Located in Forest, VA, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to provide accurate information and comprehensive assistance during the critical moment of diagnosis. We focus on delivering valuable resources such as parent mentoring, nutritional education, meal planning, and behavior management guidance. Moreover, PWSA helps families navigate the complexities of applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support are encouraged to reach out through our online chapter locator or connect with us via email to join one of our Facebook Support Groups, where they can find community and guidance in their journey.