Family Support

Located in Tyler, TX, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing compassionate support to individuals and families affected by Prader-Willi syndrome. Our Family Support team offers vital resources and guidance from the moment of diagnosis, empowering families with accurate information, parent mentoring, nutritional education, meal planning, and behavior management strategies. We strive to simplify the process of accessing essential services, offering assistance with Medicaid applications and appeals, as well as support for navigating insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite you to connect with us through your local PWSA chapter or join our supportive online Facebook groups for additional community engagement and resources.