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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Morgan, UT US
Located in Morgan, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer accurate information and compassionate guidance from the moment of diagnosis, ensuring families feel understood and empowered. We provide a range of resources, including personalized parent mentoring, nutritional education and meal planning, and behavior management strategies. Additionally, we assist families with navigating application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support services, families can reach out through our online chapter locator or email us to join one of our active Facebook Support Groups, fostering a strong community of understanding and shared resources.

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