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POTS
Duckswithmoose November 15th, 2017

Postural Orthostatic Tachycardia Syndrome sounds pretty intimidating, I know. But it's better known by the acronym POTS.

Let's break that down:

Postural- When I stand up, my symptoms get a whole lot worse

Orthostatic- Kinda redundant, means "relating to an upright posture"

Tachycardia- My heart rate goes through the roof when I stand, and shoots back down when I sit

Syndrome- It's just a collection of symptoms, not necessarily with a root cause

How does it affect me? Well, for starters I'm on more meds than I care to admit (we're talking double digits). It also means that I can pass out- a lot. Without getting into too many specifics in this post, I have missed quite a bit of school, been in a lot of pain, and frequently can't get out of bed.

Hope this was a little bit informative. :)

9
MeaningfulSilence November 16th, 2017

@TCo

Hi @TCo !

Thanks for this thread ! yes

Take good care for yourself !
ElanortheFair November 17th, 2017

I'd also like to add that it's causes dizziness if you don't eat enough or if there isn't enough salt in the diet. For me as well it causes morning sickness.

Thanks for mentioning my condition it's awesome to be recognised!

@TCo

1 reply
Duckswithmoose OP November 17th, 2017

@ElanortheFair

I totally agree!

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Harieo November 17th, 2017

I'd never heard of it before, I'm sorry you have to go through that. Thank you for making this thread, I learned something new! laugh

1 reply
Duckswithmoose OP November 17th, 2017

@Harieo

Thanks for taking the time to look at it! It's good to know people care :)

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vivelespatates November 19th, 2017

thank you for this thread !
warmblanket2000 January 1st, 2018

Hi. I'm McKenzie and I've been dealing with a multitude of symptoms for over 18 months now. I see a cardiologist next month who specializes in POTS, and I'll admit, I'm terrified. I'm afraid more of not getting a diagnosis than getting one. I just want answers at this point.
rayzee December 5th, 2018

I know this thread hasn't been posted on in a while, but just wanting to bump it back up. Fellow POTSie here! smiley
courageousteacup January 7th, 2019

I also have POTS. I'm affected any time I change to a "higher" position (laying to sitting or sitting to standing). I also cannot bend down even slightly, which makes it very hard to take care of myself.

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