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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Eden, UT US
Located in Eden, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals living with Prader-Willi syndrome and their families through compassionate and thorough support. Our Family Support team is a vital resource, providing accurate information and guidance right at the moment families need it most after a diagnosis. We offer a range of services including parent mentoring, nutritional education tailored to the unique needs of PWS, behavior management support, and assistance with navigating Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. Connecting with our local chapter is straightforward; families can easily access valuable resources and join our supportive Facebook groups for additional community engagement.

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