Skip to main content Skip to bottom nav
Community /

Disability Support

Create a New Thread
Gif Photo Link
September Check In
by AffyAvo
Last post
September 11th
...See more [Peanuts characters look off a dock, at the sunset while leaves swirl around them text states GOODBYE AUGUST Hello September] September can be a shift, some schools are full of people settling into new routines, the weather changes into a new season and pumpkins seem to pop up everywhere. Some of us are also cheering on the Paralympians (check out this post [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/ParalympicsParis2024_335558/])! Are you experiencing and changes or stating something this month? What's a fun activity you are doing this month? How are you doing? Would you like support with anything?
Interview Series - Master List!
by AffyAvo
Last post
September 9th
...See more Our series 'Interview Diaries' allows the community to share their direct living experience with conditions and disabilities and for us to learn from each other. To learn more about Interview Diaries, share as an interviewer or interviewee, and to be notified of new interviews via the taglist please see Call of Applications [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/CallForApplicationsToBeInterviewed_276642/] List of Interview Diaries:- Non-Epileptic Seizures With Audienta! [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/NonEpilepticSeizuresWithAudienta_275839/] Turner Syndrome With @Animeweebu123 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TurnerSyndromeWithAnimeweebu123_276707/] Spending Time With A Surfer @theboymoana [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/SpendingTimeWithASurfertheboymoana_276777/] Learning About FND With @EmpatheticListener0309💜 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningAboutFNDWithEmpatheticListener0309_277278/] Interview about being Deaf with FrenchMarbles [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/InterviewaboutbeingDeafwithFrenchMarbles_277578/] The magical @MistyMagic Tells Her Experiences With Celiac Disease [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TheWholesomeMistyMagicTellsHerExperiencesWithCeliacDisease_277824/] Dissociative Identity Disorder with @DichotomousDetia [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/DissociativeIdentityDisorderwithDichotomousDetia_277991/] An Interview With @AffyAvo on Hereditary Angioedema♥ [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/AnInterviewWithAffyAvoonHereditaryAngioedema_278243/] Endometriosis and Me: an interview with @Lilyfae00 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/EndometriosisandMeaninterviewwithLilyfae00_278539/] PoTS and Me: An Interview with @wonderfulRainbow817 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PoTSandMeAnInterviewwithwonderfulRainbow817_278731/] Tendonitis and Misdiagnosis: Rachel's Experience With Chronic Pain [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TendonitisandMisdiagnosisRachelsExperienceWithChronicPain_278839/] Pervasive Developmental Disorder: Interview with @Goalsforlife [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PervasiveDevelopmentalDisorderInterviewwithGoalsforlife_280227/] WarmLightXO Sheds Some Light On PCOS [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/WarmLightXOShedsSomeLightOnPCOS_280813/] Learning With Lucy: Her Experience With Epilepsy [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningWithLucyHerExperienceWithEpilepsy_284621/] Grab a Cuppa and Learn about Multiple Sclerosis [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewDiariesGrabaCuppaandLearnaboutMultipleSclerosis_325500/] Living with Cerebral Palsy [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] Living with Meniere's Disease [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/] Living with CFS/ME [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewLivingwithCFS_328938/] Living with RA (Rheumatoid Arthritis) [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesLivingwithRA_333251/?post=3610799] Being a wheelchair user [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesBeingaWheelchairuser_336321/?post=3653342] Living with hED and POTS [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewLivingwithhEDSandPOTS_336838/?post=3659993] T [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/]his list is updated as we post more Interviews. July 2024
Boom! or Bust! All about pacing . . .
by MistyMagic
Last post
August 31st
...See more This post will open our new series on  ⚡P A I N !💥 All About. . . Boom!⬆️ Bust 🔽 and Pacing 🟰 The concept of "boom-bust" and “pacing” particularly in the context of disabilities, refers to a pattern of energy expenditure characterized by alternating periods of high activity or productivity ("boom") and subsequent periods of low energy, exhaustion, or rest ("bust"). This approach is often employed by individuals with chronic illnesses, disabilities, or conditions that cause fluctuations in energy levels, such as chronic fatigue syndrome, fibromyalgia, or certain types of disabilities affecting energy levels. How often have you started out at the beginning of an activity or project full of energy (Boom) racing along only to begin feeling tired, but still you carry on because you don’t want to stop, or you just want to finish what you are doing, and then the next day you are so very tired and in pain or exhausted and cannot do anything (Busted) and the recovery takes a few days or even longer? Here's a breakdown of the “boom-bust” and “pacing” approach and its implications for individuals with disabilities: Understanding Energy Levels: Boom-bust pacing recognizes that individuals with disabilities often have limited energy reserves, which can fluctuate from day to day or even within the same day. It emphasizes the importance of being attuned to one's own energy levels and learning to manage them effectively. Managing Activities: Rather than trying to maintain a constant level of activity throughout the day, boom-bust pacing involves identifying periods of higher energy (boom) and using them for more demanding tasks or activities, while conserving energy during periods of lower energy (bust) through rest or less demanding activities. Prioritizing Tasks: Individuals practicing boom-bust pacing often prioritize tasks based on their energy levels. Important or demanding tasks are tackled during periods of higher energy, while less critical tasks may be deferred to periods of lower energy. Ask yourself these questions and think about your answers, then jot them down so that you have a list of your priorities, you can add them in your reply to this post. * What is important? - read all the points below before deciding! * What MUST I do? * What do I want to do? * What do others want me to do? * What am I expected to do? (may include deadlines) * What can I do? Avoiding Overexertion: By pacing activities and balancing periods of activity with rest, individuals can reduce the risk of overexertion, which can exacerbate symptoms or lead to "crashes" where energy levels plummet (bust), sometimes for an extended period as the recovery needed after a “boom” can be extensive and disproportionate to the gain. Examples:  You may want to finish weeding a flower border and do it all in one afternoon, the flower border looks great but you end up exhausted in bed for 3 days. If you had spread it over 2 afternoons then you would not end up exhausted. You have an important exam next week, so you stay up all night studying. The next day you cannot get out of bed because of the body aches and exhaustion. If you had split the studying into short periods then you would not have crashed so badly and could have revised for a few hours every day.  Remember to STOP BEFORE the pain is too bad or STOP BEFORE you feel exhausted, that way the rebound to recovery is faster, and smoother, and repeatable. Take a look at https://www.pomodorotechnique.com/ [https://www.pomodorotechnique.com/]  splitting studying or any task into shorter periods. The original technique has six steps: * Decide on the task to be done. * Set the Pomodoro timer (typically for 25 minutes). * Work on the task. * End work when the timer rings and take a short break (typically 5–10 minutes). * Go back to Step 2 and repeat until you complete four pomodoros. * After four pomodoros are done, take a long break (typically 20 to 30 minutes) instead of a short break. Once the long break is finished, return to step 2. ( a pomodoro is an interval of work time). Also the Spoon Theory [https://www.7cups.com/forum/DisabilitySupport_47/ArticlesResourcesConditionSpecificInformation_458/SpooniesandDropitlikeitsPOTSshirts_20186/] 🥄🥄🥄🥄🥄🥄 and Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/BoomorBustAllaboutpacing_327034/] Flexibility and Adaptability: Boom-bust pacing requires flexibility and adaptability, as energy levels can vary unpredictably. It's important for individuals to listen to their bodies, adjust their plans as needed, and never feel guilty for needing to rest or modify their activities. Communication and Advocacy: In work or social settings, it's essential for individuals practicing boom-bust pacing to communicate their needs effectively and advocate for accommodations or adjustments when necessary. This might involve explaining their pacing approach to employers, colleagues, or friends and asking for understanding and support. Self-Care and Wellness: Boom-bust pacing is ultimately about self-care and managing one's health effectively. It involves not only managing physical energy but also attending to emotional and mental well-being, recognizing the importance of rest, relaxation, and activities that bring satisfaction, happiness, and joy. Overall, boom-bust pacing can be a valuable strategy for anyone, but more so for individuals with disabilities to manage their energy levels and navigate daily life more effectively. By learning to listen to their bodies, prioritize tasks, balance activity with rest ie: pacing themselves, individuals can optimize their functioning and improve their quality of life despite the challenges posed by their disabilities. Chronic Pain Resources  Here Living with Chronic pain Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/] More on Pacing Here [https://www.cfsselfhelp.org/library/pacing-numbers-using-your-heart-rate-to-stay-inside-energy-envelope] Q [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/]uestions to ask yourself, please reply below! * Do you recognize yourself as a ‘boom-bust’ or ‘pacing’ individual? * Have you ever used this method? If you haven’t will you try it in the future? If not why not? If you do does it help? * Can you remember one time when you carried on when you should have stopped and rested? What happened? * Do you have tips to share with us, please do! Consider joining the Disability Community Support Team. More information Here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] Tag list @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @wishfulWillow6962 @WishUponAStar968 @wonderfulRainbow817 @xandia @Xisle @Zed786 Add or Remove yourself in this thread HERE [https://www.7cups.com/forum/disabilities/WeeklyCheckin_1053/2024TaglistDisabilitySupport_202464/]
Parents
by diplomaticChestnut7327
Last post
2 days ago
...See more Hello 👋 I'm a parent to two children with speical needs my boy has Autism and adhd and my girl has Austism, sensory processing disorder and learning difficulties. I currently have no friends or family that understand my children 😪 Are there any other parents in the boat on here x
Interview: Living with hEDS and POTS
by MistyMagic
Last post
Tuesday
...See more Hello everyone, this is an interview about ‘Living with hEDS and POTS’. Our interviewee is xxParkerxx and they are happy to answer any questions you might like to post regarding their condition. Thank you for taking the time to answer our questions so we may better learn and understand what life is like with hEDS and POTS. It is our pleasure to find out more. * What does hEDS stand for? Hypermobile Ehlers-Danlos Syndrome * How did you find out you had hEDS? So it’s actually kind of a funny story. In my 7th and 8th grade years, I had a lot of injuries. In my 8th grade year, I picked up gymnastics again and that’s probably when things got pretty bad. So my mom had posted a video of something I was doing for gymnastics to her ***, and she had been keeping family apprised of things and every injury just because they lived far away and wanted to know. One of her high school friends sent her a private message saying I looked hypermobile and asked if she had considered an hEDS evaluation. Her friend sent us the Beighton Scale and I scored incredibly high on it. So we talked to my doctor, who referred me to a geneticist. My geneticist was actually really surprised that I hadn’t been diagnosed before then, given my history. I walked away from that appointment with a diagnosis of hEDS and suggestions for specialists. * How does it affect you? When I was first diagnosed it honestly wasn’t a huge impact. I was injured more often than others and rehab took longer, wounds took longer to heal, and things dislocated more frequently, but that wasn’t anything I wasn’t already used to. As time went on though, it’s had more of an impact on my life. I actually know how to fix a dislocation of every joint in the arms and legs (fingers and toes included), that can possibly dislocate. Every time we go in, they teach us how to fix whatever is going on at home because doctor appointments are expensive and time-consuming. At this point, I’m in pretty widespread pain on a daily basis, with multiple dislocations on a weekly basis, weak joints overall, muscle spasms, and needing to wear various braces for support of my joints on a daily basis. I also have a severe progressive astigmatism and lack of depth perception due to my hEDS. What this means is that my eyes are misshapen, and will continue to become more misshapen over time due to the tissue in my eyes being stretchy because of the hEDS. I wear hybrid contacts, and those help tremendously, but my vision will never be perfect, even with aids. They aren’t yet sure if they’ll be able to do LASIK due to my hEDS but I’m hoping by the time I’m old enough to get LASIK they’ll have more research and be able to give a definitive answer. * What is POTS? POTS stands for Postural Orthostatic Tachycardia Syndrome. At its core, it is a condition of the autonomic nervous system, where the body struggles to regulate heart rate, which causes issues with regulating other bodily functions. When I change positions, from sitting to standing, lying to sitting or lying to standing, my heart rate increases by an abnormal amount, and takes a while to come back down. This causes things like dizziness, syncope, weakness, brain fog, and pre-syncope. POTS also causes issues like temperature regulation, dehydration, low sodium levels, low vitamin and mineral levels, and either excessive sweating or a lack of sweating. I specifically have secondary, hypovolemic POTS. This means that my POTS is caused by low blood volumes and my hEDS causing blood pooling, thus not allowing my heart to get the blood it needs. POTS can also cause a phenomenon known as POTS anxiety. Researchers aren’t totally sure why this occurs, but it has been found that medicating the POTS symptoms using beta blockers can be helpful in reducing anxiety in POTS patients. * How did you find out that you had POTS? My 7th grade year started getting dizzy. I was a high-level soccer player at the time, so this caused lots of problems. I was dizzy pretty much whenever I was upright, and it was worse when I would change positions, even to the point that when I would stand up, my vision would go black for a few seconds. We went to the doctor. They did a brain MRI, thinking it was either a tumor or a Chiari Malformation, but it was neither. So then my neurologist thought maybe it was migraines. We tried every migraine medication that we could think of. The problem was that none of these touched my symptoms, and some even made them worse. I, needing answers desperately because I was sick of not knowing why things were happening to my body, went to Dr. Google. I put my symptoms into google and up came both POTS and Orthostatic Hypotension. I did what’s called a poor man’s tilt table test, or a poor man’s TTT. This involves taking your heart rate, blood pressure, and blood oxygen at various positions. The results of that showed that I most likely had POTS. I showed my mom, and she agreed. We asked my doctor to refer us to a cardiologist for the diagnosis, and she did. The cardiologist did a poor man’s TTT and an echocardiogram, and confirmed a POTS diagnosis.  * How do the two syndromes affect your life? The combination of the syndromes actually makes some things really hard. I can’t hold my arms above my head for too long, because the blood will drain from them and my shoulders will dislocate. Typing or writing for long periods of time is difficult, because my fingers will dislocate. Running, jumping, or turning quickly are no-nos unless I have braces on to secure my joints and prevent them from dislocating. I have to sit when I shower because the blood pooling and dizziness and high heart rate can cause me to pass out and hit my head, which is dangerous. I have to drink a ridiculous amount of fluids and consume much more salt than the regular person. I have to do joint strengthening exercises at home. I also have a progressive astigmatism that they think is caused by my hEDS. They also have to test my hearing every year as hEDS and the syncope (passing out) from POTS can cause hearing loss. I’m limited on physical activity, and I’ll need mobility aids somewhat soon. * How do the two syndromes affect your school? I actually have a 504 that is currently being transitioned to an IEP. A 504 is a disability plan through Section 504 of I believe the rehabilitation act. Basically it is meant to give baseline accommodations for the classroom. An IEP is what is known as an Individualized Education Plan, and it allows for more individualized instruction and more intensive supports in the classroom. I have some accommodations for school, mainly for gym class. Teachers in regular classes have to have something for me to prop my legs up on to mitigate blood pooling, and a stool for me to sit on at lab tables if lab work is necessary. In gym class, I am allowed to self-pace and modify if necessary. This means that if my knee is bothering me and I don’t feel like I can do gym, then I sit out. If I’m too dizzy to do gym, I sit out. I can also leave classes 2 minutes early to allow me to move a bit slower without being knocked into in the halls if necessary. I’m allowed an alternative testing site on big exams too for when I have bad brain fog or bad anxiety. I do find that I’m slightly ostracized in some classes, but I have great friends who support me and are willing to help me with whatever I need! * How can you support someone with these conditions? That’s really a difficult question to answer, because both of these conditions are usually what are known as invisible disabilities, and they affect everyone differently. For myself, if you see me struggling with something, come up and see if you can help. If I look disoriented, walk up and ask if you can help. If I look injured, offer to call someone for me. If I am unconscious, for the love of all that is good and holy, don’t call an ambulance. If you know the person has POTS and they don’t appear to have injured themself by passing out, wait for them to come to before deciding what to do. People with POTS can have what is called convulsive syncope, where they twitch a bit while they are unconscious. Obviously, if they appear to be having a full seizure and they don’t have a history of this, please call an ambulance. But yea, how you can support someone will vary from person to person, but please don’t hesitate to ask someone if they need help, most of us living with invisible disabilities are super nice and would actually love for someone to ask if they can help. We frequently need help but are too scared to ask. * What else would you like to tell us? While POTS and hEDS are somewhat rare, it is quite possible for someone to live a full and fulfilling life with these conditions. Finding the right friends, getting the right medical treatment, and doing things you enjoy can really improve one’s quality of life. Also, I’ve been in a pretty bad POTS flare recently, and it’s had me pretty fatigued. I will answer any questions that you may have, but it may take me a hot minute because I don’t have a real lot of energy.  Some Resources:- https://www.ehlers-danlos.com/ [https://www.ehlers-danlos.com/] The Ehlers-Danlos Society is a great resource for those looking to know more about EDS in general and all the different types. https://www.dysautonomiainternational.org/ [https://www.dysautonomiainternational.org/] Dysautonomia International is a great resource for those diagnosed with POTS, or those looking to learn more about it. https://www.standinguptopots.org/ [https://www.standinguptopots.org/] Standing Up To POTS is a great resource for those needing to learn about school accommodations or quality of life with POTS. They even have a podcast called The POTScast that is great! Thank you for answering our questions, it has been really interesting and a pleasure to find out more about your life. If anyone has any questions or wishes to offer support then please share in a post. We look forwards to hearing from you!
Multiple health conditions and the changes they bring
by CreativeSolutionSeeker
Last post
Tuesday
...See more I was diagnosed with diabetes at 9 years old. I barely remember not having it. About 20 years ago, I developed endometriosis, leading to multiple surgeries over the years. After my hysterectomy, I began showing symptoms of hereditary angioedema. This has been the source of my severe pain. When experiencing swelling from HAE, anything that touches my skin, clothing included, makes me feel on fire. The swelling is rough, since insurance will not cover the medication. This swelling recently affected my optic nerves, leaving me permanently blind about a year ago. The blindness has been a catastrophic change, which has been very difficult. My hobbies are mostly lost. I have relearned how to crochet by feeling, and now I listen to tons of audiobooks and music. I’m feeling isolated and unseen, now. I always feel like a burden and the recipient of pity. I’m trying to be independent, but often feel like my skills are no better than a toddler. How does one accept their change of abilities and find grace? How do I prevent others from man handling me in their attempts to help? How do I express what help I actually want?
Newly blind
by SunshineCheyenne93
Last post
Monday
...See more So thanks to an auto immune disorder I am now blind. It mimics macular degeneration. Thanks to this disorder, I am now a stay at home mom to a 7yo and a 4mo. My husband is the soul income provider. It’s definitely been a challenging thing for all of us having to adjust. Ive thought of seeing a therapist in regards to my blindness, but also Im not even sure how to go about it. What are some ways you have adjusted to being blind or disabled?
Grape harvest in vineyard
by CheerySandi
Last post
Sunday
...See more
Summer family picnic
by CheerySandi
Last post
Sunday
...See more Summer family picnic.
Other inaccessibility issues for disabled people
by Disneywoman
Last post
Sunday
...See more This will be a post about a bunch of various inaccessibility issues caused by business or society in general. But most will be about businesses. Soda Fountain So something I found out while researching a topic I will get to later  is that the Coke-Freestyle Soda machine (touch screens) aren't good for people with visually impairments or are blind.  There's no audio way nor an app as far as I know, to help a blind person to use the the item.  That it means they have to have someone (like myself for a friend) or  bug an employee to help them get a drink because they can't do the touch-screen themselves.  And if there's an app-like I believe there is for Subway's similar soda fountains which have a touch-screen that it means that visually impaired or blind folks can't be as spontaneous as their non-blind counterparts.  Like what if they want to mix it up a little?   Or what if the person is bad with technology?  Another kind of soda fountain that resembles the old-school kind of Soda fountain but yet is different because the newer ones  don't have the levers and instead there's buttons (which on a totally enough subject aren't braille or enlarge) that you have to push to get your drink in the cup.   Most people would be able to with these new soda fountains to hold onto the cup when they press the button with the other hand.  But people with a limited mobility in one hand, and  0 mobility in the other hand can't use these kind of machines on their own so would need to ask for help from someone and that's something that disabled people don't like doing.. With the actual old style soda fountains somehow-were easier to use I'm going to assume that it was because of memorizing if it was at a place they been to before.   And these were also handy for people with limited mobility difference.  Next topic: Drive thrus 
Scoliosis
by sunnyYard2279
Last post
Saturday
...See more Hey. I’m not that open when it comes to talking about my problems either so here goes. I have scoliosis, i was so oblivious to the entire concept until i found out that i have it, a month ago. My friends think I’m strong but that’s what I project to the rest of the world, no one knows that I’m struggling, genuinely so. I hate it when people worry about me too. I cry myself to sleep every night. I’m studying architecture too so when i work I’m in so much pain and discomfort, just not enough to give up on my passion too but I can’t work to my fullest capacity anymore. Nothing is the same. I’ve seen 4 physios too, 2 chiropractors and they help sometimes but then it all comes back and I feel worse. It’s like i’m punishing myself further too with my course, be it drawings, models etc but what am i supposed to do? I’m angry at everyone, mostly my friends, my boyfriend too. I know they’re worried about me but they don’t have it so they’ll never understand the constant discomfort I feel before i disappear on a night out, or when I’m unable to be shop for more than 2 hours. I recently bought a back brace too and it helps sometimes but having to wear it all the time when i go out? It disgusts me as much as it helps. I’ve completely disassociated too, emotionally. It takes so much strength to wake up and be a light to people, be there for people, be around people that don’t have it. I envy them. Im jealous of them. I’m scared one day i won’t have that strength to carry on anymore.
Interview Diaries - Being a Wheelchair user!
by MistyMagic
Last post
September 12th
...See more Hello everyone, this is an interview about ‘Life being a wheelchair user’. Our interviewee has requested to remain anonymous during this interview and because of the importance of this discussion about being a wheelchair user, we are happy to accept. that. Thank you for taking the time to answer our questions so we may better learn and understand what life is like using a wheelchair. It is our pleasure to find out more. * Please can you tell us about why you need to use a wheelchair? I use a wheelchair because I'm half paralyzed, and a double amputee. So I couldn't live without one. * How does using an electric wheelchair benefit your life?  Using an electric wheelchair is really great for going out in public and for ease to use ramps, and just generally getting around. I have injections in my spine every few months, towards the last month or so, the pain becomes too much and I can only use the electric wheelchair. * Do you prefer an electric or a manual chair? I prefer the manual wheelchair, because it keeps my upper body strength up and gives me the satisfaction that I'm able to keep going ❤ Also manual wheelchairs are much more fun for racing downhill😁weeeeeeee!😂 * What are the worst parts of being wheelchair dependent? The worst thing being wheelchair dependent for me, is I need to rely on my carers to do so much for me, it can make you feel like a burden. But I am so thankful for my carers ❤😁 it also sucks you know, having people talk behind your back and always pushing you around😂 * It is great that you still have a sense of humour, which shows in your posts. How can we help to support someone who uses a wheelchair?  Wheelchair users just want to be accepted, so how you can help is don't look at us funny or call us names 🙁 it can really hurt, and damage our confidence. A lot of us already have self esteem issues. So just be kind ❤ * Sometimes it is hard to know how to approach or offer to help a person that is in a wheelchair. Do you have any tips or advice for these kinds of situations, or do you have any examples? To approach people in wheelchairs, or with elderly people or anyone who looks like they need help, then please do come up and offer assistance. We are just normal people, who appreciate your help just like anyone else. Just don't sneak up behind us😂 we don't want any heart attacks😂. * What else would you like to share with us about your life using a wheelchair? Um🤔 maybe if you guys could put pedals on my wheelchair, for when my arms get tired, that would be great😂only joking 😁 just please know we are able to do a LOT of things, so don't just see our disabilities, focus on our abilities instead.  And to all other wheelchair users out there.  Don't let anyone tell you, you can't. You are more able than you think! Find happiness in the little things, and  Enjoy your life! Thank you for answering our questions, it has been really interesting and a pleasure to find out more about your life in a wheelchair. If you have any questions that you would like to ask our wheelchair user then please post in a reply below. Some Resources to find out more Mobility International USA (MIUSA)  MIUSA [https://www.miusa.org/] MIUSA is an organization dedicated to advancing disability rights and leadership globally. They provide resources, programs, and information on travel, international exchange, and leadership for people with disabilities. National Center on Accessibility  NCA [https://www.ncaonline.org/] NCA promotes access and inclusion for people with disabilities in parks, recreation, and tourism. They offer training, technical assistance, and resources related to accessibility in outdoor environments and recreational facilities.  United Spinal Association United Spinal Association [https://unitedspinal.org/] Description: This organization offers resources, advocacy, and support to individuals with spinal cord injuries and disorders. Their website provides information on health, wellness, mobility, and rights for wheelchair users.  Wheelchair Travel Wheelchair Travel [https://wheelchairtravel.org/] Wheelchair Travel provides detailed travel guides, tips, and resources specifically tailored for wheelchair users. The website covers accessibility in various destinations, transportation, and accommodations worldwide.  Abilities.com  Abilities [https://www.abilities.com/] Description: Abilities.com is a resource hub for individuals with disabilities, offering information on assistive technology, accessible products, events, and services. It also features a community forum for sharing experiences and advice. Paralyzed Veterans of America  PVA [https://pva.org/] Description: PVA provides support and advocacy for veterans with spinal cord injuries. Their resources include health and wellness information, legal services, and assistance with accessible housing and employment. Disability Rights Education & Defense Fund  DREDF [https://dredf.org/] DREDF is a leading civil rights law and policy center that works for disability rights. They provide legal advocacy, education, and resources on accessibility, disability laws, and rights. MobilityWorks: MobilityWorks [https://www.mobilityworks.com/] MobilityWorks is a national chain of wheelchair accessible van providers, offering vehicles, equipment, and modifications for people with mobility issues. Their site also has resources on financing and renting accessible vehicles. Wheelchair Foundation  Wheelchair Foundation [https://www.wheelchairfoundation.org/] The Wheelchair Foundation provides wheelchairs to those in need around the world. Their site includes information on their global impact, donation opportunities, and stories of lives changed through mobility.  Ice cream for everyone!
I CANT DO THIS DUDE
by DragonsRKool
Last post
September 12th
...See more I literally have 1+ doctor(s) appts a week I'm full time navigating and nurturing my health care. I'm exhausted I have time for nothing else and the doctors don't talk to eachother, they barely listen to me and expect me to do all the work ;-;
September Check In
by AffyAvo
Last post
September 11th
...See more [Peanuts characters look off a dock, at the sunset while leaves swirl around them text states GOODBYE AUGUST Hello September] September can be a shift, some schools are full of people settling into new routines, the weather changes into a new season and pumpkins seem to pop up everywhere. Some of us are also cheering on the Paralympians (check out this post [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/ParalympicsParis2024_335558/])! Are you experiencing and changes or stating something this month? What's a fun activity you are doing this month? How are you doing? Would you like support with anything?
Interview Series - Master List!
by AffyAvo
Last post
September 9th
...See more Our series 'Interview Diaries' allows the community to share their direct living experience with conditions and disabilities and for us to learn from each other. To learn more about Interview Diaries, share as an interviewer or interviewee, and to be notified of new interviews via the taglist please see Call of Applications [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/CallForApplicationsToBeInterviewed_276642/] List of Interview Diaries:- Non-Epileptic Seizures With Audienta! [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/NonEpilepticSeizuresWithAudienta_275839/] Turner Syndrome With @Animeweebu123 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TurnerSyndromeWithAnimeweebu123_276707/] Spending Time With A Surfer @theboymoana [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/SpendingTimeWithASurfertheboymoana_276777/] Learning About FND With @EmpatheticListener0309💜 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningAboutFNDWithEmpatheticListener0309_277278/] Interview about being Deaf with FrenchMarbles [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/InterviewaboutbeingDeafwithFrenchMarbles_277578/] The magical @MistyMagic Tells Her Experiences With Celiac Disease [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TheWholesomeMistyMagicTellsHerExperiencesWithCeliacDisease_277824/] Dissociative Identity Disorder with @DichotomousDetia [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/DissociativeIdentityDisorderwithDichotomousDetia_277991/] An Interview With @AffyAvo on Hereditary Angioedema♥ [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/AnInterviewWithAffyAvoonHereditaryAngioedema_278243/] Endometriosis and Me: an interview with @Lilyfae00 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/EndometriosisandMeaninterviewwithLilyfae00_278539/] PoTS and Me: An Interview with @wonderfulRainbow817 [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PoTSandMeAnInterviewwithwonderfulRainbow817_278731/] Tendonitis and Misdiagnosis: Rachel's Experience With Chronic Pain [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/TendonitisandMisdiagnosisRachelsExperienceWithChronicPain_278839/] Pervasive Developmental Disorder: Interview with @Goalsforlife [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/PervasiveDevelopmentalDisorderInterviewwithGoalsforlife_280227/] WarmLightXO Sheds Some Light On PCOS [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/WarmLightXOShedsSomeLightOnPCOS_280813/] Learning With Lucy: Her Experience With Epilepsy [https://www.7cups.com/forum/DisabilitySupport_47/InterviewSeriesInclusivityDiaries_2386/LearningWithLucyHerExperienceWithEpilepsy_284621/] Grab a Cuppa and Learn about Multiple Sclerosis [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewDiariesGrabaCuppaandLearnaboutMultipleSclerosis_325500/] Living with Cerebral Palsy [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] Living with Meniere's Disease [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/] Living with CFS/ME [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewLivingwithCFS_328938/] Living with RA (Rheumatoid Arthritis) [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesLivingwithRA_333251/?post=3610799] Being a wheelchair user [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesBeingaWheelchairuser_336321/?post=3653342] Living with hED and POTS [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewLivingwithhEDSandPOTS_336838/?post=3659993] T [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/LivingWithMenieresDisease_327897/]his list is updated as we post more Interviews. July 2024

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

There are a number of ways to get involved and be supported. We have a pop up teen chatroom and a 24/7 adult chatroom.

There are guides for Chronic Pain and T2 Diabetes
There are Q&A sections for Disabilities and Chronic Pain

Members may connect with a listener who has disabilities, chronic pain, cancer, diabetes, adhd or autism listed as a topic and there are listeners with disabilities supporting people with disabilities

We encourage people to post new threads and respond to others in the forums! Some good ways to get started are to introduce yourself and to join our tag list to be notified of weekly check ins and events. We also have an Interview Series: if you would be open to sharing more about yourself and want to be interviewed.

Looking to be even more activity in the Disability Community? Join as a leader!

*Note we are inclusive of all disabilities but ADHD and Autism each of their own communities which may be of interest to some of you.

Community Guidelines

🌟 Please be respectful of everybody's thoughts and opinions.

🌟 Don't think you are alone, so please share

🌟 Please be patient if you feel like your concern hasn't been addressed yet; we are working hard to add more leaders and supporters.

🌟 If you have any concerns, reach out to a leader or make a post.

🌟 For Listeners only - please remember that you are here to give support, if you are seeking support then please switch to your Member account.

🌟 Most of all - don't forget to be awesome! You are loved and accepted here, no matter what!

Guidelines For Using AI 


We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







Community Leaders
Community Mentor Leader
Community Mentor / Teen Community Star
Group Support Mentor / Teen Star