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Family Support
Prader-Willi Syndrome Association (PWSA)
Deer Park, WA US
Deer Park, WA US
Based in Deer Park, WA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Understanding the challenges faced at the time of diagnosis, PWSA's Family Support team offers a wide array of services, including accurate information dissemination, parent mentoring, nutritional education, and specialized meal planning. Additionally, we provide valuable behavior management strategies and assistance with navigating the complexities of Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families in need of support to connect with their local PWSA chapter through our online chapter locator or to reach out via email to join one of our supportive Facebook groups, fostering a community of understanding and shared experiences.
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