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Family Support
Prader-Willi Syndrome Association (PWSA)
Sequim, WA US
Sequim, WA US
Located in Sequim, WA, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team provides essential resources and guidance right from the moment of diagnosis, ensuring families have access to accurate information and comprehensive assistance. We offer a variety of services including parent mentoring, nutritional education and meal planning, behavior management strategies, and help navigating the complexities of applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can reach out through our online chapter locator or connect via email to join one of our Facebook Support Groups, fostering a strong network of understanding and assistance.
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