My little disability space [TW]
Hi! My name is Avy. I'm 15 years old. Basically I am going to use this space to rant about pain, the affects of my disability, and weird little things about it no one notices.
Let me explain my story a little bit:
So in 2021 I was playing soccer and I got stepped on, and then stepped on again early 2022. I went to my doctor and she sent me to an orthopedic doctor. That was when the surgeon said he was surprised I hadn't been to see him sooner. Because of my injury I ended up with severe tendinitis and arthritis in my foot. I was sent to physical therapy. Through months of intense physical therapy 4 times a week and going to the surgeon every 3 weeks, he figured this out. I have naturally high arches, it runs in my family. But for some reason the tendons in my foot stopped growing when I was about 7. Which explains why my feet have always hurt. As I'm getting older and taller it's getting worse and one day the tendons in my feet will snap. I also have tri-pod foot (that's what he called it) from my heels being misaligned. Basically only 3 really small points on my feet ever touch the ground. Not even my toes 😨. I've gone through 2 pairs of inserts, I do physical therapy every dang day, and nothings working. Basically now my only option is surgery. Since I've been limping for 2 years my knee has been affected and so has my hips. This whole process has been really isolating and discouraging. I kind of just want it over.
Anyway lots of weird things happen so I'll share them here!
Good news!!!
My mom called my Dr today and they've submitted my paperwork last week so the fancy children's hospital is reviewing my case. To see if my issue warrants help, the Dr doesn't have a doubt but it's protocol.
Hopefully I will hear from them next week!!
@AvyIsKing ohh! Yaaaay! That's great news ❤ it's about time ❤ are you nervous about what they'll say? Don't be scared ok? It's gonna all go well ❤❤ gives you a giant tiny hug ❤ I love you ❤
@Tinywhisper11
im scared but also relieved, my mom says they told her that given my condition has gotten worse they may skip the test and just surgery but I don't want that. Hugs❤️❤️
@AvyIsKing dw they know what their doing. Don't be scared, surgery is always a terrifying thought but medical stuff is awesome theese days and, and you will be safe ❤we will beat your anxiety together ❤❤ I'm glad it's going through so fast ❤❤ you'll be ok big hugggs
@Tinywhisper11
Im trying not to be scared, just anxious that's all. Boyfriend says that after my surgery he will come over and hug me and kiss me til I feel better 🥺 I get clingy when I'm in pain
I was watching videos of foot surgery on youtube last night and it gave me hope honestly. Seeing other people get better.
I had a really bad spasm in olive garden, and I wasn't allowed to take my shoe off and stretch so I punched myself in the foot til it stopped and I took Tylenol but now I can't take any before bed.
I guess I'll use pain cream now and try again before bed aha with the pain cream. I can use that 4 times a day, Tylenol is every 8 hours so I can't again til 12:30, I'll be up but in bed
@AvyIsKing you visited a olive garden?? How come you weren't allowed to take of your shoes??? From now on take paint with you where ever you go, then take your shoes off and just pretend the paint is your shoe. My poor little one😥 pain can be just unbearable, hugs you very tightly ❤ and yep that's good, because after the operation. Your gonna be much better, everything will work out well. your to young to have all this pain bless you😞 and don't worry that anxiety demon has orders to be good. When your boy friend comes make sure he cooks you a full breakfast in bed every morning😁
@Tinywhisper11
Olive garden is an American restaurant lol 🥺 yummy food.
Pain is annoying. I was watching videos of the surgery and pre and post op stuff because I need knowledge, I know alot aha. Apparently anesthesia makes you sad. I hope me don't cry hehe 🥺
I asked boyfriend if he'd go with me and he said if he's not busy he will and my little sister promised to bethere. She's the best. I just don't want to be alone aha
@AvyIsKing I may not be there but at all times I will be holding your hand, and when you scared of anxious just squeeze your hand and I'll squeeze back ❤ I've not heard it makes you grumpy! It makes you very sleepy and a bit out of it for a day or two. I've had 5 operations since I was rescued at 18. So in the past 4 and a half years. And each time I came out smilling, you will too ❤ I'm glad your sister will be there with you ❤ will your mum go to?? I supposed she has to, to sign things as she's legal guardian. But anyways your gonna be just fine. And oh it's a restaurant, I knew that😁hugg s you tightly ❤❤
@Tinywhisper11
Awww 🥺🥺 that was the sweetest thing I've ever heard omg 🥺 my mom has to go ): but me don't like her very much hehe 😔 and wow that's alot of surgeries!! I've never had ~any~ except for mild dental stuff hehe. And yes!!! Olive garden has really good bread and pasta and Italian food hehe
@AvyIsKing oh let's pray it's your first surgery and your last one. Your gonna be just fine ❤❤ gives you a giant tiny hug
@Avy
IsKing
Hi avy am Stephanie from nigeria.i just joined seven cups and I stumbled upon ur story ,I am so sorry that you had to go through all this but I am proud of you for finding happiness and staying alive despite everything.
Can we be friends ? I will really love to know about you.
@cyanPomegranate618 that's really sweet ❤ avy is a wonderful strong girl ❤❤ and welcome to cups ❤
@AvyIsKingHi avy I am Stephanie but I am not sure u saw my last message but I really sympathize with u and I will love to be friends with you
@tinywhisper11
i really hope its my first and only one (: i already know im going to need to get my wisdom teeth out this summer but that really doesn't count lol. i feel like the worst thing the dr could say is its affected my hips and knees (I know it has) and im going to need multiple surgeries
@AvyIsKing 😞 ok well let's not think about the other surgeries, just one at a time ok? How is your anxiety? And having wisdom teeth pulled definitely counts. I hope I never get my wisdom teeth through. How is everything going at home right now??
@Tinywhisper11
Anxiety is ok.
I have the flu and a fever :/ but my stomach is all gross so I can't take pain meds right now so foot hurts. I'm finally home and with jeffy so that's good.
How are you doing?
@AvyIsKing oh no you got the flu😥 stomachs yucky?? That doesn't mean you can't take pain meds?😕 don't worry so much about eating, but drink lots. And lie in bed keeping warm and sleep lots. Have lots of giant tiny hugs. Giant tiny hugs are the best medicine 😁 ❤❤ let me know if there's anything I can do ❤I love you
@Tinywhisper11
thank you (: yeah the flu is tearing up my stomach so i don't want to take any pain meds. I spent all of yesterday in bed, but i got yelled at, so today im taking a shower then getting right to cleaning and chores ):
@AvyIsKing cleaning and chores😞 you should be in bed resting. I wish I could adopt you, I'd make sure you were being looked after really well, and hug you every 10 minutes. I really hope you do get to move out with your boyfriend, so you can be looked after properly and understood. I love you ❤ gives you a giant tiny hug. How are you feeling today?
@tinywhisper11
Awww Lola 🥺 thats so sweet. I can get out in a little over 2 years, my boyfriend is a year younger so I'll have to wait a bit for him ): I'm feeling better today, just got a crazy migraine.
I bet you give the best hugs 🥰🥰
How are you doing?
@AvyIsKing 🤔🤔 to get rid of a head ache, just stuck your head out of the window, and the pane will dissapear😁😂😂 I'm doing ok ❤
@Tinywhisper11
hehe that's funny lola. Glad you are ok ❤️❤️
had a rough day, if I don't feel better tomorrow I'm going to ask my boyfriend and his mom to take me t the er
@AvyIsKing oh! If you're feeling that bad today, don't wait. Go to the ER😧 it's not worth waiting for another day
@Tinywhisper11
thanks. Something is wrong with my body and no one believes me 😔 it doesn't even have anything to do with my foot
@AvyIsKing ok I believe you, the doctors will believe you. If theres something wrong you need to go to er now. No One understands it knows your body better than you do, sweetie you need to go to the er now
@AvyIsKing I really really really hope you went
@tinywhisper11 I didnt go, but im on the mend I hope, i ended up passing out last night in bed and was unconscious for an unknown amount of time, but I'm hoping its not serious and my issue resolves itself. I have a sharp bad pain in my lower right abdomen and a fever, it comes in waves
@AvyIsKing ohhh! Is there a lot of viruses going around in your area?? I know covid and flu is on the rise here😕 maybe if your having pain in your abdominal area it could be something like that. But passing out is very concerning. Please keep a close eye on yourself. How are you feeling now?? Does anyone know you passed out last night?? Is there a number you can ring for advice? Cause I'm uk there's a second emergency ambulance service that allows you to tell sympotoms to someone, and they advice you what to do. I'm really worried about you. Do you still have a fever??
@Tinywhisper11
the flu is going around here, as well as some odd strand of something aha. My fever is gone. No one knows I passed out, but my boyfriend knows that something is wrong, and why I don't feel good. I can't call for medical advice especially because I'm a minor, but I seem to be on the mend. I was able to keep down the snack and dinner I ate last night, I got real lightheaded, which is normal for me, but I didn't pass out. And the pain, while comes in waves, didn't wake me up or bother me yet today.
Fingers crossed 🤞🤞
@AvyIsKing oh thank God ❤ ok lets hope it was just a wierd 24 hour bug thing. Hugs you tightly ❤ I'm really relieved to hear that. However keep a close eye on yourself, don't suffer silently. I know you do, but still you shouldn't have to. Give s you a giant tiny hug ❤ ❤❤ keep me updated on how your feeling ok? Have you heard from the doctor about what's going to happen yet?
@Tinywhisper11
hugs <3 ill keep you updated, and i am keeping an eye on myself (: i left the house today for the first time since Christmas eve :D
i haven't heard from the drs yet sadly, fingers crossed soon
@AvyIsKing yaaay! I hope you had fun where ever you went ❤ but also careful, and taking it easy. It's only early in the week and with new years, so don't worry you will hear soon ❤❤ hugs you ❤
@tinywhisper11
i just went to get hay for jeffy hehe. My sister is going to dance today, so fingers crossed i can see boyfriend soon, I was going to try and see my best friend this weekend, well the one who lives in this state, but their mom has covid ): And don't worry im taking it easy 💙
@AvyIsKing oh no! I hope your friends mum will be ok. And I'm sure jeffy said thankyou mummy ❤ there's a storm here it's sooo windy, and the lights keep flickering. The lights make me jump everytime. I'm such a big baby
Oh my gosh I have the best news!!!
So the Dr called today and was like are yall not interested in my test and my mom was like uh heck yes we are
And basically they've been trying to call since November (like I said they would) and they even mailed a letter and things haven't gone through, my mom is on the phone with the fancy hospital now!!!! Fingers crossed :)))
@tinywhisper11 @darkerplacea
@AvyIsKing oh that is good. But really sucks you didn't get the messages earlier, but forget about that now. Let me know what's going to happen ok?
@Tinywhisper11
If they don't call my mum tmr with a date she's gonna call, I will let you know the second I know