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Family Support
Prader-Willi Syndrome Association (PWSA)
Richland, WA US
Richland, WA US
Based in Richland, WA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team stands ready to guide families through the complexities of this diagnosis by offering reliable information, personalized mentoring, and essential resources tailored to their needs. We focus on nutritional education, meal planning, and behavior management strategies to enhance the quality of life for those affected. Additionally, we assist families in navigating the intricacies of applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Those seeking assistance can find local support through our online chapter locator or connect with us via email to join our Facebook Support Groups, ensuring no family faces this journey alone.
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