Family Support

Based in Eagle Pass, TX, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through comprehensive support and reliable information. Our Family Support team is here to assist families at critical moments, providing resources such as parent mentoring, nutritional education and meal planning, behavior management support, and guidance with navigating Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. We invite families to connect with us through our local chapter or join our robust online community, ensuring they don't have to face this journey alone. With a commitment to fostering understanding and support, PWSA stands ready to help navigate the challenges of Prader-Willi syndrome.