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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Eagle Mountain, UT US
Located in Eagle Mountain, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome and their families. Our Family Support team offers vital assistance at the time of diagnosis, providing families with accurate information, comprehensive resources, and compassionate guidance. We equip families with essential tools such as parent mentoring, nutritional education, and meal planning, alongside behavior management support tailored to their unique needs. Our knowledgeable staff also helps families navigate the complexities of applying for Medicaid, insurance benefits, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our resources and connect with our supportive community, families are encouraged to reach out to their local PWSA chapter through our online chapter locator or join one of our welcoming Facebook Support Groups.

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