Family Support

Based in Greeneville, TN, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team provides essential resources and compassionate guidance right from the moment of diagnosis, ensuring families have access to accurate information tailored to their unique needs. We offer a variety of services including parent mentoring, nutritional education, meal planning, behavior management support, and assistance with navigating application processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can easily connect with their local PWSA chapter through our online locator or join one of our Facebook Support Groups for ongoing community support.