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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Edmonds, WA US
In Edmonds, WA, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a vital resource, offering accurate information and personalized assistance right from the moment of diagnosis. Through our comprehensive program, we provide essential services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance with Medicaid applications, insurance issues, and appeals for Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). We invite families seeking support to connect with their local PWSA chapter using our online locator or reach out via email to join our Facebook Support Groups, ensuring that no one faces this journey alone.

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