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Family Support
Prader-Willi Syndrome Association (PWSA)
Sandy, UT US
Sandy, UT US
Family Support in Sandy, UT, is dedicated to assisting individuals diagnosed with Prader-Willi syndrome and their families by offering vital resources, information, and emotional support. Our team understands the challenges faced at the time of diagnosis, providing comprehensive help that includes personalized parent mentoring and educational resources on nutrition and meal planning. We also offer guidance on behavior management strategies and support navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with our local chapter through our online locator or by reaching out via email to join one of our supportive Facebook groups, ensuring they have access to the tools and community they need to thrive.
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