1 day ago
...See more [Peanuts characters look off a dock, at the sunset while leaves swirl around them text states GOODBYE AUGUST Hello September] September can be a shift, some schools are full of people settling into new routines, the weather changes into a new season and pumpkins seem to pop up everywhere. Some of us are also cheering on the Paralympians (check out this post [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/ParalympicsParis2024_335558/])! Are you experiencing and changes or stating something this month? What's a fun activity you are doing this month? How are you doing? Would you like support with anything?
Boom! or Bust! All about pacing . . .
by MistyMagic
Last post
August 31st
...See more This post will open our new series on  ⚡P A I N !💥 All About. . . Boom!⬆️ Bust 🔽 and Pacing 🟰 The concept of "boom-bust" and “pacing” particularly in the context of disabilities, refers to a pattern of energy expenditure characterized by alternating periods of high activity or productivity ("boom") and subsequent periods of low energy, exhaustion, or rest ("bust"). This approach is often employed by individuals with chronic illnesses, disabilities, or conditions that cause fluctuations in energy levels, such as chronic fatigue syndrome, fibromyalgia, or certain types of disabilities affecting energy levels. How often have you started out at the beginning of an activity or project full of energy (Boom) racing along only to begin feeling tired, but still you carry on because you don’t want to stop, or you just want to finish what you are doing, and then the next day you are so very tired and in pain or exhausted and cannot do anything (Busted) and the recovery takes a few days or even longer? Here's a breakdown of the “boom-bust” and “pacing” approach and its implications for individuals with disabilities: Understanding Energy Levels: Boom-bust pacing recognizes that individuals with disabilities often have limited energy reserves, which can fluctuate from day to day or even within the same day. It emphasizes the importance of being attuned to one's own energy levels and learning to manage them effectively. Managing Activities: Rather than trying to maintain a constant level of activity throughout the day, boom-bust pacing involves identifying periods of higher energy (boom) and using them for more demanding tasks or activities, while conserving energy during periods of lower energy (bust) through rest or less demanding activities. Prioritizing Tasks: Individuals practicing boom-bust pacing often prioritize tasks based on their energy levels. Important or demanding tasks are tackled during periods of higher energy, while less critical tasks may be deferred to periods of lower energy. Ask yourself these questions and think about your answers, then jot them down so that you have a list of your priorities, you can add them in your reply to this post. * What is important? - read all the points below before deciding! * What MUST I do? * What do I want to do? * What do others want me to do? * What am I expected to do? (may include deadlines) * What can I do? Avoiding Overexertion: By pacing activities and balancing periods of activity with rest, individuals can reduce the risk of overexertion, which can exacerbate symptoms or lead to "crashes" where energy levels plummet (bust), sometimes for an extended period as the recovery needed after a “boom” can be extensive and disproportionate to the gain. Examples:  You may want to finish weeding a flower border and do it all in one afternoon, the flower border looks great but you end up exhausted in bed for 3 days. If you had spread it over 2 afternoons then you would not end up exhausted. You have an important exam next week, so you stay up all night studying. The next day you cannot get out of bed because of the body aches and exhaustion. If you had split the studying into short periods then you would not have crashed so badly and could have revised for a few hours every day.  Remember to STOP BEFORE the pain is too bad or STOP BEFORE you feel exhausted, that way the rebound to recovery is faster, and smoother, and repeatable. Take a look at https://www.pomodorotechnique.com/ [https://www.pomodorotechnique.com/]  splitting studying or any task into shorter periods. The original technique has six steps: * Decide on the task to be done. * Set the Pomodoro timer (typically for 25 minutes). * Work on the task. * End work when the timer rings and take a short break (typically 5–10 minutes). * Go back to Step 2 and repeat until you complete four pomodoros. * After four pomodoros are done, take a long break (typically 20 to 30 minutes) instead of a short break. Once the long break is finished, return to step 2. ( a pomodoro is an interval of work time). Also the Spoon Theory [https://www.7cups.com/forum/DisabilitySupport_47/ArticlesResourcesConditionSpecificInformation_458/SpooniesandDropitlikeitsPOTSshirts_20186/] 🥄🥄🥄🥄🥄🥄 and Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/BoomorBustAllaboutpacing_327034/] Flexibility and Adaptability: Boom-bust pacing requires flexibility and adaptability, as energy levels can vary unpredictably. It's important for individuals to listen to their bodies, adjust their plans as needed, and never feel guilty for needing to rest or modify their activities. Communication and Advocacy: In work or social settings, it's essential for individuals practicing boom-bust pacing to communicate their needs effectively and advocate for accommodations or adjustments when necessary. This might involve explaining their pacing approach to employers, colleagues, or friends and asking for understanding and support. Self-Care and Wellness: Boom-bust pacing is ultimately about self-care and managing one's health effectively. It involves not only managing physical energy but also attending to emotional and mental well-being, recognizing the importance of rest, relaxation, and activities that bring satisfaction, happiness, and joy. Overall, boom-bust pacing can be a valuable strategy for anyone, but more so for individuals with disabilities to manage their energy levels and navigate daily life more effectively. By learning to listen to their bodies, prioritize tasks, balance activity with rest ie: pacing themselves, individuals can optimize their functioning and improve their quality of life despite the challenges posed by their disabilities. Chronic Pain Resources  Here Living with Chronic pain Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/] More on Pacing Here [https://www.cfsselfhelp.org/library/pacing-numbers-using-your-heart-rate-to-stay-inside-energy-envelope] Q [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/]uestions to ask yourself, please reply below! * Do you recognize yourself as a ‘boom-bust’ or ‘pacing’ individual? * Have you ever used this method? If you haven’t will you try it in the future? If not why not? If you do does it help? * Can you remember one time when you carried on when you should have stopped and rested? What happened? * Do you have tips to share with us, please do! Consider joining the Disability Community Support Team. More information Here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] Tag list @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @wishfulWillow6962 @WishUponAStar968 @wonderfulRainbow817 @xandia @Xisle @Zed786 Add or Remove yourself in this thread HERE [https://www.7cups.com/forum/disabilities/WeeklyCheckin_1053/2024TaglistDisabilitySupport_202464/]
2024 - Taglist Disability Support
by CaringBrit
Last post
July 22nd
...See more This thread controls an auto-updating tag list. To see the current list, go to Disability Support [https://rarelycharlie.github.io/taglist?3ec913e645043cdcd31f94a3324ab37c]. To add yourself to this tag list, press the Post to Thread button above and write the exact words Please add me. To remove yourself from this tag list, press the Post to Thread button above and write the exact words, Please remove me. This Taglist will be used for the Daily Check-Ins could even be used for Events etc. What happens after you join the tag list? You will notice an icon for a little bell up in the right corner of your screen. there is a letter icon, then the bell, then a jar, and then the icon for your account. That bell will tell you about your notifications. When we tag you, it will show up as a number on the bell. Click on the bell and a drop-down menu will appear and it will show you the link to the post where we tagged you. Current taglist as at July 19th 2024 130 @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @cal1860 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @communicativePond1728 @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enigmaticOcean8813 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @greekcatperson @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @Ofenkartoffel @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @reservedOwl6476 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @WishUponAStar968 @wonderfulRainbow817 @xandia @xxParkerxx @Zed786
Severe ME Awareness Day
by audienta
Last post
August 13th
...See more Hello everyone, I wanted to post here today as August 8th is Severe ME Awareness Day. (Source [https://worldmealliance.org/2022/08/severe-me-day-august-8th-2022/]) ME is a neuroimmunological multisystem disorder. The main symptom is a severe intolerance to any form of exercise, stress, and stimuli. It also comes with a lot of other symptoms including pain, fatigue, brain fog, orthostatic intolerance, gastroenterological issues, neurological symptoms and so on. ME is categorised into mild, moderate, severe and very severe. Today, we think of those who have severe and very severe ME and of those who have already died of this disease. People with (very) severe ME are mostly or completely bedbound, often have to lie in a dark and quiet room for most of their time, and some are even completely dependent on carers and a feeding tube to stay alive. So far, there is no treatment for ME. The only recommended strategy to deal with it is pacing, which means, staying within your boundaries to not trigger the bad response to exercise, stress and stimuli that I've mentioned before. Healing from ME completely is unlikely at the moment. We can only hope that research finds a solution for all ME patients soon.  Therefore, let's think of the severe(st) ME patients around the world today, hope for a better future for them, and grieve those who we have lost.  Thank you for reading the post. If you want to learn more about ME, here's a link [https://www.meresearch.org.uk/what-is-me/]. MistyMagic has also interviewed someone with ME in the past, so here's the link to the interview [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewLivingwithCFS_328938/]. Take care, audienta
Newly dxd with MS
by 777Bre777
Last post
July 16th
...See more I hate that I can no longer do the things I use to do. I was asked to run the sound system for a play my church is doing. I went for a few hours last night. I sat most of time but now I can't get out of bed today. I had to tell them I can't help them even though this is something I would have enjoyed doing.
I have figured something out!
by Emm22
Last post
March 27th
...See more I always get dizzy for no reason and headaches but I found out that tinnitus can cause it! Music is my new bestfriend
A letter of hope
by Countrygirl095
Last post
March 4th
...See more  Letter to People with Physical Disabilities Introduction Dear fellow individuals with physical disabilities, I hope this letter finds you well. I wanted to take a moment to let you know that you are not alone on this journey. Whether you are newly diagnosed or have been living with your disability for many years, I understand that it is not an easy journey. It can sometimes feel like we are running an obstacle course, challenging every barrier that comes our way. But I want you to know that we can do this. Together, we can overcome any obstacle that comes our way. Acknowledging the Challenges Living with a disability can bring about a range of challenges. From physical limitations to social stigmas, it is easy to feel isolated and alone. I want you to know that I understand what you are going through. I have been there too. I remember the frustration, the moments of doubt, and the feelings of isolation. But I have also experienced the strength and resilience that come with living with a disability. The Power of Support One of the most powerful aspects of this journey is finding support and solidarity from others. You are not alone in your struggles. There are millions of people out there in the world who are going through similar experiences. The disabled community is a vast network of individuals who understand that we are not defined by our disabilities but by our abilities. Together, We Can Achieve Anything When we stick together, we have the power to change the narrative and make a difference. Together, we can create a society that embraces and values diversity. We can challenge stereotypes and break barriers. With your support and understanding, we can pave the way for a future where everyone, regardless of their abilities, can thrive. Conclusion As the saying goes, "Nobody walks the journey alone." Your disability does not define you, and you are not alone in your struggles. Let us stand together, support one another, and work towards a future where people with disabilities are celebrated and embraced. Remember, we are in this together, and we can overcome any obstacle that comes our way. Wishing you strength and resilience on your journey. With warmest regards, Countrygirl095
Autoimmune disease attacking all your systems
by Rebbecasinger
Last post
January 9th
...See more 💕
Wheelchair Users
by PeppermintSnowflake
Last post
January 7th
...See more Hi everyone- wondering if other wheelchair users would like to connect? Would be nice to offer tips/tricks, a place to vent when you've had a problematic interaction with a stranger or celebrate a positive interaction! Including: manual or power chairs full time user or part time user Anyone that is possibly transitioning to needing a wheelchair may also find this thread useful. I found a lot of blogs and youtube videos helpful before I started using mine- prepared me for some things (like strangers grabbing my push handles), how to get through non-automatic doors and tips like pneumatic wheels being better than solid rubber. I currently use a manual wheelchair out of the house. I have a power chair (perimobil F3) that I occasionally use inside the house. I cannot push myself very far in my manual chair so I need assistance to leave the house. I am in process of getting a rear-entry automatic ramp van so that I can use my power chair out of the house unassisted. I'm also a listener here so if anyone wants to chat 1:1 about this, please feel free to message me and we can set up a time! I'm on the east coast of the USA for time reference. <3
Chronic Back Pain, and rant
by ShellyZz
Last post
November 28th, 2023
...See more Wondering if anyone has any advice for back pain from scoliosis.  Not sure about others with scoliosis but mine effects not only my back but also my hips.  And the past two nights it has been radiating to my left rib cage, so every time I inhale the pain goes up, exhale goes back down.  But it hurts so much.  My doctors got me a back brace, but told me not to wear it at night.  I also have had physical therapy on and off for 17 years.  Does anyone have any advice to hopefully help the pain?  I've had pain meds but the doctor doesn't prescribe them anymore.  I've had Ultram er a little less pain, gabapentin did nothing, tramadol a little less pain, Vicodin did the most but is hard to get a prescription for, ibuprofen 600 helps with other pain but not much if any for the back.  Pt helps a little for the day, brace helps a little too.  Tens unit can also help some but not a lot.  Cold or hot packs work a little if I can keep them on.  I also have Lidocaine patch 5%, helps a little if I can keep it on.  Sadly I'm pretty used to the back pain, but the rib pain is bothering me quite a lot.  I'm just so tired of being in pain in general.  It also makes my depression worse since doing anything is hard.  Thanks for listening to the rant.
Zion the documentary
by Heartsandrosesandpaws
Last post
September 23rd, 2023
...See more I just got done with watching Zion the documentary. It is about an African-American teen becoming a good wrestler without any legs or feet. It shows that even if you have a disability or have odds not in your favor you can overcome those odds. One time even when he failed, the team made the whole thing more of a positive time for him.
Introduction
by Stitchlover17
Last post
June 29th, 2023
...See more Hello, my name is Jessaca, I’m 20, I was born with spina bifida and I was never supposed to walk at all and I can independently, BUT as of right now I am currently in a wheelchair because of just having surgery on my foot two weeks ago.
ehlers danlos
by tasiaah
Last post
March 12th, 2023
...See more recently figured out I have hypermobile ehlers danlos and it causes me quite a bit of pain and its very tiring :(
Back pain
by lauren12224
Last post
February 11th, 2023
...See more has anyone else suffered from back pain. It’s been hard to work or do anything sometimes
If God makes all our faces, did he laugh when he made me
by SilverMistakes
Last post
February 4th, 2023
...See more If God made all our faces, did he laugh when he made me? Does he make the legs that cannot walk and eyes that cannot see? Does he curl the hair upon my head 'til it rebels in wild defiance? Does he close the ears of a deaf man to make him more reliant? Is the way I look a coincidence or just a twist of fate? If he made me this way, is it okay, to blame him for the things I hate? For the flaws that seem to worsen every time I see a mirror, For the ugliness I see in me, for the loathing and the fear. Does he sculpt us for his pleasure, for a reason I can't see? If God makes all our faces, did he laugh when he made me

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

There are a number of ways to get involved and be supported. We have a pop up teen chatroom and a 24/7 adult chatroom.

There are guides for Chronic Pain and T2 Diabetes
There are Q&A sections for Disabilities and Chronic Pain

Members may connect with a listener who has disabilities, chronic pain, cancer, diabetes, adhd or autism listed as a topic and there are listeners with disabilities supporting people with disabilities

We encourage people to post new threads and respond to others in the forums! Some good ways to get started are to introduce yourself and to join our tag list to be notified of weekly check ins and events. We also have an Interview Series: if you would be open to sharing more about yourself and want to be interviewed.

Looking to be even more activity in the Disability Community? Join as a leader!

*Note we are inclusive of all disabilities but ADHD and Autism each of their own communities which may be of interest to some of you.

Community Guidelines

🌟 Please be respectful of everybody's thoughts and opinions.

🌟 Don't think you are alone, so please share

🌟 Please be patient if you feel like your concern hasn't been addressed yet; we are working hard to add more leaders and supporters.

🌟 If you have any concerns, reach out to a leader or make a post.

🌟 For Listeners only - please remember that you are here to give support, if you are seeking support then please switch to your Member account.

🌟 Most of all - don't forget to be awesome! You are loved and accepted here, no matter what!

Guidelines For Using AI 


We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







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