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Family Support
Prader-Willi Syndrome Association (PWSA)
Nephi, UT US
Nephi, UT US
Located in Nephi, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Understanding the challenges faced upon diagnosis, the Family Support team offers reliable information and comprehensive assistance tailored to each family's needs. Our services include personalized parent mentoring, nutritional education, and meal planning focused on healthful eating. We also provide guidance on behavior management strategies, as well as support through the complex application processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Our mission is to empower families with the resources and community connections they need to navigate their journey. For support, please utilize our online chapter locator to reach your local PWSA chapter or contact us to join one of our Facebook Support Groups.
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