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Family Support
Prader-Willi Syndrome Association (PWSA)
Hayes, VA US
Hayes, VA US
Based in Hayes, VA, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through a comprehensive array of resources and support. Our Family Support team is committed to providing accurate information and empathetic guidance from the moment of diagnosis. We offer tailored services including parent mentoring, nutritional education and meal planning, and behavior management support, all designed to enhance the well-being of families navigating this complex condition. Additionally, we assist families with the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support programs, families can utilize our online chapter locator or reach out via email to join our Facebook Support Groups. Together, we strive to create a strong community of support and understanding.
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