Family Support

Family Support in Santa Clara, UT, is dedicated to empowering individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our mission is to provide essential resources and compassionate guidance during what can be a challenging time. We offer a range of services, including accurate information on Prader-Willi syndrome, parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families with navigating applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We encourage families seeking assistance to connect with their local PWSA chapter through our online chapter locator or join one of our Facebook Support Groups for ongoing support.