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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Hixson, TN US
Located in Hixson, TN, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals diagnosed with Prader-Willi syndrome, alongside their families and care providers. Understanding the unique challenges faced at the time of diagnosis, PWSA's Family Support team offers accurate information, compassionate parent mentoring, and specialized nutritional education, including meal planning tailored to the needs of affected individuals. Our program also delivers behavior management support and guidance through the often complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For assistance, families can connect with their local PWSA chapter through our online chapter locator or reach out via email to join one of our supportive Facebook groups.

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