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Someone to talk to (maybe a listener?

Astraeuss Wednesday

(Sorry if this comes across snippy this is my third time writing this to site keeps re setting)

im 16 and have been dealing with likely POTS and EDS. I say likely because it’s impossible to get a proper diagnose when my parents refuse to take any of my doctors referrals or recommendations. Although I’m pretty sure my doctors diagnosed me with some sort of postural blood pressure thing and  hypermoblity but I digress. Things have gotten so hard. The pain keeps getting worse my hr keeps getting bigger and I’m able to walk and do less and less just making the pain worse.

I struggle in school and my grades have dropped. I can’t get through a day. A 504 was meant to be sent in but it’s been 3 months and I don’t even know what’s on it. My dad has told me a few things but won’t show me. One thing being he took off putting my feet up because he “didn’t want me to cause issues for my teachers and be a problem”. So I don’t even know if it will help me at this point.

I do have an amazing group of people surrounding me outside of parental figures but on one hand I don’t want to burden my friends more then I already do, and on the other just what someone to relate to. I’m worried about my future about jobs and aspirations. And I guess I just want someone who gets it I suppose. 


Thanks for reading my rant if you’ve gotten this far it means the world 💜

2
MistyMagic Wednesday

@Astraeuss Hi there! Yes! I read all of your post 💜 

Welcome to the Disability Support Community!

It is always very difficult before a diagnosis and it sounds like you have a lot going on right now. As a teen member of 7 Cups we have  teen listener and ATL (adults that are approved to chat to teens) you can find a list here https://www.7cups.com/BrowseListeners/ 

We also have a very interesting interview here about living with hED and POTS, maybe take a look?

 I hope that you find the support you are looking for and that others share in this thread.

1 reply
Astraeuss OP Wednesday

@MistyMagic

thank you 💜. I’ll check out the interveiw. I do find it rather hard to find a listener that has experience with things or/and still takes new members. hence why i posted something here hoping to maybe find someone easier. 

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