Endometriosis and Me: an interview with @Lilyfae00
Welcome to the inclusivity diaries where we interview people who have disabilities and conditions, raising awareness within the 7Cups community. Today I’ve got the pleasure of interviewing a member named @Lilyfae00.
Q: Welcome Lily, to this interview, let’s start with an icebreaker first of all, so one of my favourite questions I like to ask is, if you were the weather, what would be your forecast right now?
A: I feel like I am a cloud with a little rain, feeling the warmth of the sun behind me and witnessing a rainbow emerging. :D
Q: Awesome, right now I would say I’m quite sunny but cold, brrr, hopefully, I can warm up soon! How has your week treated you so far?
A: My week has been going well, with ups and downs.
Q: Today we’re talking about your conditions you’d like to raise awareness, because obviously when we’re online, we can’t see what you go through on a regular basis so I would love to get to know you better, why don’t you start with letting us know what disabilities or conditions you have?
A: I have Endometriosis (which also causes central sensitization, migraines, chronic pelvic pain, and gluten and soy intolerance for me)
Q: You mentioned you have Endometriosis, in your own words for those who have never heard of it before, what is it?
A: Endometriosis is a condition where tissue similar to the lining of the uterus grows outside of the uterus, it can attach to other organs and causes lesions, cysts, scarring and inflammation. Endometriosis has different stages from superficial Endometriosis to deep infiltrating Endometriosis. (The symptoms do not always correlate to the stage of the condition, someone with superficial Endometriosis can have severe pain while someone with deep infiltrating Endometriosis may not experience any symptoms at all)
From experiencing symptoms to getting an actual diagnosis took 8 years because doctors normalise the symptoms and the only way to officially diagnose Endometriosis is through keyhole surgery (laparoscopy).
Q: Is there any treatment for Endometriosis?
A: Endometriosis is chronic and doesn’t have a cure yet, because the cause of Endometriosis is unknown. Treatment mostly consists of (clean up) surgery and hormonal treatment.
I have had a cleanup surgery with no success, I tried different kinds of painkillers and hormones all with little to no effect and I have been to 3 different hospitals for treatment.
Q: Is there anything else you would like others to learn about Endometriosis?
A: I think it's important for people to know how it affects someone's life, that it's not just painful periods and that it can be very isolating and life-changing, one day I can be fine and walk around happily when the next day I’m in excruciating pain, unable to walk or do daily tasks. A lot of people who just learn about Endometriosis underestimate the condition, Endometriosis can even result in the removal of organs. It’s chronic and doesn't have a cure, even with surgery and treatment Endometriosis can still affect your life daily. If you know someone who struggles with Endometriosis or you are struggling with it yourself, know that you aren’t alone.
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Note: The interviewee wanted to have two parts to this interview, this is part one of two, if you’re interested to read the second part feel free to comment here and I will tag you on there when it is ready.
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If you are interested in participating in this series, please fill out this form. We’re all about wanting to raise awareness with the 7Cups community and if you feel happy educating us, we’d love to hear from you! You can also use the link above to apply to be an interviewer, we would appreciate you helping us out!
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