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Weekly Check In August 15-21

wonderfulRainbow817 August 16th, 2022

positive-life-quotes-dolly-1582061857.jpg?crop=1xw:1xh;center,top&resize=980:*

[Group of people splashing in water with quote by Dolly Parton saying "If you don't like the road you're walking, start paving another one."]


At many times it can be a challenge being disabled. One may not be able to do what they once could or may have to suddenly adapt to a lot of things. Ultimately there is no one set path so as Dolly says - pave your own path.

When you get bumps in the path, how do you adjust to make the path smooth?

What has been the hardest path you've had to pave so far in life?

How can we support you?


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AffyAvo August 19th, 2022

Some of the hardest things have been in relation to getting diagnoses which are really important for some of my conditions so they can be managed appropriately. I still do not have all of them. I do the best that I can and keep advocating for myself.

Lately things have been rough due to an allergic reaction to prescription eyedrops. I do not have another prescription yet I feel safe using and it seems to take a long time to recover from that with flareups the pop up on that process. It makes my presence here more unpredictable plus typos more common.

1 reply
wonderfulRainbow817 OP August 20th, 2022

@AffyAvo, hopefully they find a prescription that works for you soon so you can have some relief!

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theboymoana August 21st, 2022

i don’t know how adjust bumps is just when things get really hard I cry a lot and just I don’t know how to fix things or make easier but my family helps me

hardest path is deal with epilepsy and now medicine not working right so I have hard time now with so much seizures

I just need support of people be nice because is a lot in chat rooms lately being mean to me and makes me sad

1 reply
wonderfulRainbow817 OP August 23rd, 2022

@theboymoana, I am sorry you haven't felt supported in the chatrooms lately. I can assure you that you have my support the full way!

Seizures are hard, I can relate. It is scary, frustrating, and sad at times. It is okay to cry though as it just shows that you have emotions and lets others see how you are feeling.

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OneErased August 23rd, 2022

@wonderfulRainbow817

When you get bumps in the path, how do you adjust to make the path smooth?

Replan my routines. That's what my life is.



What has been the hardest path you've had to pave so far in life?

Learning a new way to live with my problems, while trying to let go of my past that tends to always be there.



How can we support you?

Doubt there's really away. At least the check-in questions give me something to concentrate on for a moment.

1 reply
wonderfulRainbow817 OP August 23rd, 2022

@OneErased, I think with adapting it is always about going down a new path. It isn't always easy but sometimes a new path ends up being better than the original path. Keep your head up!


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