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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
La Verkin, UT US
Located in La Verkin, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and offering essential support to their families and care providers. Our Family Support team is committed to providing accurate information and comprehensive assistance right when it's needed most. We offer a range of resources including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the complex processes of applying for and appealing Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For assistance, families are encouraged to reach out to their local PWSA chapter through our online chapter locator or join our supportive online community via our Facebook Support Groups.

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