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Doctors changing practices and POTS syndrome...

madeleinecaudel17e August 11th, 2016

Normally I take the whole doctors changing their practices in stride but recently my doctors have completely changed things and are now working under the banner of our understaffed hospital. The hospital does not understand POTS and though my doctors, one left to become the pain management specialist (meaning the hospital finally figured out that there were too many doctors perscribing addictive pain medicines), do understand POTS. I am the only patient either one of them has ever seen with POTS in 20 years of medicine. So when my doctor decided to take 3 weeks off out of the country before starting in her NEW medical group I was VERY anxious. She really shelters me from a lot of the baloney that goes on with the POTS treatment and needing fluids ect. I usually end up making the 2 hour drive to the next state to get my fluids because my Neurologist works there. Its crazy this thing... POTS. I hope all of you have plenty of spoons today.

1
SilentSerenityy August 11th, 2016

@madeleinecaudel17e

Sorry to hear about this happening. I have POTs too and no-one has ever heard of it in my hospital but go down the corridor and you find specialists on it! It can be disheartening when a doctor moves away but I'm sure you will find a new doctor who is proficient in their understanding of POTs and can provide great support! I wish you luck. :D