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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Washington, UT US
In Washington, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, their families, and care providers. Our Family Support team is committed to offering accurate information and comprehensive assistance from the moment of diagnosis. We provide valuable resources such as personalized parent mentoring, nutritional education and meal planning, behavior management strategies, and guidance through the complex application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can connect with their local PWSA chapter via our online locator or reach out to us to join one of our supportive Facebook groups.

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