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Pain? P A I N? PAIN!PAIN!PAIN!PAIN?
by MistyMagic
Last post
6 hours ago
...See more February brings the start of the Disability Support Community focus on Pain! We all get pain. Some of us get pain sometimes. Some of us get pain most of the time. Some of us get pain all of the time! So whatever your thoughts on pain, or level of daily pain, or threshold of pain (and we will talk more about that later on) read on and let's find out more about pain together! This will be part of the 'Pain Cafe' series that will include open chats in the 'Disability Support' [https://www.7cups.com/chat/?c=2_b0dd39dc0ad3f07akKj6u2oym2BA4i8pC6eGFA] room, as well as hosted discussions (hosts wanted! message me!) [https://www.7cups.com/@MistyMagic] that will be advertised in this thread so please reply if you want to be tagged about future posts, and discussions in this series. The 'Pain Cafe’ is somewhere informal that is a safe space for us to learn and share together. We can come together and have a coffee, tea, or juice, and choose our favourite cake or cookie too! With the bonus of no calories or crumbs! First let's spend a little time discussing “What Is Pain?” Pain is weird, right? It’s both a physical and emotional experience, sometimes sharp and immediate, other times dull and lingering. It’s your body’s way of saying, “Hey, something’s not right,” whether that’s a stubbed toe, a heartbreak, or even stress manifesting as a headache. But pain isn’t just about suffering—it’s also a teacher. It tells you where your limits are, forces you to pay attention, and even helps you grow. Ever notice how people who’ve been through tough times often have a deeper sense of empathy? Pain shapes you, for better or worse. And then there’s the strange part—how pain can sometimes be subjective. Two people can experience the same injury but react completely differently. Some folks push through insane amounts of pain (think athletes or soldiers), while others feel every tiny discomfort intensely. It’s all about perception, past experiences, and even brain chemistry. Oh, and let’s not forget the bizarre cases where pain doesn’t work the way it’s “supposed to.” Like phantom limb pain - when someone loses a limb but still feels sensations where it used to be. Or chronic pain, which can be where your body keeps sounding the alarm even when there’s no real injury. Or chronic pain, long-term pain from constant re-injury or inflammation. At the end of the day, pain is just part of being human. It sucks, sure, but it also reminds us we’re alive. If pain is a warning signal, listen to it and allow healing. If pain is chronic or misleading, it can be important to retrain the brain and nervous system to stop overreacting. Learning to recognize the difference allows for better pain management and quality of life. Pain is a complex sensory and emotional experience that signals potential or actual harm to the body. It’s essentially the body's warning system, alerting you to injury, illness, or danger. Pain can be categorized in different ways, such as: * Acute pain – Short-term, typically caused by injury or illness (e.g., a cut, burn, or broken bone). * Chronic pain – Long-lasting pain (lasting more than three months) that can sometimes persist even after the initial injury has healed (e.g., arthritis, nerve damage). * Neuropathic pain – Pain caused by nerve damage or dysfunction rather than an obvious physical injury (e.g., sciatica, phantom limb pain). How Does the Brain Perceive Pain? The perception of pain involves a complex process that includes sensory input, nerve signaling, and brain interpretation. Here’s how it works: * Detection (Nociception): Specialized nerve endings called nociceptors detect harmful stimuli (heat, pressure, chemicals, or injury). These receptors are located in the skin, muscles, joints, and organs. * Transmission: The nociceptors send electrical signals through sensory neurons to the spinal cord. From there, the signals travel up to the brainstem and thalamus, which act as relay centres. * Processing in the Brain: The thalamus sends the pain signals to different brain regions: * Somatosensory Cortex: Determines the location and intensity of pain. * Limbic System: Processes the emotional aspects of pain. * Prefrontal Cortex: Helps with decision-making and how to react to the pain. Pain Perception: Your brain interprets the signals as pain and decides how to respond—whether to move away, seek help, or endure it (we all know that feeling don't we?) Modulation: The brain can amplify or suppress pain using neurotransmitters like endorphins (natural painkillers) and serotonin. This explains why adrenaline can make you temporarily "ignore" pain in emergencies. Why Does Pain Feel Different for Everyone? Pain perception varies based on: * Genetics & Biology (Some people have a higher pain threshold). * Psychological State (Stress and anxiety can heighten pain). * Past Experiences (Chronic pain sufferers often have altered nerve responses). Pain isn’t just a physical sensation—it’s also influenced by mood, expectations, and memory. This is why two people can have the same injury but experience pain differently. Over to you! Q. What do you think— is pain a necessary evil, a friend, or just a glitch in evolution? Q. Do you have pain? How would you describe it? Sharp, Hot? Stabbing? Dull? Share with us. Q. Tag someone that you think might be interested in joining in with our 'Pain Cafe' and the series of forum posts here too!
MistyMagic profile picture
Boom! or Bust! All about pacing . . .
by MistyMagic
Last post
6 hours ago
...See more This post is part of our new series on  ⚡P A I N !💥 All About. . . Boom!⬆️ Bust 🔽 and Pacing 🟰 The concept of "boom-bust" and “pacing” particularly in the context of disabilities, refers to a pattern of energy expenditure characterized by alternating periods of high activity or productivity ("boom") and subsequent periods of low energy, exhaustion, or rest ("bust"). This approach is often employed by individuals with chronic illnesses, disabilities, or conditions that cause fluctuations in energy levels, such as chronic fatigue syndrome, fibromyalgia, or certain types of disabilities affecting energy levels. How often have you started out at the beginning of an activity or project full of energy (Boom) racing along only to begin feeling tired, but still you carry on because you don’t want to stop, or you just want to finish what you are doing, and then the next day you are so very tired and in pain or exhausted and cannot do anything (Busted) and the recovery takes a few days or even longer? Here's a breakdown of the “boom-bust” and “pacing” approach and its implications for individuals with disabilities: Understanding Energy Levels: Boom-bust pacing recognizes that individuals with disabilities often have limited energy reserves, which can fluctuate from day to day or even within the same day. It emphasizes the importance of being attuned to one's own energy levels and learning to manage them effectively. Managing Activities: Rather than trying to maintain a constant level of activity throughout the day, boom-bust pacing involves identifying periods of higher energy (boom) and using them for more demanding tasks or activities, while conserving energy during periods of lower energy (bust) through rest or less demanding activities. Prioritizing Tasks: Individuals practicing boom-bust pacing often prioritize tasks based on their energy levels. Important or demanding tasks are tackled during periods of higher energy, while less critical tasks may be deferred to periods of lower energy. Ask yourself these questions and think about your answers, then jot them down so that you have a list of your priorities, you can add them in your reply to this post. * What is important? - read all the points below before deciding! * What MUST I do? * What do I want to do? * What do others want me to do? * What am I expected to do? (may include deadlines) * What can I do? Avoiding Overexertion: By pacing activities and balancing periods of activity with rest, individuals can reduce the risk of overexertion, which can exacerbate symptoms or lead to "crashes" where energy levels plummet (bust), sometimes for an extended period as the recovery needed after a “boom” can be extensive and disproportionate to the gain. Examples:  You may want to finish weeding a flower border and do it all in one afternoon, the flower border looks great but you end up exhausted in bed for 3 days. If you had spread it over 2 afternoons then you would not end up exhausted. You have an important exam next week, so you stay up all night studying. The next day you cannot get out of bed because of the body aches and exhaustion. If you had split the studying into short periods then you would not have crashed so badly and could have revised for a few hours every day.  Remember to STOP BEFORE the pain is too bad or STOP BEFORE you feel exhausted, that way the rebound to recovery is faster, and smoother, and repeatable. Take a look at https://www.pomodorotechnique.com/ [https://www.pomodorotechnique.com/]  splitting studying or any task into shorter periods. The original technique has six steps: * Decide on the task to be done. * Set the Pomodoro timer (typically for 25 minutes). * Work on the task. * End work when the timer rings and take a short break (typically 5–10 minutes). * Go back to Step 2 and repeat until you complete four pomodoros. * After four pomodoros are done, take a long break (typically 20 to 30 minutes) instead of a short break. Once the long break is finished, return to step 2. ( a pomodoro is an interval of work time). Also the Spoon Theory [https://www.7cups.com/forum/DisabilitySupport_47/ArticlesResourcesConditionSpecificInformation_458/SpooniesandDropitlikeitsPOTSshirts_20186/] 🥄🥄🥄🥄🥄🥄 and Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/BoomorBustAllaboutpacing_327034/] Flexibility and Adaptability: Boom-bust pacing requires flexibility and adaptability, as energy levels can vary unpredictably. It's important for individuals to listen to their bodies, adjust their plans as needed, and never feel guilty for needing to rest or modify their activities. Communication and Advocacy: In work or social settings, it's essential for individuals practicing boom-bust pacing to communicate their needs effectively and advocate for accommodations or adjustments when necessary. This might involve explaining their pacing approach to employers, colleagues, or friends and asking for understanding and support. Self-Care and Wellness: Boom-bust pacing is ultimately about self-care and managing one's health effectively. It involves not only managing physical energy but also attending to emotional and mental well-being, recognizing the importance of rest, relaxation, and activities that bring satisfaction, happiness, and joy. Overall, boom-bust pacing can be a valuable strategy for anyone, but more so for individuals with disabilities to manage their energy levels and navigate daily life more effectively. By learning to listen to their bodies, prioritize tasks, balance activity with rest ie: pacing themselves, individuals can optimize their functioning and improve their quality of life despite the challenges posed by their disabilities. Chronic Pain Resources  Here Living with Chronic pain Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/] More on Pacing Here [https://www.cfsselfhelp.org/library/pacing-numbers-using-your-heart-rate-to-stay-inside-energy-envelope] Q [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/]uestions to ask yourself, please reply below! * Do you recognize yourself as a ‘boom-bust’ or ‘pacing’ individual? * Have you ever used this method? If you haven’t will you try it in the future? If not why not? If you do does it help? * Can you remember one time when you carried on when you should have stopped and rested? What happened? * Do you have tips to share with us, please do! Consider joining the Disability Community Support Team. More information Here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] Tag list @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @wishfulWillow6962 @WishUponAStar968 @wonderfulRainbow817 @xandia @Xisle @Zed786 Add or Remove yourself in this thread HERE [https://www.7cups.com/forum/disabilities/WeeklyCheckin_1053/2024TaglistDisabilitySupport_202464/] See more on pain here Pain Cafe Serie [https://www.7cups.com/forum/disabilities/CommunitySpace_227/PainPAINPAINPAINPAINPAIN_345746/]s 
CaringBrit profile picture
2024 - Taglist Disability Support
by CaringBrit
Last post
2 days ago
...See more This thread controls an auto-updating tag list. To see the current list, go to Disability Support [https://rarelycharlie.github.io/taglist?3ec913e645043cdcd31f94a3324ab37c]. To add yourself to this tag list, press the Post to Thread button above and write the exact words Please add me. To remove yourself from this tag list, press the Post to Thread button above and write the exact words, Please remove me. This Taglist will be used for the Daily Check-Ins could even be used for Events etc. What happens after you join the tag list? You will notice an icon for a little bell up in the right corner of your screen. there is a letter icon, then the bell, then a jar, and then the icon for your account. That bell will tell you about your notifications. When we tag you, it will show up as a number on the bell. Click on the bell and a drop-down menu will appear and it will show you the link to the post where we tagged you. Current taglist as at  Feb 1st 2025 @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @cal1860 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @communicativePond1728 @CompassionateMoon4024 @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enigmaticOcean8813 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @greekcatperson @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @JustLikeMellie @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @nessdamess @NevaehRose @NotKhan2 @Ofenkartoffel @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @reservedOwl6476 @RiggsMortis @sabeyesofblue3535 @Seachele @SereneEnergy9119 @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @WishUponAStar968 @wonderfulRainbow817 @xandia @xxParkerxx @Zed786 Updated by MistyMagic
MistyMagic profile picture
Pain? P A I N? PAIN!PAIN!PAIN!PAIN?
by MistyMagic
Last post
6 hours ago
...See more February brings the start of the Disability Support Community focus on Pain! We all get pain. Some of us get pain sometimes. Some of us get pain most of the time. Some of us get pain all of the time! So whatever your thoughts on pain, or level of daily pain, or threshold of pain (and we will talk more about that later on) read on and let's find out more about pain together! This will be part of the 'Pain Cafe' series that will include open chats in the 'Disability Support' [https://www.7cups.com/chat/?c=2_b0dd39dc0ad3f07akKj6u2oym2BA4i8pC6eGFA] room, as well as hosted discussions (hosts wanted! message me!) [https://www.7cups.com/@MistyMagic] that will be advertised in this thread so please reply if you want to be tagged about future posts, and discussions in this series. The 'Pain Cafe’ is somewhere informal that is a safe space for us to learn and share together. We can come together and have a coffee, tea, or juice, and choose our favourite cake or cookie too! With the bonus of no calories or crumbs! First let's spend a little time discussing “What Is Pain?” Pain is weird, right? It’s both a physical and emotional experience, sometimes sharp and immediate, other times dull and lingering. It’s your body’s way of saying, “Hey, something’s not right,” whether that’s a stubbed toe, a heartbreak, or even stress manifesting as a headache. But pain isn’t just about suffering—it’s also a teacher. It tells you where your limits are, forces you to pay attention, and even helps you grow. Ever notice how people who’ve been through tough times often have a deeper sense of empathy? Pain shapes you, for better or worse. And then there’s the strange part—how pain can sometimes be subjective. Two people can experience the same injury but react completely differently. Some folks push through insane amounts of pain (think athletes or soldiers), while others feel every tiny discomfort intensely. It’s all about perception, past experiences, and even brain chemistry. Oh, and let’s not forget the bizarre cases where pain doesn’t work the way it’s “supposed to.” Like phantom limb pain - when someone loses a limb but still feels sensations where it used to be. Or chronic pain, which can be where your body keeps sounding the alarm even when there’s no real injury. Or chronic pain, long-term pain from constant re-injury or inflammation. At the end of the day, pain is just part of being human. It sucks, sure, but it also reminds us we’re alive. If pain is a warning signal, listen to it and allow healing. If pain is chronic or misleading, it can be important to retrain the brain and nervous system to stop overreacting. Learning to recognize the difference allows for better pain management and quality of life. Pain is a complex sensory and emotional experience that signals potential or actual harm to the body. It’s essentially the body's warning system, alerting you to injury, illness, or danger. Pain can be categorized in different ways, such as: * Acute pain – Short-term, typically caused by injury or illness (e.g., a cut, burn, or broken bone). * Chronic pain – Long-lasting pain (lasting more than three months) that can sometimes persist even after the initial injury has healed (e.g., arthritis, nerve damage). * Neuropathic pain – Pain caused by nerve damage or dysfunction rather than an obvious physical injury (e.g., sciatica, phantom limb pain). How Does the Brain Perceive Pain? The perception of pain involves a complex process that includes sensory input, nerve signaling, and brain interpretation. Here’s how it works: * Detection (Nociception): Specialized nerve endings called nociceptors detect harmful stimuli (heat, pressure, chemicals, or injury). These receptors are located in the skin, muscles, joints, and organs. * Transmission: The nociceptors send electrical signals through sensory neurons to the spinal cord. From there, the signals travel up to the brainstem and thalamus, which act as relay centres. * Processing in the Brain: The thalamus sends the pain signals to different brain regions: * Somatosensory Cortex: Determines the location and intensity of pain. * Limbic System: Processes the emotional aspects of pain. * Prefrontal Cortex: Helps with decision-making and how to react to the pain. Pain Perception: Your brain interprets the signals as pain and decides how to respond—whether to move away, seek help, or endure it (we all know that feeling don't we?) Modulation: The brain can amplify or suppress pain using neurotransmitters like endorphins (natural painkillers) and serotonin. This explains why adrenaline can make you temporarily "ignore" pain in emergencies. Why Does Pain Feel Different for Everyone? Pain perception varies based on: * Genetics & Biology (Some people have a higher pain threshold). * Psychological State (Stress and anxiety can heighten pain). * Past Experiences (Chronic pain sufferers often have altered nerve responses). Pain isn’t just a physical sensation—it’s also influenced by mood, expectations, and memory. This is why two people can have the same injury but experience pain differently. Over to you! Q. What do you think— is pain a necessary evil, a friend, or just a glitch in evolution? Q. Do you have pain? How would you describe it? Sharp, Hot? Stabbing? Dull? Share with us. Q. Tag someone that you think might be interested in joining in with our 'Pain Cafe' and the series of forum posts here too!
MistyMagic profile picture
Boom! or Bust! All about pacing . . .
by MistyMagic
Last post
6 hours ago
...See more This post is part of our new series on  ⚡P A I N !💥 All About. . . Boom!⬆️ Bust 🔽 and Pacing 🟰 The concept of "boom-bust" and “pacing” particularly in the context of disabilities, refers to a pattern of energy expenditure characterized by alternating periods of high activity or productivity ("boom") and subsequent periods of low energy, exhaustion, or rest ("bust"). This approach is often employed by individuals with chronic illnesses, disabilities, or conditions that cause fluctuations in energy levels, such as chronic fatigue syndrome, fibromyalgia, or certain types of disabilities affecting energy levels. How often have you started out at the beginning of an activity or project full of energy (Boom) racing along only to begin feeling tired, but still you carry on because you don’t want to stop, or you just want to finish what you are doing, and then the next day you are so very tired and in pain or exhausted and cannot do anything (Busted) and the recovery takes a few days or even longer? Here's a breakdown of the “boom-bust” and “pacing” approach and its implications for individuals with disabilities: Understanding Energy Levels: Boom-bust pacing recognizes that individuals with disabilities often have limited energy reserves, which can fluctuate from day to day or even within the same day. It emphasizes the importance of being attuned to one's own energy levels and learning to manage them effectively. Managing Activities: Rather than trying to maintain a constant level of activity throughout the day, boom-bust pacing involves identifying periods of higher energy (boom) and using them for more demanding tasks or activities, while conserving energy during periods of lower energy (bust) through rest or less demanding activities. Prioritizing Tasks: Individuals practicing boom-bust pacing often prioritize tasks based on their energy levels. Important or demanding tasks are tackled during periods of higher energy, while less critical tasks may be deferred to periods of lower energy. Ask yourself these questions and think about your answers, then jot them down so that you have a list of your priorities, you can add them in your reply to this post. * What is important? - read all the points below before deciding! * What MUST I do? * What do I want to do? * What do others want me to do? * What am I expected to do? (may include deadlines) * What can I do? Avoiding Overexertion: By pacing activities and balancing periods of activity with rest, individuals can reduce the risk of overexertion, which can exacerbate symptoms or lead to "crashes" where energy levels plummet (bust), sometimes for an extended period as the recovery needed after a “boom” can be extensive and disproportionate to the gain. Examples:  You may want to finish weeding a flower border and do it all in one afternoon, the flower border looks great but you end up exhausted in bed for 3 days. If you had spread it over 2 afternoons then you would not end up exhausted. You have an important exam next week, so you stay up all night studying. The next day you cannot get out of bed because of the body aches and exhaustion. If you had split the studying into short periods then you would not have crashed so badly and could have revised for a few hours every day.  Remember to STOP BEFORE the pain is too bad or STOP BEFORE you feel exhausted, that way the rebound to recovery is faster, and smoother, and repeatable. Take a look at https://www.pomodorotechnique.com/ [https://www.pomodorotechnique.com/]  splitting studying or any task into shorter periods. The original technique has six steps: * Decide on the task to be done. * Set the Pomodoro timer (typically for 25 minutes). * Work on the task. * End work when the timer rings and take a short break (typically 5–10 minutes). * Go back to Step 2 and repeat until you complete four pomodoros. * After four pomodoros are done, take a long break (typically 20 to 30 minutes) instead of a short break. Once the long break is finished, return to step 2. ( a pomodoro is an interval of work time). Also the Spoon Theory [https://www.7cups.com/forum/DisabilitySupport_47/ArticlesResourcesConditionSpecificInformation_458/SpooniesandDropitlikeitsPOTSshirts_20186/] 🥄🥄🥄🥄🥄🥄 and Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/BoomorBustAllaboutpacing_327034/] Flexibility and Adaptability: Boom-bust pacing requires flexibility and adaptability, as energy levels can vary unpredictably. It's important for individuals to listen to their bodies, adjust their plans as needed, and never feel guilty for needing to rest or modify their activities. Communication and Advocacy: In work or social settings, it's essential for individuals practicing boom-bust pacing to communicate their needs effectively and advocate for accommodations or adjustments when necessary. This might involve explaining their pacing approach to employers, colleagues, or friends and asking for understanding and support. Self-Care and Wellness: Boom-bust pacing is ultimately about self-care and managing one's health effectively. It involves not only managing physical energy but also attending to emotional and mental well-being, recognizing the importance of rest, relaxation, and activities that bring satisfaction, happiness, and joy. Overall, boom-bust pacing can be a valuable strategy for anyone, but more so for individuals with disabilities to manage their energy levels and navigate daily life more effectively. By learning to listen to their bodies, prioritize tasks, balance activity with rest ie: pacing themselves, individuals can optimize their functioning and improve their quality of life despite the challenges posed by their disabilities. Chronic Pain Resources  Here Living with Chronic pain Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/] More on Pacing Here [https://www.cfsselfhelp.org/library/pacing-numbers-using-your-heart-rate-to-stay-inside-energy-envelope] Q [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/]uestions to ask yourself, please reply below! * Do you recognize yourself as a ‘boom-bust’ or ‘pacing’ individual? * Have you ever used this method? If you haven’t will you try it in the future? If not why not? If you do does it help? * Can you remember one time when you carried on when you should have stopped and rested? What happened? * Do you have tips to share with us, please do! Consider joining the Disability Community Support Team. More information Here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] Tag list @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @wishfulWillow6962 @WishUponAStar968 @wonderfulRainbow817 @xandia @Xisle @Zed786 Add or Remove yourself in this thread HERE [https://www.7cups.com/forum/disabilities/WeeklyCheckin_1053/2024TaglistDisabilitySupport_202464/] See more on pain here Pain Cafe Serie [https://www.7cups.com/forum/disabilities/CommunitySpace_227/PainPAINPAINPAINPAINPAIN_345746/]s 
olivePineapple3146 profile picture
I'm fed up
by olivePineapple3146
Last post
7 hours ago
...See more Any ideas
CaringBrit profile picture
2024 - Taglist Disability Support
by CaringBrit
Last post
2 days ago
...See more This thread controls an auto-updating tag list. To see the current list, go to Disability Support [https://rarelycharlie.github.io/taglist?3ec913e645043cdcd31f94a3324ab37c]. To add yourself to this tag list, press the Post to Thread button above and write the exact words Please add me. To remove yourself from this tag list, press the Post to Thread button above and write the exact words, Please remove me. This Taglist will be used for the Daily Check-Ins could even be used for Events etc. What happens after you join the tag list? You will notice an icon for a little bell up in the right corner of your screen. there is a letter icon, then the bell, then a jar, and then the icon for your account. That bell will tell you about your notifications. When we tag you, it will show up as a number on the bell. Click on the bell and a drop-down menu will appear and it will show you the link to the post where we tagged you. Current taglist as at  Feb 1st 2025 @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @cal1860 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @communicativePond1728 @CompassionateMoon4024 @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enigmaticOcean8813 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @greekcatperson @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @JustLikeMellie @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @nessdamess @NevaehRose @NotKhan2 @Ofenkartoffel @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @reservedOwl6476 @RiggsMortis @sabeyesofblue3535 @Seachele @SereneEnergy9119 @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @WishUponAStar968 @wonderfulRainbow817 @xandia @xxParkerxx @Zed786 Updated by MistyMagic
Butterfly198440 profile picture
Any have
by Butterfly198440
Last post
2 days ago
...See more Any else have any thse four things Schizoaffective Disorder (mania), Dysgraphia, Compound Adhd, High Fuctioning Autism.  I have may symptoms and struggle daily.  Anyone going through anyone of these with any of these challenges.
BethanyTeal profile picture
What are things you do during the day?
by BethanyTeal
Last post
2 days ago
...See more This is on the topic of the disabled. What are some things which you do during the day? What keeps you busy? Thank you.
MistyMagic profile picture
Self-Advocacy
by MistyMagic
Last post
Monday
...See more Advocating for oneself in health issues can be very important for ensuring you receive the best possible care, but first:-  What is ‘advocating’? It's being able to speak up for yourself rather than relying on others – having the confidence to say or do something when you don't think something is right, or when something needs reviewing, or changing. Sometimes this is called self-advocacy and when it comes to our health that can really be important! Have a goal!  What do you want to achieve? This could be something as simple as ‘understanding what is said to you’, or to ‘get a referral to a specialist’. Or, more complicated such as ‘a change to medication’ or ‘get an explanation on a report’. Be realistic in your choice. It helps to decide your goal or target before you tackle self-advocating. Sometimes it is better or easier to have a close friend, carer, or relative advocate for us, we may be ill or too weak or disabled to be able to self-advocate in which case perhaps suggest they read this post or share the information with them to help both of you advocate successfully. Being disabled or ill with a condition can mean we feel very vulnerable and unable to support ourselves effectively in what can seem to be a very stressful situation like a doctor appointment. That is when preparation can be key to feeling like we have achieved the best. Sometimes we may lack the confidence we need to make the best decisions and that is when learning as much as we can about our disability, condition, or mental health issues really can reap benefits. Here are some strategies to help you effectively advocate for yourself: 1. Educate Yourself * Understand Your Condition: Research your health condition thoroughly. Use reputable sources such as medical journals, trusted health websites (like Mayo Clinic or WebMD), and patient advocacy groups. * Know Your Medications: Learn about the medications you're prescribed, including side effects, interactions, and the reason for taking them. 2. Communicate Clearly * Be Honest and Open: Clearly describe your symptoms, concerns, and how you're feeling. Don't downplay or exaggerate your condition. * Ask Questions: If you don't understand something, ask your healthcare provider to explain it in simpler terms. Questions like "Can you explain that again?" or "What does that mean?" can be very helpful. 3. Be Organized * Keep Records: Maintain a detailed health journal with your symptoms, medications, and any changes in your condition. Bring this journal to your appointments. * Prepare for Appointments: Make a list of questions and concerns before each visit. Prioritize the most important issues to ensure they get addressed. * Take Notes: During the appointment ask if you can take notes so that you remember clearly what is said, or ask a friend or family member to come with you to do this so you can concentrate on what is said and carefully choose a reply. 4. Build a Support Network * Bring an Advocate: Consider bringing a trusted friend or family member to appointments to help you remember information and provide emotional support. * Join Support Groups: Connect with others who have the same condition. They can provide valuable insights and support. 5. Know Your Rights * Patient Rights: Familiarize yourself with your rights as a patient. This includes the right to informed consent, the right to access your medical records, and the right to a second opinion. (not applicable to all countries so please check yours!) * Insurance and Coverage: Understand your health insurance policy, what it covers, and your rights regarding appeals and grievances. If you are in a country that does not routinely need health insurance then look at the applicable information such as ‘PALS’ in the UK,  * Research your Doctor: hospital, or clinic. Know what they can and can’t do for you. Look at their website and read all the information there to familiarize yourself with their stance. 6. Be Assertive, Not Aggressive * Advocate Assertively: Assert your needs respectfully. Use “I” statements like “I need more information about...” or “I’m concerned about...” to communicate without seeming confrontational. * Be Polite: use please and thank-you when needed. * Set Boundaries: If a healthcare provider is dismissive or not listening, it’s okay to seek a second opinion or switch providers. 7. Utilize Resources * Patient Advocates: Many hospitals have patient advocates who can help you navigate the healthcare system. * Online Resources: Use online tools and resources for additional support, such as telemedicine services or patient advocacy organizations. 8. Follow Up * Clarify Instructions: Before leaving an appointment, make sure you understand the next steps, including any follow-up appointments, tests, or treatments. * Monitor Progress: Keep track of your progress and any changes in your condition, and report these to your healthcare provider. Use that journal to keep notes of pain or mobility and your condition. 9. Self-Care and Mental Health * Take Care of Yourself: Maintain a healthy lifestyle, manage stress, and seek mental health support if needed. * Mindfulness and Relaxation: Techniques such as mindfulness, meditation, and relaxation exercises can help manage anxiety related to health issues. Conclusion Advocating for yourself in health matters involves being informed, organized, and assertive while maintaining respectful communication with healthcare providers. By taking these steps, you can play an active role in your healthcare and improve your overall well-being. But. . it isn’t always easy, in fact it can be quite challenging at first. It also takes a strong will to advocate and when we are facing a health problem that can be the last thing that we want to face.  Thoughts For You: ✅ Please share with us your experiences of self-advocacy. ❔Have you tried it, how did it work out? 💡  What tips can you share to help others have a better experience, please share them here. 💭 Might you try this approach in the future?
 profile picture
Pain
by
Last post
Monday
...See more I been dealing ankl e problems like a sprain ankle. , three torn stuff in my foot and noe pain I had. From a operation I had a half a a year ago on ankle. Still in pain and not moble
AffyAvo profile picture
Listeners with a Disability - Supporting those with Disabilities (2024-2025)
by AffyAvo
Last post
Sunday
...See more We had one of these before, but many of the listeners are no longer using 7cups. So here's an updated one. Are you a listener with a disability willing to support others with a disability? Please share here! Also note what your disability is or give as much detail as you're comfortable wtih so that members can find someone with similar issues.
emotionalTalker2260 profile picture
Chronic illness flareup
by emotionalTalker2260
Last post
Sunday
...See more Hi there, so a bit of a rant here  I’ve been diagnosed with hEDS earlier in the year, and I’m currently going through a pretty bad chronic illness Flareup. I don’t really know what to do because it’s never been this bad and gone for this long. I’m heavily fatigued, my stomach isn’t even doing what it should do (not working much), and I’m practically stuck in bed due to constant dizziness and heavy fatigue. And all of this is making me quite miserable to be fair. any tips on what might help? I’m so lost
rainbowgirl10793 profile picture
Struggling
by rainbowgirl10793
Last post
January 25th
...See more I have been doing so well for several years and I’ve hit a bump recently in flare ups. I’m so so tired and in a lot of pain and it’s making it hard to do everyday things. I can go days and days without bathing. I feel like I get home from work and sleep 12-13 hours until it’s time for work again and repeat. I know I’m lucky enough to be able to hold a job, but at what cost? I can’t do literally anything else lately
mailey profile picture
Exhaustion....I'm so tired.*unedited*
by mailey
Last post
January 24th
...See more I could ramble on about my situation and maybe another day I will but I'm just really tired. I'm autistic, have FND and mental health issues that make me disabled and unable to work. I'm struggling to care for myself and barely function but also I've been caring for my sister the past few months who is also disabled and is currently having a stomach issue that we've had to fight so hard just to get her care when it really shouldn't be this *** difficult. I'm angry today. And I feel really alone and I'm trying my very very hardest to stay positive and keep going in hopes that things will feel easier later. Unfortunately I don't think that's the case. I have to work at some point. I have no *** idea how I'm going to do that. My parents don't seem to like me because they never talk to me even though we live in the same *** house and maybe just maybe if they weren't stupid they'd realize that if they just talked to me and helped me and guided me....maybe our relationship wouldn't be so strained. They've traumatized me so bad but at least we all can agree on maintaining basic survival. Just never emotional support I guess. CaUse I'm aN AdUlt nOw🙄 Anyway I have no friends...am queer and disabled and already burnt out. Correction have BEEN burnt out my entire life but it only gets worse each year. I've gone through different traumas in my life and am somehow expected to suck it up despite my chronic exhaustion and "fix myself" because there is no other way other than just dealing with it. I'm sorry. I'm not usually so pessimistic I'm just really tired and it's late and I could really really use a hug right now. I wish I was close to literally ONE person outside of all of this. That would make a world of difference I think. But instead I'm stuck desperately trying to comfort myself but as the years pass it feels like nothing truly works and the isolation and loneliness digs deeper into my chest. Was that darkly poetic? Lmao anyway I'm not gonna leave it on a horrible note. Here's three positives: -I was brave and started therapy -I was brave and made an appointment to talk about trying anxiety meds(I've never had meds before so I'm scared) -My sister isn't in immediate health danger even if the situation is truly awful and not resolved yet. She's technically doing okay and we have time to figure it out. Try again tomorrow....I'm just angry today. Goodnight.❤️

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

There are a number of ways to get involved and be supported. We have a pop up teen chatroom and a 24/7 adult chatroom.

There are guides for Chronic Pain and T2 Diabetes
There are Q&A sections for Disabilities and Chronic Pain

Members may connect with a listener who has disabilities, chronic pain, cancer, diabetes, adhd or autism listed as a topic and there are listeners with disabilities supporting people with disabilities

We encourage people to post new threads and respond to others in the forums! Some good ways to get started are to introduce yourself and to join our tag list to be notified of weekly check ins and events. We also have an Interview Series: if you would be open to sharing more about yourself and want to be interviewed.

Looking to be even more activity in the Disability Community? Join as a leader!

*Note we are inclusive of all disabilities but ADHD and Autism each of their own communities which may be of interest to some of you.

Community Guidelines

🌟 Please be respectful of everybody's thoughts and opinions.

🌟 Don't think you are alone, so please share

🌟 Please be patient if you feel like your concern hasn't been addressed yet; we are working hard to add more leaders and supporters.

🌟 If you have any concerns, reach out to a leader or make a post.

🌟 For Listeners only - please remember that you are here to give support, if you are seeking support then please switch to your Member account.

🌟 Most of all - don't forget to be awesome! You are loved and accepted here, no matter what!

Guidelines For Using AI 


We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







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Group Support Mentor / Teen Star