In Locust Grove, VA, the Prader-Willi Syndrome Association (PWSA) serves as a beacon of hope and assistance for individuals and families affected by Prader-Willi syndrome. With a dedicated Family Support team, PWSA offers vital information, emotional support, and resources tailored to the unique challenges faced at the time of diagnosis. Families can access essential services, including parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, the organization provides assistance with navigating the complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families are encouraged to utilize the online chapter locator or reach out via email to connect with PWSA’s Facebook Support Groups, ensuring that no one has to face this journey alone.