Family Support

Based in Texas City, TX, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals with Prader-Willi syndrome and their families. Our Family Support team offers accurate information and compassionate, comprehensive assistance at the moment of diagnosis, helping families navigate the complexities of this condition. We provide crucial services including parent mentoring, nutritional education and meal planning, behavior management strategies, and support with Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite local families to reach out through our online chapter locator or email us to connect with supportive resources and community through our Facebook Support Groups.