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November Check In with Us!
by AffyAvo
Last post
November 11th
...See more [A sheep pulls a carrot from a garden] With the end of October and the beginning of November, harvest season comes to mind. Canadian Thanksgiving has passed, American Thanksgiving is to come, Diwali celebrations are occuring and pumpkins are still floating around! I know other cultures have celebrations related to harvest too. What types of harvest celebrations do you celebrate? Do you face any challenges at this time of year? How are you doing today? You are welcome to pop in to this thread multiple times throughout the month and share the tough things and the good things this month.
Meditation and Self-Care
by MistyMagic
Last post
October 18th
...See more September is Self-Care Awareness month! Read more Here! [https://www.7cups.com/forum/projectsandevents/General_2421/SeptemberisSelfCareAwarenessMonthEventsHelpWanted_336603/]          Meditation and Self-care Meditation is a word that can scare many people but it is not all about sitting cross-legged and saying ‘Ohmmm’ (although that works a treat!), it can take many forms and you can also design your own. You probably use a type of meditation when you stir your coffee and think, or whilst waiting for the water to boil to make your tea. Meditation covers a vast array of ways to focus your mind and body into one! Using simple meditation as a form of self-care can be incredibly beneficial for reducing stress, enhancing focus, and promoting overall well-being. Below are ways to incorporate meditation into your self-care routine, followed by some useful resources and ten frequently asked questions with answers about meditation.  So, all-in-all a complete guide to simple mediation! Ways to Use Simple Meditation as Self-Care: * Breath Awareness Meditation: Focus on your breath. Notice how it flows in and out without changing it. Do this for a certain number of breaths, seconds, or minutes.This can calm your mind and reduce stress.You can decide whether it feels more comfortable breathing in through your nose and out through your mouth, the opposite or even in and out through your nose or mouth. This way you are in control and do what suits your body the most. Try them all then decide. * Body Scan Meditation: Mentally scan your body from head to toe, noticing any tension or discomfort. This helps to relax your muscles and increase body awareness.This is more complicated and needs more time and can mean that any areas need more attention. * Mindfulness Meditation: Sit quietly and bring your attention to the present moment without judgment. Observe your thoughts as they come and go, helping to reduce anxiety and stress. There is also the Mindfulness Community [https://www.7cups.com/forum/mindfulness/] here on 7 Cups.  * Guided Meditation: Use a recorded guide that leads you through visualizations or relaxation techniques. This is a good option for beginners who need direction. You can also record meditations yourself so they are directly identifiable to you current condition. * Mantra Meditation: Repeat a calming word or phrase (mantra) silently to focus the mind. Common mantras include "Om" or "peace." * Walking Meditation: Practice mindfulness while walking slowly, paying attention to your steps and the sensations in your body. It’s ideal for those who find sitting meditation challenging. * Gratitude Meditation: Spend a few minutes reflecting on things you're grateful for. This can shift your mindset towards positivity and contentment. * Five Senses Meditation: Tune into each of your five senses—what you see, hear, smell, taste, and feel. This can ground you and bring your awareness back to the present. * Short “Micro” Meditation: Take 1-3 minutes to focus on your breath, a mantra, or a calming visualization. This is perfect for quick mental resets throughout the day. * Counting Meditation: Count slowly from 1 to 100, or 1 to 50 or pick a number, this focuses the mind and the thought together so that energy is synchronised. * Cleansing Meditation: Whilst standing or sitting at the sink concentrate on each task and each circular motion of the items. Or whilst showering focus on the sensation of the water and allow yourself to concentrate on each movement and finally allow the water to run over you washing away all negative energy down the plug hole away to the Earth. * Favourite Place Meditation: Visualise how to get from where you are to your favourite or safe place. Think about each movement, moment and the route shedding any negativity on the way. You can get there even when you are actually somewhere else. You can calm yourself and soak in the good energy, replenishing and refreshing yourself from that place before you return. You can return in a heartbeat if you are ready, if not then retrace your  steps gradually building up strength to face the world again. Each of these meditations can take moments, you can practice them almost anywhere, and, when you have tried them a few times you can even use them in busy meetings or stressful times. ------------------------- Frequently Asked Questions (FAQs) About Meditation: * Q: How do I start meditating if I’ve never done it before?  A: Start by setting aside 5-10 minutes in a quiet place. Sit comfortably, close your eyes, and focus on your breathing. Don't worry about "doing it right"—just pay attention to your breath. * Q: How long should I meditate for as a beginner?  A: Start with 5-10 minutes a day and gradually increase as you become more comfortable. Even short sessions can be beneficial. * Q: What should I do if my mind keeps wandering?  A: It’s normal for your mind to wander. When you notice it happening, gently bring your attention back to your breath or focus point. Over time, this will become easier. * Q: Do I need to sit in a specific posture to meditate?  A: No. Sit in any position that is comfortable for you. The most important thing is to maintain a relaxed and alert posture. You can even meditate lying down if you wish, but you might be more likely to fall asleep. * Q: Can I meditate if I don’t believe in spirituality?  A: Absolutely. Meditation doesn’t require any specific spiritual belief. It can be practiced simply for relaxation, focus, and mental clarity. * Q: Is it better to meditate in the morning or evening?  A: There’s no “better” time. Morning meditation can set a peaceful tone for the day, while evening meditation helps to unwind and relax. Choose a time that fits your schedule.The more you do short meditations the more you will find new ways and times. * Q: What are the benefits of meditation?  A: Meditation can reduce stress, improve focus, increase self-awareness, promote emotional health, and enhance sleep quality. Long-term practice has been shown to positively affect overall mental well-being. * Q: How do I stop falling asleep during meditation  A: Try meditating sitting up rather than lying down. You can also open your eyes slightly or try meditating earlier in the day when you’re more awake. But, hey, what's so bad about falling asleep as long as you are safe, some people use it as a sleep aid. * Q: How long does it take to see the benefits of meditation?  A: Some benefits, such as feeling more relaxed, can be experienced immediately. However, for long-term effects like reduced anxiety or improved focus, consistent practice over weeks or months is typically required. * Q: What if I don’t have a lot of time to meditate?  A: You can still benefit from just a few minutes of meditation each day. Micro-meditations, where you focus on your breath or surroundings for 1-3 minutes, can be very effective. ------------------------- By integrating meditation into your self-care routine, you can develop a practice that not only calms the mind but also strengthens your overall mental and emotional well-being. There are many accessible resources to help you get started, and with time, even brief moments of mindfulness can offer profound benefits. ☺️Share your ways to meditate here! ☺️Do you meditate? Or are you going to try? ☺️Do you have any meditation questions? ☺️Would you be interested in a group meditation here?
Interview Series - Master List!
by AffyAvo
Last post
September 9th
...See more Our series 'Interview Diaries' allows the community to share their direct living experience with conditions and disabilities and for us to learn from each other. To learn more about Interview Diaries, share as an interviewer or interviewee, and to be notified of new interviews via the taglist please see Call of Applications [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/CallForApplicationsToBeInterviewed_276642/] List of Interview Diaries:- 2022 Interviews:- Non-Epileptic Seizures  [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/NonEpilepticSeizuresWithAudienta_275839/] Turner Syndrome  [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TurnerSyndromeWithAnimeweebu123_276707/] Spending Time With A Surfer @theboymoana [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/SpendingTimeWithASurfertheboymoana_276777/] Learning About FND  [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningAboutFNDWithEmpatheticListener0309_277278/] Interview about being Deaf  [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/InterviewaboutbeingDeafwithFrenchMarbles_277578/] Experiences With Celiac Disease [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TheWholesomeMistyMagicTellsHerExperiencesWithCeliacDisease_277824/] Dissociative Identity Disorder with @DichotomousDetia [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/DissociativeIdentityDisorderwithDichotomousDetia_277991/] An Interview With @AffyAvo on Hereditary Angioedema♥ [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/AnInterviewWithAffyAvoonHereditaryAngioedema_278243/] Endometriosis and Me: an interview with @Lilyfae00 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/EndometriosisandMeaninterviewwithLilyfae00_278539/] PoTS and Me: An Interview with @wonderfulRainbow817 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PoTSandMeAnInterviewwithwonderfulRainbow817_278731/] Tendonitis and Misdiagnosis: Rachel's Experience With Chronic Pain [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TendonitisandMisdiagnosisRachelsExperienceWithChronicPain_278839/] Pervasive Developmental Disorder: Interview with @Goalsforlife [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PervasiveDevelopmentalDisorderInterviewwithGoalsforlife_280227/] WarmLightXO Sheds Some Light On PCOS [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/WarmLightXOShedsSomeLightOnPCOS_280813/] Learning With Lucy: Her Experience With Epilepsy [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningWithLucyHerExperienceWithEpilepsy_284621/] 2 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningWithLucyHerExperienceWithEpilepsy_284621/]024 Interviews:- Living with Multiple Sclerosis [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewDiariesGrabaCuppaandLearnaboutMultipleSclerosis_325500/] Living with Cerebral Palsy [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] Living with Meniere's Disease [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/] Living with CFS/ME [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewLivingwithCFS_328938/] Living with RA (Rheumatoid Arthritis) [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesLivingwithRA_333251/?post=3610799] Being a wheelchair user [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesBeingaWheelchairuser_336321/?post=3653342] Living with hED and POTS [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewLivingwithhEDSandPOTS_336838/?post=3659993] T [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/]his list is updated as we post more Interviews. Nov 2024
Interview Diaries - Being a Wheelchair user!
by MistyMagic
Last post
October 2nd
...See more Hello everyone, this is an interview about ‘Life being a wheelchair user’. Our interviewee has requested to remain anonymous during this interview and because of the importance of this discussion about being a wheelchair user, we are happy to accept. that. Thank you for taking the time to answer our questions so we may better learn and understand what life is like using a wheelchair. It is our pleasure to find out more. * Please can you tell us about why you need to use a wheelchair? I use a wheelchair because I'm half paralyzed, and a double amputee. So I couldn't live without one. * How does using an electric wheelchair benefit your life?  Using an electric wheelchair is really great for going out in public and for ease to use ramps, and just generally getting around. I have injections in my spine every few months, towards the last month or so, the pain becomes too much and I can only use the electric wheelchair. * Do you prefer an electric or a manual chair? I prefer the manual wheelchair, because it keeps my upper body strength up and gives me the satisfaction that I'm able to keep going ❤ Also manual wheelchairs are much more fun for racing downhill😁weeeeeeee!😂 * What are the worst parts of being wheelchair dependent? The worst thing being wheelchair dependent for me, is I need to rely on my carers to do so much for me, it can make you feel like a burden. But I am so thankful for my carers ❤😁 it also sucks you know, having people talk behind your back and always pushing you around😂 * It is great that you still have a sense of humour, which shows in your posts. How can we help to support someone who uses a wheelchair?  Wheelchair users just want to be accepted, so how you can help is don't look at us funny or call us names 🙁 it can really hurt, and damage our confidence. A lot of us already have self esteem issues. So just be kind ❤ * Sometimes it is hard to know how to approach or offer to help a person that is in a wheelchair. Do you have any tips or advice for these kinds of situations, or do you have any examples? To approach people in wheelchairs, or with elderly people or anyone who looks like they need help, then please do come up and offer assistance. We are just normal people, who appreciate your help just like anyone else. Just don't sneak up behind us😂 we don't want any heart attacks😂. * What else would you like to share with us about your life using a wheelchair? Um🤔 maybe if you guys could put pedals on my wheelchair, for when my arms get tired, that would be great😂only joking 😁 just please know we are able to do a LOT of things, so don't just see our disabilities, focus on our abilities instead.  And to all other wheelchair users out there.  Don't let anyone tell you, you can't. You are more able than you think! Find happiness in the little things, and  Enjoy your life! Thank you for answering our questions, it has been really interesting and a pleasure to find out more about your life in a wheelchair. If you have any questions that you would like to ask our wheelchair user then please post in a reply below. Some Resources to find out more Mobility International USA (MIUSA)  MIUSA [https://www.miusa.org/] MIUSA is an organization dedicated to advancing disability rights and leadership globally. They provide resources, programs, and information on travel, international exchange, and leadership for people with disabilities. National Center on Accessibility  NCA [https://www.ncaonline.org/] NCA promotes access and inclusion for people with disabilities in parks, recreation, and tourism. They offer training, technical assistance, and resources related to accessibility in outdoor environments and recreational facilities.  United Spinal Association United Spinal Association [https://unitedspinal.org/] Description: This organization offers resources, advocacy, and support to individuals with spinal cord injuries and disorders. Their website provides information on health, wellness, mobility, and rights for wheelchair users.  Wheelchair Travel Wheelchair Travel [https://wheelchairtravel.org/] Wheelchair Travel provides detailed travel guides, tips, and resources specifically tailored for wheelchair users. The website covers accessibility in various destinations, transportation, and accommodations worldwide.  Abilities.com  Abilities [https://www.abilities.com/] Description: Abilities.com is a resource hub for individuals with disabilities, offering information on assistive technology, accessible products, events, and services. It also features a community forum for sharing experiences and advice. Paralyzed Veterans of America  PVA [https://pva.org/] Description: PVA provides support and advocacy for veterans with spinal cord injuries. Their resources include health and wellness information, legal services, and assistance with accessible housing and employment. Disability Rights Education & Defense Fund  DREDF [https://dredf.org/] DREDF is a leading civil rights law and policy center that works for disability rights. They provide legal advocacy, education, and resources on accessibility, disability laws, and rights. MobilityWorks: MobilityWorks [https://www.mobilityworks.com/] MobilityWorks is a national chain of wheelchair accessible van providers, offering vehicles, equipment, and modifications for people with mobility issues. Their site also has resources on financing and renting accessible vehicles. Wheelchair Foundation  Wheelchair Foundation [https://www.wheelchairfoundation.org/] The Wheelchair Foundation provides wheelchairs to those in need around the world. Their site includes information on their global impact, donation opportunities, and stories of lives changed through mobility.  Ice cream for everyone!
Interview: Living with hEDS and POTS
by MistyMagic
Last post
September 26th
...See more Hello everyone, this is an interview about ‘Living with hEDS and POTS’. Our interviewee is xxParkerxx and they are happy to answer any questions you might like to post regarding their condition. Thank you for taking the time to answer our questions so we may better learn and understand what life is like with hEDS and POTS. It is our pleasure to find out more. * What does hEDS stand for? Hypermobile Ehlers-Danlos Syndrome * How did you find out you had hEDS? So it’s actually kind of a funny story. In my 7th and 8th grade years, I had a lot of injuries. In my 8th grade year, I picked up gymnastics again and that’s probably when things got pretty bad. So my mom had posted a video of something I was doing for gymnastics to her ***, and she had been keeping family apprised of things and every injury just because they lived far away and wanted to know. One of her high school friends sent her a private message saying I looked hypermobile and asked if she had considered an hEDS evaluation. Her friend sent us the Beighton Scale and I scored incredibly high on it. So we talked to my doctor, who referred me to a geneticist. My geneticist was actually really surprised that I hadn’t been diagnosed before then, given my history. I walked away from that appointment with a diagnosis of hEDS and suggestions for specialists. * How does it affect you? When I was first diagnosed it honestly wasn’t a huge impact. I was injured more often than others and rehab took longer, wounds took longer to heal, and things dislocated more frequently, but that wasn’t anything I wasn’t already used to. As time went on though, it’s had more of an impact on my life. I actually know how to fix a dislocation of every joint in the arms and legs (fingers and toes included), that can possibly dislocate. Every time we go in, they teach us how to fix whatever is going on at home because doctor appointments are expensive and time-consuming. At this point, I’m in pretty widespread pain on a daily basis, with multiple dislocations on a weekly basis, weak joints overall, muscle spasms, and needing to wear various braces for support of my joints on a daily basis. I also have a severe progressive astigmatism and lack of depth perception due to my hEDS. What this means is that my eyes are misshapen, and will continue to become more misshapen over time due to the tissue in my eyes being stretchy because of the hEDS. I wear hybrid contacts, and those help tremendously, but my vision will never be perfect, even with aids. They aren’t yet sure if they’ll be able to do LASIK due to my hEDS but I’m hoping by the time I’m old enough to get LASIK they’ll have more research and be able to give a definitive answer. * What is POTS? POTS stands for Postural Orthostatic Tachycardia Syndrome. At its core, it is a condition of the autonomic nervous system, where the body struggles to regulate heart rate, which causes issues with regulating other bodily functions. When I change positions, from sitting to standing, lying to sitting or lying to standing, my heart rate increases by an abnormal amount, and takes a while to come back down. This causes things like dizziness, syncope, weakness, brain fog, and pre-syncope. POTS also causes issues like temperature regulation, dehydration, low sodium levels, low vitamin and mineral levels, and either excessive sweating or a lack of sweating. I specifically have secondary, hypovolemic POTS. This means that my POTS is caused by low blood volumes and my hEDS causing blood pooling, thus not allowing my heart to get the blood it needs. POTS can also cause a phenomenon known as POTS anxiety. Researchers aren’t totally sure why this occurs, but it has been found that medicating the POTS symptoms using beta blockers can be helpful in reducing anxiety in POTS patients. * How did you find out that you had POTS? My 7th grade year started getting dizzy. I was a high-level soccer player at the time, so this caused lots of problems. I was dizzy pretty much whenever I was upright, and it was worse when I would change positions, even to the point that when I would stand up, my vision would go black for a few seconds. We went to the doctor. They did a brain MRI, thinking it was either a tumor or a Chiari Malformation, but it was neither. So then my neurologist thought maybe it was migraines. We tried every migraine medication that we could think of. The problem was that none of these touched my symptoms, and some even made them worse. I, needing answers desperately because I was sick of not knowing why things were happening to my body, went to Dr. Google. I put my symptoms into google and up came both POTS and Orthostatic Hypotension. I did what’s called a poor man’s tilt table test, or a poor man’s TTT. This involves taking your heart rate, blood pressure, and blood oxygen at various positions. The results of that showed that I most likely had POTS. I showed my mom, and she agreed. We asked my doctor to refer us to a cardiologist for the diagnosis, and she did. The cardiologist did a poor man’s TTT and an echocardiogram, and confirmed a POTS diagnosis.  * How do the two syndromes affect your life? The combination of the syndromes actually makes some things really hard. I can’t hold my arms above my head for too long, because the blood will drain from them and my shoulders will dislocate. Typing or writing for long periods of time is difficult, because my fingers will dislocate. Running, jumping, or turning quickly are no-nos unless I have braces on to secure my joints and prevent them from dislocating. I have to sit when I shower because the blood pooling and dizziness and high heart rate can cause me to pass out and hit my head, which is dangerous. I have to drink a ridiculous amount of fluids and consume much more salt than the regular person. I have to do joint strengthening exercises at home. I also have a progressive astigmatism that they think is caused by my hEDS. They also have to test my hearing every year as hEDS and the syncope (passing out) from POTS can cause hearing loss. I’m limited on physical activity, and I’ll need mobility aids somewhat soon. * How do the two syndromes affect your school? I actually have a 504 that is currently being transitioned to an IEP. A 504 is a disability plan through Section 504 of I believe the rehabilitation act. Basically it is meant to give baseline accommodations for the classroom. An IEP is what is known as an Individualized Education Plan, and it allows for more individualized instruction and more intensive supports in the classroom. I have some accommodations for school, mainly for gym class. Teachers in regular classes have to have something for me to prop my legs up on to mitigate blood pooling, and a stool for me to sit on at lab tables if lab work is necessary. In gym class, I am allowed to self-pace and modify if necessary. This means that if my knee is bothering me and I don’t feel like I can do gym, then I sit out. If I’m too dizzy to do gym, I sit out. I can also leave classes 2 minutes early to allow me to move a bit slower without being knocked into in the halls if necessary. I’m allowed an alternative testing site on big exams too for when I have bad brain fog or bad anxiety. I do find that I’m slightly ostracized in some classes, but I have great friends who support me and are willing to help me with whatever I need! * How can you support someone with these conditions? That’s really a difficult question to answer, because both of these conditions are usually what are known as invisible disabilities, and they affect everyone differently. For myself, if you see me struggling with something, come up and see if you can help. If I look disoriented, walk up and ask if you can help. If I look injured, offer to call someone for me. If I am unconscious, for the love of all that is good and holy, don’t call an ambulance. If you know the person has POTS and they don’t appear to have injured themself by passing out, wait for them to come to before deciding what to do. People with POTS can have what is called convulsive syncope, where they twitch a bit while they are unconscious. Obviously, if they appear to be having a full seizure and they don’t have a history of this, please call an ambulance. But yea, how you can support someone will vary from person to person, but please don’t hesitate to ask someone if they need help, most of us living with invisible disabilities are super nice and would actually love for someone to ask if they can help. We frequently need help but are too scared to ask. * What else would you like to tell us? While POTS and hEDS are somewhat rare, it is quite possible for someone to live a full and fulfilling life with these conditions. Finding the right friends, getting the right medical treatment, and doing things you enjoy can really improve one’s quality of life. Also, I’ve been in a pretty bad POTS flare recently, and it’s had me pretty fatigued. I will answer any questions that you may have, but it may take me a hot minute because I don’t have a real lot of energy.  Some Resources:- https://www.ehlers-danlos.com/ [https://www.ehlers-danlos.com/] The Ehlers-Danlos Society is a great resource for those looking to know more about EDS in general and all the different types. https://www.dysautonomiainternational.org/ [https://www.dysautonomiainternational.org/] Dysautonomia International is a great resource for those diagnosed with POTS, or those looking to learn more about it. https://www.standinguptopots.org/ [https://www.standinguptopots.org/] Standing Up To POTS is a great resource for those needing to learn about school accommodations or quality of life with POTS. They even have a podcast called The POTScast that is great! Thank you for answering our questions, it has been really interesting and a pleasure to find out more about your life. If anyone has any questions or wishes to offer support then please share in a post. We look forwards to hearing from you!
My little disability space [TW]
by AvyIsKing
Last post
September 24th
...See more Hi! My name is Avy. I'm 15 years old. Basically I am going to use this space to rant about pain, the affects of my disability, and weird little things about it no one notices.  Let me explain my story a little bit: So in 2021 I was playing soccer and I got stepped on, and then stepped on again early 2022. I went to my doctor and she sent me to an orthopedic doctor. That was when the surgeon said he was surprised I hadn't been to see him sooner. Because of my injury I ended up with severe tendinitis and arthritis in my foot. I was sent to physical therapy. Through months of intense physical therapy 4 times a week and going to the surgeon every 3 weeks, he figured this out. I have naturally high arches, it runs in my family. But for some reason the tendons in my foot stopped growing when I was about 7. Which explains why my feet have always hurt. As I'm getting older and taller it's getting worse and one day the tendons in my feet will snap. I also have tri-pod foot (that's what he called it) from my heels being misaligned. Basically only 3 really small points on my feet ever touch the ground. Not even my toes 😨. I've gone through 2 pairs of inserts, I do physical therapy every dang day, and nothings working. Basically now my only option is surgery. Since I've been limping for 2 years my knee has been affected and so has my hips. This whole process has been really isolating and discouraging. I kind of just want it over.  Anyway lots of weird things happen so I'll share them here!
Interview Diaries - Living with 'RA'
by MistyMagic
Last post
July 27th
...See more Hello everyone, this is an interview with @Clio9876  about what it is like ‘Living with Rheumatoid Arthritis (RA)’.    Clio, thank you for taking the time to answer our questions so we may better learn and understand what it is like to live with ‘RA’ Rheumatoid Arthritis every day. It is our pleasure to find out more.   * Can you tell us about how and when you were diagnosed with RA?  About 15 years ago. I was a very "outdoorsy" type person, with an active outdoor job. It started with really bad inflammation of a tendon in my hand, to the point where my finger would be locked bent. By the time I'd been referred and diagnostics completed, I could barely walk round the block with my dog in the evening , having been used to going several km each night. * How has RA affected your life since then? I am lucky compared to some. My RA is well controlled by medication. I've had to learn to slow down and pace myself a bit. But I can still work and look after my garden and walk my dogs. I take less risks - I used to do things like go down the stairs two at a time. I'd never do that now. I take the lift when I could take the stairs. I only buy pans with two handles, so I can lift with both hands. I dread the person with the robust handshake. I've had to accept that a greater proportion of my life will be spent in doctors waiting areas than the average person. But mostly I try hard to make sure it affects my life as little as possible. * What are the worst parts of having RA? That it gets confused with osteo-arthritis. I call my disease RA, never rheumatoid arthritis. Because as soon as people hear the word "arthritis" they say "oh, I've got that". Everyone over the age of 35 has osteoarthritis. It's part of ageing. I have osteoarthritis. But I have RA too. RA is an autoimmune disease. My immune system attacks my joints. Without medication, my body would be in a constant cycle of self destruction and repair. So while the primary symptom is pain, the second is flu like exhaustion. I didn't realise until I got this disease, that the exhaustion of flu is as much the energy costs of repair, as fighting the virus itself. Building bodies is energy intensive. Babies and teenagers can tell you all about how growth demands sleep. That RA is an invisible disease. You would not know I had it. I forgive people giving me dirty looks when I'm sat on the priority seat on public transport and I don't get up for someone who is pregnant or elderly. Also those that might laugh at me for wearing sandals with socks. When shoes are too painful and sandals too cold in winter, I'm wearing sandals with socks. The unseen costs of disability. I'm lucky now to have a well paying job. But there was a time when I was low paid. I'm also lucky that I live in a country with public health care. (I'm immensely saddened by the stories of people who have RA and have ended up with preventable deformities because they couldn't afford the medication I take. Or have ended up addicted to opioids, because pain medication was cheaper.) But there are lots of small unseen costs to a disability that add up. My budget at that time meant I had the money for one extra per week. An item of clothing, a pot of paint for the house etc. After I was diagnosed that went on essentials for my condition, like fuel for the car to get to medical appointments, better quality gloves to protect my hands from the cold, better quality shoes, walking poles etc. Simple stuff, but stuff I couldn't really afford. * How can we help to support someone with RA?  Install a bench for passers-by. When life is like walking around with 5 marbles in your shoes, I quite often find myself sitting on the pavement from lack of other options. Don't be like me. I was the healthy naive idiot who never needed to visit the doctor and thought people who took drugs were falling for health care that was too focused on treating symptoms. When your choice is a lifetime in bed or drugs to treat the symptoms, you will take the drugs. Don't judge people on looks. I think people on this site are better than most at this, but I know and I still need the reminder. * What else would you like to share with us about your life with RA? Disability isn't fair.  We all have troubles.  No one would choose to add another.  I consider myself lucky in the disability lottery. ~~~~⭐~~~~ Thank you for answering our questions, it has been really interesting and a pleasure to find out more about living with ‘RA’.  We are glad that you are an active part of our Community!  Resources:- * NIAMS on Rheumatoid Arthritis [https://www.niams.nih.gov/health-topics/rheumatoid-arthritis] Offers detailed information on the causes, symptoms, diagnosis, and treatment of RA. * Mayo Clinic - Rheumatoid Arthritis [https://www.mayoclinic.org/diseases-conditions/rheumatoid-arthritis/symptoms-causes/syc-20353648]  Provides a thorough overview of RA, including symptoms, causes, risk factors, and treatment options. * NRAS [https://www.nras.org.uk/]    A UK-based charity offering support, information, and advocacy for people with RA. These sites offer valuable resources for understanding RA, managing symptoms, and connecting with others who have the condition. Interviewer was @MistyMagic 
Interview Diaries: Living with Cerebral Palsy
by AffyAvo
Last post
July 22nd
...See more Hello everyone, this is an interview about ‘Living with Cerebral Palsy’ as part of the Cerebral Palsy Awareness Month of March. Our interviewee has requested to remain anonymous during this interview and because of the importance of this discussion about CP we are happy to accept. Thank you for taking the time to answer our questions so we may better learn and understand what it is like to live with Cerebral Palsy (CP) every day. It is our pleasure to find out more. * Can you tell us about how and when you were diagnosed with CP? I was diagnosed with Cerebral Palsy at the age of 3, after my mother noticed delays in my motor development. This diagnosis was attributed to a lack of oxygen to the brain at birth, which occurred when I was born prematurely at 6 months and weighed only 3 lbs. 2 oz., and had to be resuscitated. * How has CP affected your life since then? CP has affected my life since then by limiting my mobility on my left side. However, it has not taken away my ability to enjoy my life. CP has its perks, such as getting in line for a roller coaster and experiencing the unique perspective of CP through concerts and VIP passes. I view it as a gift, as it allows me to see the world from a different perspective. And it has given more stories to write as a writer.  * What are the worst parts of having CP? The worst part of having CP is the lack of understanding from medical professionals, which can make seeking treatment challenging. Additionally, having CP can sometimes lead to days where symptoms flare up and cause immense discomfort, making it seem like CP is having a party in your head. * How can we help to support someone with CP? Supporting someone with CP involves acknowledging their challenges and providing the necessary accommodations. It is important to avoid making assumptions regarding their feelings and coping strategies, as everyone's journey is unique. It is crucial to avoid falling into the trap of inspirational porn and internalized ableism, which can perpetuate unrealistic expectations and judgments. * What else would you like to share with us about your life with CP? When you read that you are in English class and you have read "Pride and Prejudice" by Jane Austen, you might initially expect it to be boring. However, as you delve deeper into the story, you realize that it seamlessly integrates with your own life, captivating your attention and making it almost impossible to put down. That's what living with CP is like; a book with many lessons to be taught  Thank you for answering our questions, it has been really interesting and a pleasure to find out more about living with Cerebral Palsy. For anyone interested in being a part of this, there is a form https://forms.gle/MZ1df1FWtJYHQvuy9 [https://forms.gle/MZ1df1FWtJYHQvuy9]  to express your interest in being interviewed as well as volunteering to interview someone else. Catch up with other Interviews Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewSeriesMasterList_292976/] in our Master List! Want to join the Disability Support Community Team? Find out more Here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] Add or Remove yourself from the taglist here @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @wishfulWillow6962 @WishUponAStar968 @wonderfulRainbow817 @xandia @Xisle @Zed786
Screwed up again
by ShellyZz
Last post
July 12th
...See more I had a video hearing with a disability judge today.  I was waiting for the email link and it never came.  I called them about 15-20 minutes to see if they sent the link or not.  They said it was sent on the 9th.  I don't remember seeing anything like that on the 9th so I can only guess it went to junk mail, which I delete every few days since I get so much of it.  Now I have to wait and hope the judge will give me another chance.  I just feel so bad for wasting everyone's time and once again screwing up.  I could have sworn I was told they'd email the day of the hearing.  And then to make matters worse I still hear my mothers voice.  Laughing at me telling me see I told you, you are a waste of space and can't ever do anything right. I just hate myself so much right now.  And now I have to wait longer to see if one the judge will give me another chance, and two I have to wait longer to see if I can even get disability.
Hurt and hurt
by WomensLiveMatters2074
Last post
May 31st
...See more Everyday due to my disability i don't know what to do it hurts me it breaks me i m fed up I m done I feel none likes me n ignore due to my disability 
Hi. In way health related. Wanted try write and see how it goes..
by xSomeone
Last post
May 27th
...See more Hi Colitis, Chon's dease or IBS like. Links, advices or Else, knowlage, may think can maybe help Thanks a Lot, if can sure something, appriciated!! ♥️ [Hope posted ok place]
Interview - Living with CFS!
by MistyMagic
Last post
May 15th
...See more Interview Diaries - Living with CFS/ME Hello everyone, this is an interview about one person’s experience of ‘Living with Chronic Fatigue Syndrome (CFS)’ as part of our raising awareness for International ME/CFS Awareness Day, May 12th! Our interviewee has requested to remain anonymous during this interview and because of the importance of this discussion about chronic fatigue syndrome, we are happy to accept. Thank you for taking the time to answer our questions so we may better learn and understand what it is like for you living with chronic fatigue syndrome every day. It is our pleasure to find out more. * Can you tell us about how and when you were diagnosed with CFS?  ME/CFS stands for myalgic encephalomyelitis / chronic fatigue syndrome. My symptoms began in late 2022 and have since worsened, and I was diagnosed with ME/CFS in early 2023, by a GP.  The diagnostic criteria for chronic fatigue is: * More than 6 months of significant exhaustion * Post-exertional malaise (This means that the symptoms are worsened by activity/exertion, causing a “crash” or a significant increase in symptoms. Triggering factors can range from physical, cognitive, or social activities, stress, and even extreme temperatures. Basically like getting burnout but from the simplest of daily activities. Continued overexertion can cause long-term worsening.) * Unrefreshing sleep, difficulty sleeping, and symptoms are not fully cured by more sleep * Brain fog/concentration and cognitive issues * Orthostatic intolerance (Feeling light-headed/dizzy and other symptoms from standing quickly or being upright. Worse if I’m dehydrated, overheating, or haven’t eaten on time.) There are many other symptoms, but as they vary so much person-to-person, they are not part of the diagnostic criteria. The severity is very different for everyone affected, ranging from a mild reduction in activity, to in extreme cases even being bed-bound and unable to move, talk or care for themselves. Other symptoms for me, include: - Frequent headaches (Especially in temples and behind eyes, but it can be the whole head, or occasionally even a migraine with aura. Worsened by eye strain and sinus issues. Sometimes it radiates to the whole head, and even can feel like tooth pain!) - Circulation and temperature regulation problems: in hot weather this includes dizziness, blood pooling in feet, and lethargy, while in cold weather it can be joint and muscle cramps and aches, very cold hands and feet, and Raynaud’s phenomenon in the fingers. Hydration, compression stockings and clothing layers can help somewhat. - Weakened immune system - Digestion issues and bloating, air hunger, nausea, pain in the glands in my neck, shakiness and weakness, heart palpitations, hair loss, vision issues, chemical sensitivities, and many other seemingly random symptoms, with the worst being exhaustion. * How has CFS affected your life since then? Up until 2022, I was attending high school full time, achieving high marks, fully able to keep up with physical education, etc. with numerous future hopes and plans. In 2023 I attended the start of the school year, kept reducing my schedule, but eventually had to leave and was absent for the remainder of the year as I was too ill to continue in person. My symptoms have progressively worsened, and I am currently classified as having moderate ME/CFS. This year I am attempting online schooling with a reduced workload, but it hasn’t been going well as I am struggling with the time, effort, and focus required, and assignments take far longer than they should otherwise. My friends are graduating high school this year, while I am unsure if, when or how I will finish. Currently, going out is very difficult, and simply a busy morning (e.g., medical appointment, even lots of computer work) leaves me exhausted, weak, nauseous, shaky, wired-but-tired, and forced to rest.  It was something we never expected to happen and quickly had a massive impact on my life. * What causes CFS and is it lifelong? The exact cause is not known, however, many affected people have some idea what triggered it for them.  This can vary, from a virus or infection such as COVID or glandular fever, prolonged stress or physical trauma (such as trauma, heatstroke, sleep deprivation or concussion), environmental factors such as mold (either acute exposure or living in a water-damaged building), heavy metals, toxic chemicals, and others. There are many other possible triggering factors, and it can often be a combination of factors that take a toll on the immune system and end up triggering it. It can also be linked to another related condition.  It is not a condition you are born with, however, there may be a genetic susceptibility - an inherited higher chance of developing if exposed to certain factors. Many other related conditions can have an overlap of symptoms or co-exist, and around half of long COVID patients comply with the diagnostic criteria for chronic fatigue. There is also a lot more awareness of and research into ME/CFS now too though, due to such a large increase in affected people because of long covid. In my case, long term exposure to mould at home, which we were unaware of, was a major trigger, with symptoms eventually worsening to the extent we had to relocate multiple times and stay with family. Despite improving my symptoms this was tiring and disruptive.  Some people recover or improve after only a few years while others can have it for decades. Often people are unsure what exactly helped them recover, but rest, pacing and avoiding triggers can be helpful (although certainly easier said than done 🙂). It is also common to get better and then relapse some time later. * CFS is an ‘invisible disability’ How can we help to support someone with CFS?  Just being understanding about it I guess. Energy/capacity can vary from day to day, and sometimes symptoms can be triggered or worsened by multiple different factors (like sleep quality, weather, exertion, foods, fragrances, light and sound, and multiple others).  Might not look sick: and we only go out when we’re well enough  Having to cancel, delay or modify plans is a very frequent issue with CFS. Some doctors (including specialists!) don’t know a lot about it, nor do many people in schools, workplaces, etc. As a teenager, I am lucky to have the support of my family, and also to not have the financial impact of being unable to work. Common Misconceptions: * It is not something you can just “push through” and it goes away (in fact, this can be very harmful). You wouldn’t try to run a marathon with the flu… I guess that's sort of what it feels like. * It is certainly not fake, and not laziness, nor psychological, but in fact a serious neurological and immune condition. * It is not improved by exercise - graded exercise therapy used to be the recommended treatment but it is now known it can actually be harmful due to post exertional malaise. --------------------------------------------------------------------------------------------- ME/CFS can be described as being like. . . .  “a battery which never fully charges and goes flat very quickly.” (Better Health Victoria [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs#:~:text=Cells%20in%20people%20with%20ME/CFS%20are%20like%20a%20battery%20which%20never%20fully%20charges%20and%20goes%20flat%20very%20quickly.]) “[People with chronic fatigue] have been described as “missing people”, because as their symptoms get progressively worse, they disappear from employment and much of public life.” (Sydney Morning Herald) [https://www.smh.com.au/national/chronic-fatigue-syndrome-the-missing-people-enigma-20180929-p506u6.html] ------------------------- Thank you for answering our questions, it has been really interesting and a pleasure to find out more about living with CFS. Going forward, and I am sure everyone joins with me, we wish you all the luck in the world. Resources: World ME alliance [https://worldmealliance.org/] | Factsheet Rough guide to ME/CFS [https://me.ecch.org/rough-guide-to-me-cfs/] UK NICE guidelines [https://www.nice.org.uk/guidance/ng206/chapter/Recommendations]  Emerge AU [https://www.emerge.org.au/what-is-mecfs/] | Supporting a friend with ME/CFS [https://www.emerge.org.au/how-to-support-your-friend-who-lives-with-me-cfs-or-long-covid/] BetterHealth [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs], Health Direct [https://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs-me] ME/CFS management guidebook [https://batemanhornecenter.org/education/mecfs-guidebook/] Awareness day [https://www.cdc.gov/me-cfs/resources/awarenessday.html]
Living With 'Meniere's Disease'
by MistyMagic
Last post
April 29th
...See more Interview Diaries Hello everyone, this is an interview about ‘Living with Meniere’s Disease’ as part of our Disability Diaries series. Read more about them here  [https://docs.google.com/forms/d/e/1FAIpQLSccW4qp5h5tKSX7MgI3-sGjNAG6fbUql-rN2TN4o8RoJLfSyw/viewform]Catch up with other Interviews Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewSeriesMasterList_292976/] in our Master List! This is an interview with @SlowDecline48 about his life and how he lives with Meniere’s disease. Ménière's disease (MD) is a disease of the inner ear that is characterized by potentially severe and incapacitating episodes of vertigo, tinnitus, hearing loss, and a feeling of fullness in the ear. Typically, only one ear is affected initially, but over time, both ears may become involved. Episodes generally last from 20 minutes to a few hour or sometimes days. The time between episodes varies. The hearing loss and ringing in the ears can become constant over time. Thank you for taking the time to answer our questions so we may better learn and understand what it is like to live with Meniere’s Disease (MD) every day. It is our pleasure to find out more. * Can you tell us about how and when you were diagnosed with Meniere’s?  My diagnosis was in late March, 2017. My general physician sent me to an ENT doc, who did a few tests including eye tracking (of his finger). But I did some online research before the appointment; by the time the ENT doc told me I had Meniere’s, I’d already figured it out. * How has Meniere’s affected your life since then? Do you find your hobbies have changed? It has greatly reduced the quality of my life (which wasn’t all peaches & cream to begin with). I’ve been stuck inside my apartment for as much as four days in a row, or slightly more. My housekeeping is slim to nonexistent most of the time, though I don’t leave food out. My art & crafts–a way of life, not a mere hobby–have less output now. A mildly ironic twist: in adapting to my condition I finally learned how to use watercolor brushes–until the onset of Meniere’s I could do many things but I couldn’t paint at all. I cannot maintain the intense focus for hours at a time that I used to have, so in all other ways my art is nothing like it once was. I’ve learned the hard way not to attempt any complex task or one requiring significant short-term memory during a flareup, because when I try, I make dumb mistakes. That’s right: Meniere’s can make you stupid. It’s kinda like having superpowers–in reverse. I don’t have much of a social life…am trying to change that now, but it’s difficult. I haven’t driven a car since mid-2020 when the last car I had started to die…I could probably drive okay now but I’ve had sudden flareups when I was behind the wheel. It was truly scary. Only by luck & my keeping cool & focusing on the road did I avoid hitting anything or anyone. Oddly, I have a better sense of balance on my bicycle than I do on my own feet. * What are the worst parts of having Meniere’s? That’s a good question… Physically it’s the head pain & vertigo. When it flares up, well…imagine getting coldcocked by Mike Tyson, or Manny Pacquiao. The pain doesn’t always come that quickly but it can, & sometimes does, get that intense. When that happens I have to stop whatever I’m doing & sit down, or lie down. Otherwise, the worst aspect is the imposed limitations. Like most people I like salty foods, but I can’t eat any…gotta avoid pickles, anything pickled in brine. As I said, I don’t have much of a social life. My romantic life is nonexistent (Meniere’s is not the only reason, though). There are so many things I either could do or used to do, that I can’t do anymore. It’s depressing, truly. * Can you share with us ways that make you feel better or that improve your life? It’s not that I feel “better” so much as cope with it until the flare is finished & my ears/head calm down. Long before my diagnosis I tried to drink enough water every day; these days I’m more serious about it than ever. I never consume less than 3/4ths of a gallon, & more if I have energy & am physically active &/or spend time outdoors in the summer. Dehydration aggravates Meniere’s & is bad for your health in general. Aside from that, if the flareup is moderate then even if I can’t focus enough to do complex tasks, I might watch stuff on YouTube or listen to music…sometimes I can still read a little. If you have Meniere’s or any similar ailment then buy a few pairs of earbuds: one for your phone, one for your laptop, extras in case you lose the pair you normally use. When you’re having an attack, stick ‘em in your ears & crank up the sound. Almost any kind of music will do, but I prefer ambient stuff. Dark ambient works when I’m in the mood for it. Anything that’s soothing & lasts an hour or more should work great. Classical guitar does not work because it’s too quiet to compete with the ringing in my ears. * How can we help to support someone with Meniere’s during an attack?  I don’t see how that’s possible. When it flares up it flares up…there isn’t much that can be done. * From reading the information it seems some sufferers may be facing hearing loss, does that affect you? Yes. I have a tiny bit of hearing loss in my right ear. So far I can still hear everything I need to, but that will change as time passes. If I had my way, all the parts of my inner ears would’ve been removed right after my diagnosis. That would mean total deafness, of course, but if that means the head pain & vertigo go away then I’ll gladly agree to the rest of my life being a silent movie. * What else would you like to share with us about your life with Meniere’s? It stinks, like week-old roadkill. Useful Resources for more information:- https://www.menieres.org.uk/information-and-support [https://www.menieres.org.uk/information-and-support]  https://www.american-hearing.org/disease/menieres-disease/ [https://www.american-hearing.org/disease/menieres-disease/] https://menieresresourcesinc.org/ [https://menieresresourcesinc.org/]  https://www.mindovermenieres.com/menieres-disease-triggers/ [https://www.mindovermenieres.com/menieres-disease-triggers/]  Thank you for answering our questions, it has been really interesting and a pleasure to find out more about living with Meniere’s. For anyone interested in being a part of this, there is a form https://forms.gle/MZ1df1FWtJYHQvuy9 [https://forms.gle/MZ1df1FWtJYHQvuy9]  to express your interest in being interviewed as well as volunteering to interview someone else. Catch up with other Interviews Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewSeriesMasterList_292976/] in our Master List! Want to join the Disability Support Community Team? Find out more Here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] Add or Remove yourself from the taglist here @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @cal1860 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @wishfulWillow6962 @WishUponAStar968 @wonderfulRainbow817 @xandia @Xisle @Zed786

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

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We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







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