Family Support

Located in Beaumont, TX, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our warm and knowledgeable Family Support team is here to guide you through the challenging journey following a diagnosis, offering valuable resources that include accurate information, parent mentoring, nutritional education, and meal planning. We also provide behavior management support and assistance navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we encourage you to connect with your local PWSA chapter through our online chapter locator, or reach out to us via email to join one of our Facebook Support Groups.