Located in Portland, TN, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals with Prader-Willi syndrome and their families. Our Family Support team offers accurate information and compassionate guidance during the critical time of diagnosis, ensuring that families feel empowered and understood. We provide essential services, including mentorship from experienced parents, nutritional education and meal planning tailored to unique needs, behavior management support, and assistance navigating the applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support and resources, families are encouraged to connect with their local PWSA chapter through our online locator or join one of our active Facebook Support Groups to foster a sense of community among those impacted by Prader-Willi syndrome.